Table 1.
Demographics and Characteristics of Respondents
| No Family History N=170 (%) |
Relatives N = 310 (%) |
Total N=480 (%) |
|
|---|---|---|---|
| Demographics | |||
| Male | 67 (39) | 116 (37) | 183 (38) |
| Average Age, Male | 51.1 | 48.6 | 49.5 |
| Average Age, Female** | 52.9 | 47.0 | 49.1 |
| Race | |||
| White | 160 (94) | 288 (93) | 448 (93) |
| Non-white | 10 (6) | 22 (7) | 32 (7) |
| Education** | |||
| Less than high school | 3 (2) | 1 (<1) | 4 (<1) |
| High school graduate | 13 (8) | 40 (13) | 53 (11) |
| Some college or university | 51 (30) | 119 (38) | 170 (35) |
| College graduate or higher | 103 (60) | 149 (47) | 252 (52) |
| Unknown or refused | 0 (0) | 1(<1) | 1 (<1) |
| Family History of Cancer | |||
| Average number of FDR with any cancer other than colorectal** |
0.68 | 1.53 | 1.23 |
| Average number of FDR with colorectal cancer** | 0.00 | 0.96 | 0.62 |
| Average number of SDR with any cancer, including colorectal | 1.54 | 1.75 | 1.68 |
| Experience with a relative with cancer** | |||
| Accompanied through diagnosis and treatment | 22 (13) | 109 (35) | 131 (27) |
| Spoke frequently about diagnosis/treatment but did not accompany |
31 (18) | 100 (32) | 131 (27) |
| Spoke occasionally about diagnosis/treatment | 23 (13) | 61 (20) | 84 (18) |
| Spoke very little about diagnosis/treatment | 25 (15) | 27 (9) | 52 (11) |
| Did not speak at all about diagnosis/treatment | 40 (24) | 11 (4) | 51 (11) |
| Refused | 29 (17) | 2 (<1) | 31 (6) |
| Self Assessment of Current Health | |||
| EQ-5D summary score | 0.878 | 0.889 | 0.885 |
| Visual Analogue Scale summary score (0-100 scale) | 82.94 | 83.58 | 83.35 |
| Standard Gamble Utility Score | |||
| Women | 0.886 | 0.909 | 0.901 |
| Men | 0.892 | 0.887 | 0.889 |
| All | 0.889 | 0.901 | 0.896 |
| Estimate of lifetime colorectal cancer risk | |||
| Age < 45 | 13% | 29% | 25% |
| Age 46-55 | 8% | 29% | 23% |
| Age 56-65 | 11% | 21% | 16% |
FDR = First degree relatives: parents, siblings, children
SDR = Second degree relatives: grandparents, aunts, uncles
**
indicates significant difference between relatives and controls (p < 0.05)