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. Author manuscript; available in PMC: 2020 Oct 30.
Published in final edited form as: J Alzheimers Dis. 2020;77(2):865–875. doi: 10.3233/JAD-200184

Table 2:

Question guide—examples

Category Question
Background Can you tell me a bit about [person with dementia]?
What is your relationship to [person with dementia]?
How long have you been caring for [person with dementia]?
Before you started taking care of [person with dementia], did you have any other caregiving experience?
Caregiving experience How has it been caring for [person with dementia]?
What are the hardest things about caregiving for [person with dementia]?
What are the most rewarding things about caregiving for [person with dementia]?
Can you describe a time when you needed to get support or information to take care of [person with dementia]?
Informal resources Are other family members of friends involved in taking care of [person with dementia]? What things make it difficult to involve family/friends in [person with dementia]’s care?
Formal resources Are there any services you are using to help with [person with dementia]’s care?
How did you find this service?
How often do you use this service?
How has this service been meeting [person with dementia] and your needs?
What is working well with this service?
What kinds of problems do you find with this service?
Would you say your interactions with people from this service are generally positive or negative?
How could this service be improved for people in the future?
Differences in healthcare systems What differences exist in the healthcare system between [country of origin] and Germany?
Are there dementia-specific healthcare services in [country of origin]?