Table 1.

Demographics and clinical characteristics of children with severe neurological impairment by MRCI score.

	% (N=123)	MRCI Mean Score	95% CI	One-Way ANOVA
Patient Age at Visit (years)
1–4	20.3	44.8	(39.0, 50.6)	0.198
5–8	27.6	54.9	(49.2, 60.6)
9–12	28.5	49.1	(40.5, 57.7)
13–17	23.6	45.2	(37.1, 53.3)
Patient Sex
Male	59.3	49.6	(44.3, 54.9)	0.659
Female	40.7	47.9	(43.1, 52.7)
Patient Race
American Indian/Alaska Native	0.8	69.0	NA	0.912
Black/African American	4.1	48.1	(33.6, 62.6)
White	76.4	49.0	(44.5, 53.5)
More than one race	13.8	48.7	(41.6, 55.8)
Not Specified	4.9	45.6	(29.4, 61.8)
Patient Ethnicity
Not Hispanic or Latino	76.4	49.1	(44.5, 53.7)	0.883
Hispanic or Latino	23.6	48.4	(42.9, 53.9)
CCC Category
1–2	39.8	42.1	(37.1, 47.1)	<0.001
3–4	44.7	49.5	(44.2, 54.8)
5+	15.4	64.8	(54.5, 75.1)
Rx Count (Pre-Visit)
5–9	20.3	28.9	(24.8, 33.0)	<0.001
10–14	35.8	41.0	(37.1, 44.9)
15+	43.9	64.7	(59.8, 69.6)
Outpatient Visits in Past Year
1–9	24.4	38.2	(32.6, 43.8)	0.003
10–19	34.1	49.3	(43.7, 54.9)
20–29	22.0	51.4	(44.8, 58.0)
30+	19.5	59.0	(47.6, 70.4)
ED Visits in Past Year
0	43.1	46.6	(41.5, 51.7)	0.099
1	16.3	45.7	(38.6, 52.8)
2	17.9	46.4	(38.6, 54.2)
3+	22.8	57.6	(47.5, 67.7)
Inpatient Visits in Past Year
0	27.6	38.9	(33.8, 44.0)	<0.001
1	22.8	43.8	(37.0, 50.6)
2	19.5	56.8	(48.3, 65.3)
3+	30.1	56.9	(49.6, 64.2)
Parent Education
Some high school	4.1	49.2	(28.2, 70.2)	0.838
High school graduate	14.8	45.0	(38.0, 52.0)
Some college or technical school	39.3	50.3	(43.4, 57.2)
College graduate	41.8	49.5	(44.2, 54.8)
Nurse-Provided Care
0 Days per Week	48.0	45.8	(40.5, 51.1)	0.063
1–3 Days per Week	17.9	47.9	(37.7, 58.1)
4–7 Days per Week	31.7	55.5	(49.8, 61.2)
Not Specified	2.4	31.7	(19.4, 44.0)