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. Author manuscript; available in PMC: 2022 Oct 14.
Published in final edited form as: Am J Med Genet C Semin Med Genet. 2021 Nov 7:10.1002/ajmg.c.31939. doi: 10.1002/ajmg.c.31939

Table 1:

Characteris of sample (N=1146).

Demographics N % Country N % EDS Type N %
Age U.S. 900 78.5 Hypermobile/hypermobility
 Mean 1146 38.2±11.5 England 111 9.7 spectrum disorders 1046 91.3
 Range 1146 18–77 Canada 46 4.0 Classic 50 4.4
 Menopausal 217 18.9% Australia 23 2.0 Not sure which type 21 1.8
Gender Scotland 8 0.7 Vascular 10 0.9
 Female 1144 99.8 Belgium 6 0.5 Classical-like 9 0.8
 Transgender 2 0.2 Ireland 6 0.5 Kyphoscoliotic 6 0.5
Race a Norway 5 0.4 Cardiac-Valvular 2 0.2
 White 1063 92.8 South Africa 5 0.4 Arthrochalasia 1 0.1
 Black or African American 12 1.0 Wales 5 0.4 Myopathic 1 0.1
 American Indian or Alaskan Native 17 1.5 Netherlands 4 0.3 Brittle Cornea 0 0
 Asian 11 1.0 New Zealand 4 0.3 Dermatosparaxis 0 0
 Native Hawaiian or Pacific Islander 3 0.3 Sweden 3 0.3 Musculocontractural 0 0
 Other 47 4.1 Denmark 2 0.2 Periodontal 0 0
Ethnicity (N=1138) France 2 0.2 Spondylodysplastic 0 0
 Hispanic/Latino 41 3.6 Germany 2 0.2
 Not Hispanic/Latino 1046 91.9 Italy 2 0.2
 Unknown or Not Reported 51 4.5 Jordan 2 0.2
Countries with 1 Participant 10 1.0

Abbreviations: EDS, Ehlers-Danlos Syndromes

a

Participants selected all races they identified with