Table 1:
Demographics | N | % | Country | N | % | EDS Type | N | % |
---|---|---|---|---|---|---|---|---|
Age | U.S. | 900 | 78.5 | Hypermobile/hypermobility | ||||
Mean | 1146 | 38.2±11.5 | England | 111 | 9.7 | spectrum disorders | 1046 | 91.3 |
Range | 1146 | 18–77 | Canada | 46 | 4.0 | Classic | 50 | 4.4 |
Menopausal | 217 | 18.9% | Australia | 23 | 2.0 | Not sure which type | 21 | 1.8 |
Gender | Scotland | 8 | 0.7 | Vascular | 10 | 0.9 | ||
Female | 1144 | 99.8 | Belgium | 6 | 0.5 | Classical-like | 9 | 0.8 |
Transgender | 2 | 0.2 | Ireland | 6 | 0.5 | Kyphoscoliotic | 6 | 0.5 |
Race a | Norway | 5 | 0.4 | Cardiac-Valvular | 2 | 0.2 | ||
White | 1063 | 92.8 | South Africa | 5 | 0.4 | Arthrochalasia | 1 | 0.1 |
Black or African American | 12 | 1.0 | Wales | 5 | 0.4 | Myopathic | 1 | 0.1 |
American Indian or Alaskan Native | 17 | 1.5 | Netherlands | 4 | 0.3 | Brittle Cornea | 0 | 0 |
Asian | 11 | 1.0 | New Zealand | 4 | 0.3 | Dermatosparaxis | 0 | 0 |
Native Hawaiian or Pacific Islander | 3 | 0.3 | Sweden | 3 | 0.3 | Musculocontractural | 0 | 0 |
Other | 47 | 4.1 | Denmark | 2 | 0.2 | Periodontal | 0 | 0 |
Ethnicity (N=1138) | France | 2 | 0.2 | Spondylodysplastic | 0 | 0 | ||
Hispanic/Latino | 41 | 3.6 | Germany | 2 | 0.2 | |||
Not Hispanic/Latino | 1046 | 91.9 | Italy | 2 | 0.2 | |||
Unknown or Not Reported | 51 | 4.5 | Jordan | 2 | 0.2 | |||
Countries with 1 Participant | 10 | 1.0 |
Abbreviations: EDS, Ehlers-Danlos Syndromes
Participants selected all races they identified with