Table 1. Impact of HIV/AIDS on Mothers’ Ability to Attend Activities With Their Children: Percent of Mothers Indicating each Response Overall and by Race/Ethnicity.
Activities/Reasons | Total | Latina | African American |
Multi- racial |
White | Illustrative quotations |
---|---|---|---|---|---|---|
Mothers Who Missed Out on Specific Activities (n = 34) | ||||||
School and extracurricular activities | 47% | 53% | 50% | 25% | 0% | “The school was far away, sometimes I didn’t have the energy…I didn’t go to the meetings…the teachers would call me.” |
Going places | 42% | 53% | 21% | 50% | 50% | “When a certain time of day comes, I can’t do anything. So when my son wants to go to the movies … I can’t take him … I couldn’t do many things.” |
Daily care | 35% | 27% | 36% | 50% | 50% | “You feel useless. You cannot cook for your kids, take care of them.” |
Active, leisure time play | 18% | 27% | 7% | 0% | 50% | “There was a lot of things. I think a lot of it had to do with just being able to go out and experience a lot of physical things.” |
Reasons for Missing Activities (n = 34) | ||||||
Poor physical health | 94% | 87% | 100% | 100% | 100% | “I was so sick so it was hard taking care of him.” |
Poor mental health | 26% | 33% | 15% | 50% | 33% | “I’d rather sit home and do nothing in my depression than get out of it and let him have more of a normal childhood.” |
Stigma/secrecy | 12% | 7% | 15% | 0% | 50% | “I wanted to hide … I was very ashamed.” |
Reasons for Not Missing Activities (n = 23) | ||||||
Good physical health | 78% | 92% | 71% | 0% | 50% | “I pretty much haven’t been ill during their whole life.” |
HIV as motivator to do “more” | 17% | 8% | 14% | 0% | 50% | “I think it caused us [to do] more.” |
“Powering through” limitations | 17% | 17% | 29% | 0% | 0% | “I just push myself and just go and catch up with rest later.” |