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. Author manuscript; available in PMC: 2013 May 1.
Published in final edited form as: Clin Transl Sci. 2011 Nov 7;4(6):403–413. doi: 10.1111/j.1752-8062.2011.00349.x

Table 2.

Specific Issues Discussed in Focus Groups

Research Participants’ Groups

  1. Reasons participants join research studies

  2. Informed consent

  3. Positive and negative aspects of the research experience

  4. Reasons participants remain in research studies

  5. Reasons participants drop out of research studies

  6. Family involvement and familial reaction to participation

  7. Comparison of expectations versus experiences in research

  8. Enrollment recommendations

  9. Suggestions for making research participation easier

  10. Experiences around recruitment

  11. The role of incentives

  12. Misconceptions about research

Research Professionals’ Groups

  1. Concerns on behalf of research participants

  2. Perceived participants’ concerns

  3. Informed consent

  4. Participant expectations

  5. Reasons participants stay in research studies

  6. Reasons participants leave research studies

  7. Retention by study type

  8. Barriers for participants

  9. Resources to overcome barriers

  10. Comments about the participant survey

  11. Community involvement