Table 3.

Demographics of Participants and Research Professionals Participating in Focus Groups

	N	Gender	Mean Age in Years (range)	Ethnicity	Race	Language	Education	Employment Status
Total of Research Participants	85	38 Males	50	79 Not	49 White	92% English	13% High School or less	35% Full Time
		46 Females	(19–86)	Hispanic/Latino	24 Black/African-American	8% Not reported	28% Some College	19% Part Time
		1 Not reported		6 Not reported	2 Asian		31% Graduated 4 year College	23% Not in Labor Force
Affected/Intervention (AI)	27				2 American Indian/Alaska Native		26% Graduate School	9% Unemployed
Affected/Natural History (AN)	28				8 Not reported		2% Not reported	2% Seasonal
Normal Volunteers (NV)	30							11% Not reported
Total of Professionals	29	7 Males	50	28 Not	28 White	100% English	7% Graduated 2 year College
		22 Females	(31–76)	Hispanic/Latino	1 Asian		10% Graduated 4 year College
Investigators	7			1 not reported			38% Some Graduate Education
Coordinators	11						17% PhD
Ethicists	11						21% MD
							3% MD/PhD
							3% not reported