Table 4.
Ranked weighted averages of participants’ ratings of the factors influencing their decisions to join or to stay in a research study (N= 4000-4300)
| Factors Influencing Decision | Relative importance in decision to join a study | Relative importance in decision to remain in a study | ||||||
|---|---|---|---|---|---|---|---|---|
| Subgroups | Subgroups | |||||||
| Healthy Volunteer | Disease Affected volunteer | Study involves drug device, procedure | Healthy Volunteer | Disease-affected volunteer | Study involves drug device, procedure | |||
| No | Yes | No | Yes | |||||
| To help others | 1 | 1 | 1 | 1 | 1 | 2 | 1 | 1 |
| Concern about the topic | 2 | 2 | 2 | 2 | 2 | 3 | 2 | 2 |
| Because of center’s reputation | 3 | 6 | 4 | 5 | 4 | 7 | 4 | 7 |
| To obtain education/learning | 4 | 5 | 3 | 6 | 5 | 5 | 3 | 6 |
| To find out more about my disease | 7 | 3 | 5 | 4 | 8 | 1 | 6 | 4 |
| To gain access to new treatment | 8 | 4 | 6 | 3 | 10 | 6 | 8 | 5 |
| Because no other options available | 11 | 7 | 11 | 7 | 13 | 10 | 12 | 10 |
| To obtain free healthcare | 9 | 10 | 10 | 9 | 12 | 12 | 13 | 12 |
| Because of prior positive experience | 5 | 8 | 7 | 8 | 7 | 11 | 9 | 11 |
| To earn money/payment | 6 | 12 | 8 | 12 | 9 | 15 | 11 | 15 |
| Because of family influence | 10 | 11 | 9 | 11 | 14 | 14 | 14 | 14 |
| Because of caregiver encouragement | 12 | 9 | 12 | 10 | 15 | 13 | 15 | 13 |
| Because of relationship with the team | - | - | - | - | 11 | 9 | 10 | 9 |
| Because of improved health | - | - | - | - | 6 | 4 | 7 | 3 |
| Because of feeling valued | - | - | - | - | 3 | 8 | 5 | 8 |