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. Author manuscript; available in PMC: 2016 Aug 1.
Published in final edited form as: Clin Transl Sci. 2015 Jan 10;8(4):362–366. doi: 10.1111/cts.12259

Table 1.

Overview of EngageUC Stakeholders

Stakeholder Group Role in UC Biobanking Mode of Engagement
Ordinary Californians (Including UC patients and research volunteers) Current or potential donors; Potential beneficiaries of biobank research discoveries
  • *

    DCE event

  • *

    Consenting trial subjects

  • *

    Stakeholder workshop
Biobankers Manage biobanks; implement policies and procedures related to sample and data handling, oversight, and sharing
  • *

    BRAID working group

  • *

    Stakeholder workshop
Institutional officials (including IRB directors) Regulatory oversight of biobank policies and operations
  • *

    Focus groups & interviews

  • *

    Stakeholder workshop
UC Researchers
  • *

    Facilitate sample donation

  • *

    End-users of samples and data
  • *

    Consenting trial subjects

  • *

    Stakeholder workshop
UC Leaders (UCOP and individual UC campuses) Fund and oversee biobank operations
  • *

    BRAID executive committee

  • *

    Stakeholder workshop