Table 1. Attributes of Ethical Community-Engaged Research*.
Total (n=29) | Community (n=14) | Academic (n=15) | |
---|---|---|---|
Protection and fair treatment of enrolled participants and their data; enrolled participants not harmed | 22 | 8 | 14 |
Study results in community or policy benefit | 14 | 6 | 8 |
IRB, HIPAA, Belmont compliant | 11 | 4 | 7 |
Appropriate informed consent procedures | 8 | 3 | 5 |
Research team practices transparency | 6 | 0 | 6 |
Research team practices respect | 6 | 5 | 1 |
Research team practice trust or honesty; being personally ethical | 5 | 4 | 1 |
Research protocols are sensitive to participants, not stigmatizing, culturally appropriate | 5 | 4 | 1 |
Benefits to enrolled participants outweigh risks | 4 | 1 | 3 |
Protocols are scientifically rigorous, valid, objective | 4 | 0 | 4 |
Adherence to study protocols | 4 | 3 | 1 |
Research aim important to community | 4 | 3 | 1 |
Study is community partnered or engaged | 4 | 2 | 2 |
responses to interview question one (“What does it mean to you to say that you are doing ethical research?”)