Table 1.

Essential Initial Educational Content for Newly Diagnosed Families.

Key Content Area	Essential Educational Content
Diagnosis/treatment	Diagnosis
	Treatment plan, including clinical trials and informed consent (if applicable)
	Prognosis
	Potential complications (acute, long term), including fertility preservation options, if applicable
Coping strategies/managing life demands	Anticipatory guidance and normalization of emotional responses/managing emotions
	Anticipatory guidance regarding accessing psychosocial support services (eg, supportive counseling and peer-to-peer support)
	Accessing help with work-related and financial issues (eg, parent/caregiver work absences, insurance issues, and financial resources)
	Arranging care for other children/dependent family members
	Accessing help with transportation for medical care
Care of the child	Identification of medical emergencies (eg, temperature-taking, fever)
	Accessing emergent care (ie, who/how/why/when to call the health care team)
	Medication administration
	Treatment side effects (eg, nausea)
	Prevention of infection
	Central line care (if applicable)
	Diagnosis-specific topics (eg, postoperative/wound care, pain, safety, side effects of specific chemotherapy agents)