TABLE 1.

Demographics

Characteristic	Parents/Surrogates, 56	Patients, 18	At Home Siblings, 35	Total, 109
	n (%)	n (%)	n (%)	n (%)
Sex
Male	25 (45)	10 (56)	20 (57)	55 (50)
Female	31 (55)	8 (44)	15 (43)	54 (50)
Race/ethnicity
White	38 (68)	12 (67)	19 (54)	69 (63)
African-American	16 (29)	5 (28)	12 (34)	33 (30)
Hispanic	2 (3)	0	0	2 (2)
White/Hispanic mix	0	1 (5)	4 (11)	5 (5)
Age
Median age (y)	42	16	16	—
Age range (y)	29–64	11–18	9–22	—
Education
Level	56 (%)	—	—	—
≥ College degree	19 (34)	—	—	—
< College degree	27 (48)	—	—	—
Missing	10 (18)	—	—	—

—, no data.