Table 2.

Elements from the Diary of Treatment Experiences

Easily Answeredq

Difficult to Answer

Type of services child used (e.g. oncology clinic, family doctor, emergency room, imaging, lab draw, parking, lodging, meals, and child care) Number of times services used Amount of time spent at medical service visits Out of pocket costs associated with medical services, parking and lodging Number of venipunctures, finger sticks, port access, and central line accesses Type of activities child missed Amount of time child missed at activities Reason activities were missed by child or parent

Out of pocket costs associated with transportation, child care, and meals Type of activities parent missed Amount of time parent missed at activities Estimated loss of pay due to activities parent missed Insurance coverage for medical services and other services Other financial coverage for medical services and other services