Table 4.

Descriptive Statistics for Treatment Burden Per Week Documented in the Diary of Trial Experiences During EPT Course 1^*

Treatment Burden Per Week	Median	Mean	SD	Range
Number of Appointments	3.8	3.4	0.8	2.3 – 4.3
Time for Appointments (hours)	11.5	11.6	2.7	7.9 – 17.8
Activities Child Missed (hours)	9.9	15.6	13.2	2.3 – 37.5
Out of Pocket Cost ($)	10.6	15.6	16.5	0 – 50
Number of Needle Punctures	2.8	2.7	1	0.5 – 4.3

Note. Children were enrolled in EPTs with varying course lengths. Per week treatment burden was calculated for each participant as the total of entries in the Diary of Trial Experiences for course 1 of the EPT, divided by the number of weeks.

^*n = 10 parent and child dyads completing the post-disease evaluation assessment