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. Author manuscript; available in PMC: 2018 Oct 31.
Published in final edited form as: J Clin Transl Sci. 2018 Jul 6;2(1):31–37. doi: 10.1017/cts.2018.18

Table 4.

Demographic data were collected from respondents to uncompensated (RPPS-U, RPPS-S and RPPS-L) and compensated (RPPS-SC1, RPS-SC2 combined) surveys fielded to a national registry. Compensated respondents were younger (p<0.001) and more often Persons of Color (p=0.03) than were uncompensated respondents.

Sample RPPS-U RPPS-S RPPS-SC1,
RPPS-SC2 combined
RPPS-L National
Registry*
N 301 266 202 227 69,111
Female 237 (79%) 194 (73%) 150 (74%) 169 (74%) (71%)**
Male 63 (21%) 70 (26%) 51 (26%) 58 (26%) (29%)
Transgender 1 (0.3%) 2 (0.8%) 1 (1%) 0 (0%) Not reported
White 262 (87%) 230 (86%) 160 (79%)+ 199 (88%) (78.2%)***
Africa American 24 (8%) 24 (9%) 26 (13%) 11 (5%) (10.8%)
Asian 5 (1.7%) 6 (2%) 7 (4%) 4 (2%) (3.5%)
American Indian/Alaska 1 1 1 2
Native (0.3%) (0%) (1%) (1%) (0.6%)
Multi-racial 9 (3.0%) 5 (2%) 7 (4%) 11 (5%) (4.1%)
Native Hawaiian/Pacific Islander 0 (0%) 0 (0%) 1 (1%) 0 (0%) (0.2%)
Hispanic 6 (2%) 14 (5%) 11 (6%) 8 (4%) (7%)
Age
18–34 69 (22.9%) 68 (25.6%) 96 (47.5%)++ 62 (27.3%)
35–44 40 (13.3%) 40 (15.0%) 31 (15.3%) 36 (15.4%)
45–54 60 (19.9%) 55 (20.7%) 36 (17.8%) 37 (16.3%)
55–64 80 (26.6%) 53 (19.9%) 27 (13.4%) 68 (30%)
65 and over 52 (17.3%) 50 (18.8%) 12 (5.9%) 25 (11.0%)
Education
Some high school 1 (0.3%) 0 (0%) 2 (1%) 0 (0%)
High school diploma or GED 8 (2.7%) 11 (4.1%) 6 (3%) 11 (4.9%)
Some college or 2-year degree 63 (20.9%) 72 (27.1%) 55 (27.2%) 50 (22.%)
4-year college graduate 75 (24.9%) 68 (25.6%) 47 (23.3%) 70 (30.8%)
More than 4-year college degree 154 (51.2%) 115 (43.2%) 92 (45.5%) 96 (42.3%)
*

Registry privacy policies did not permit retention of the demographic data for individuals who did not consent to the survey. The contemporaneous demographics of the registry overall are shown in place of non-responder demographics. Registry enrollment grew from approximately 69,000 to 75,000 during the fielding of the survey.

**

Application of a Binomial test showed that the proportion of females in the surveys 750–996 is significantly higher than the proportion in the National Registry (71%), p-value =0.003

***

Application of the Binomial test has showed that the proportion of Whites in the uncompensated surveys (691/794) is significantly higher when compared to the National Registry (78.2%), p-value<0.001.

+

More Persons of Color responded to compensated surveys, than to uncompensated surveys (p=0.03).

++

More respondents came from the 18–35-year-old age group for compensated surveys than for uncompensated surveys (p<0.001).