Table 2.
Participant Characteristics (N=418)
| n (%) | Mean (SD) | |
|---|---|---|
| Role | ||
| Adult patient | 286 (68.4) | |
| Parent of pediatric patient | 132 (31.6) | |
| Age (years)a | 46.5 (14.3) | |
| Sex | ||
| Female | 315 (75.4) | |
| Male | 103 (24.6) | |
| Ethnicity | ||
| Non-Hispanic | 391 (93.5) | |
| Hispanic | 19 (4.5) | |
| Missing | 8 (1.9) | |
| Race | ||
| White | 345 (82.5) | |
| Non-White | 71 (17.0) | |
| Missing | 2 (0.5) | |
| Education | ||
| Less than high school | 28 (6.7) | |
| High school graduate | 52 (12.4) | |
| Some college | 88 (21.1) | |
| Associates degree or vocational program | 69 (16.5) | |
| 4-year college degree | 108 (25.8) | |
| Graduate degree | 71 (17.0) | |
| Missing | 2 (.5) | |
| Income | ||
| <$30,000 | 107 (25.6) | |
| $30,000–$59,999 | 83 (19.9) | |
| $60,000–$89,999 | 84 (20.1) | |
| $90,000–$104,999 | 17 (4.1) | |
| >$105,000 | 97 (23.2) | |
| Missing | 30 (7.2) | |
| Clinical group | ||
| Hereditary cancers | 100 (23.9) | |
| Cardiovascular disorders | 46 (11.0) | |
| Neurodevelopmental disorders | 112 (26.8) | |
| Congenital disorders | 32 (7.7) | |
| Other | 128 (30.6) | |
| General health literacy | 63.0 (6.7) | |
| Functional (9th grade and above) | 358 (85.6) | |
| Marginal (7th or 8th grade) | 44 (10.5) | |
| Low (6th grade and below) | 12 (2.9) | |
| Missing | 4 (1.0) | |
| Genetics-related health literacy | 7.1 (1.6) | |
| High (above 6th grade) | 384 (91.9) | |
| Low (6th grade and below) | 23 (5.5) | |
| Missing | 11 (2.6) | |
| Objective numeracy | 1.7 (1.0) | |
| Subjective numeracy | 4.6 (1.3) |
a
Ages for participating parents of pediatric patients were not collected early in the study; therefore, descriptive statistics for participant age are based on all adult patients and 27 of the 132 participating parents.