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HHS Author Manuscripts logoLink to HHS Author Manuscripts
. Author manuscript; available in PMC: 2023 Jul 12.
Published in final edited form as: Am J Manag Care. 2021 Sep 1;27(9):e322–e329. doi: 10.37765/ajmc.2021.88745

Using CAHPS® Patient Experience Data for Patient-Centered Medical Home Transformation

Denise D Quigley 1, Nabeel Qureshi 1, Luma AlMasarweh 1, Ron D Hays 1,2
PMCID: PMC10337703  NIHMSID: NIHMS1912704  PMID: 34533915

Abstract

Objectives.

Examine how primary-care practices use the Consumer Assessment of Healthcare Providers and Systems (CAHPS®) survey and patient-centered medical home (PCMH) items during their PCMH transition.

Study design.

Qualitative study of practices’ use of patient experience data during PCMH-transformation, based on a random sample of primary-care practices engaged in PCMH-transformation, stratified by region, practice size, PCMH-recognition history, and use of CAHPS-PCMH Survey.

Methods.

Interview 105 practice leaders from 294 sampled practices (36% response rate) and use content analysis to identify themes about uses of patient experience data for practice improvement during PCMH.

Results.

Patient experience data was used primarily to assess and track improvements toward PCMH goals and as quality improvement (QI) metrics. CAHPS measures were used most often to discuss best practices, share data with patient advisory councils and improve provider performance. The CAHPS-PCMH Survey helped practices improve patient-centeredness, particularly coordinating care, supporting patient self-management and communication. The CAHPS-PCMH items that assisted practices most were about patient self-management and provider referrals. Most practice leaders using the CAHPS-PCMH Survey felt its items were actionable for standardizing PCMH changes or making structural changes. Practices administering CAHPS surveys focused on a more diverse set of QI areas.

Conclusions.

CAHPS was considered actionable for PCMH transformation and used in standardizing and coordinating care. The CAHPS-PCMH items were considered integral to the continuous QI needed for moving beyond formal PCMH-recognition and maximizing transformation. This supports the National Committee for Quality Assurance’ s (NCQA) recommendation to administer the CAHPS or CAHPS-PCMH Survey for PCMH-transformation.

Keywords: Patient Satisfaction, Health Care Management, Patient centered medical home, primary care, patient experience, quality improvement

Précis:

The CAHPS-PCMH Survey assists practices by targeting improvement, standardizing care delivery, discussing best practices, improving provider-patient communication, coordinating care, and supporting patient’s self-management.

INTRODUCTION

The patient-centered medical home (PCMH) may help reduce the fragmentation and inefficiency of the U.S. health care system.14 The PCMH model focuses on team-based care to address patient needs and improve care experiences and outcomes while reducing costs.5

While several organizations provide PCMH-recognition,6,7 over 13,000 U.S. primary care practices (15%−18% of the total) are recognized as PCMHs under National Committee for Quality Assurance’s (NCQA) medical home standards.8,9 PCMH implementation requires changes to multiple aspects of primary-care practice.10 Full transformation may take years11 and requires resources from leaders and staff.12,13 Adopting the PCMH model entails a fundamental shift in orientation and culture.14

NCQA included performance and QI measurements as part of its 6th standard to drive more comprehensive measurement and use of patient experience data. Patient experience has been assessed using the Consumer Assessment of Healthcare Providers and Systems Clinician and Group (CG-CAHPS®) survey supplemented with PCMH items – that is, the CAHPS-PCMH Survey. This survey includes questions assessing specific aspects of PCMH delivery such as access to care and self-management support.

Research has assessed how healthcare providers and systems use patient experience survey data to improve patient care experiences1519 and make care more patient-centered. Studies have documented that organizations and health care leaders encounter challenges in driving change. Case studies have shown how large systems use CAHPS data primarily for quality improvement (QI) and have focused PCMH transformation on care delivery.1923 However, there has been little research examining how practice leaders use CAHPS and CAHPS-PCMH Survey data to improve patient experiences and support PCMH transformation. This paper examines the PCMH-transformation experiences of a nationwide sample of 105 primary-care practices. We investigate how practices administering different patient experience surveys used the resulting data for PCMH transformation and related QI efforts.

METHODS

Design and Sample

We created a stratified random sample of 294 practices that had applied for NCQA PCMH-recognition and 105 participated (36% response rate).12 Participating sites differed significantly from other eligible NCQA sites on use of CAHPS surveys, PCMH Level 3 history, number of physicians, and state, but nonresponse weights increased noise without reducing differences.

We obtained consent and collected information on practices in hour-long phone interviews from June 2017 to June 2018 with practice leaders knowledgeable about the practice’s PCMH history and patient experience data. We discussed the practice’s PCMH history, PCMH-transformation decisions and change efforts. We asked how they selected and used patient experience data. We recorded and transcribed the interviews and provided a $75 honorarium.

Analytic Approach

We entered transcripts into Dedoose,24 a web application for analyzing qualitative data. We established structural codes that mapped to the research questions.25 We developed a code structure and codebook using systematic, inductive procedures26 and content analysis to develop emerging themes.27,28 We coded early transcripts independently, noting topics related to the research questions.25,29

Our coding team used meetings to reach consensus on topics, identify discrepancies, refine concepts, and define and add codes.30 Coders resolved discrepancies through interrater reliability exercises and obtained a pooled kappa coefficient of 0.93, indicating “very good” coding agreement.31,32 We employed ongoing training among the coding team on emerging sub-codes using the Dedoose training module.

Study protocols were approved by RAND’s Human Subjects Protection Committee (IRB_Assurance_No: FWA00003425;IRB_Number: IRB00000051) and the Office of Management and Budget _No.0935–0236).

RESULTS

Practice Characteristics

The 105 practices were distributed throughout the United States and had a range of PCMH history (Table 1).

Table 1:

Practice Characteristics

Never Used CAHPS-PCMH Survey (N=41) Currently Use CAHPS-PCMH Survey (N=33) Previously Used of CAHPS-PCMH Survey (N=31) Overall (N=105)
Location % (N) % (N) % (N) % (N)
Initiative States (NY/VT) 12% (5) 33% (11) 26% (8) 23% (24)
Other Northeast 24% (10) 27% (9) 26% (8) 26% (27)
Midwest 22% (9) 12% (4) 13% (4) 16% (17)
South 22% (9) 24% (8) 26% (8) 24% (25)
West 20% (8) 3% (1) 10% (3) 11% (12)
PCMH History
Level 1 or 2 32% (13) 18% (6) 29% (9) 27% (28)
Level 3: < 3 years 22% (9) 33% (11) 23% (7) 26% (27)
Level 3: 3–5 years 24% (10) 18% (6) 16% (5) 20% (21)
Level 3: >5 years 22% (9) 30% (10) 32% (10) 28% (29)
Provider Types
Primary care only 73% (30) 82% (27) 84% (26) 79% (83)
Primary care and specialists 27% (11) 18% (6) 16% (5) 21% (22)
Practice size/ Number of physicians
Very Small (solo and 2-MD practices) 32% (13) 30% (10) 48% (15) 37% (38)
Small/ 3 to 9 physicians 44% (18) 42% (14) 36% (12) 43% (44)
Medium/ 10 – 24 physicians 20% (8) 21% (7) 9% (3) 17% (18)
Large/ More than 24 physicians 7% (3) 0% (0) 0% (0) 3% (3)
Patient Population
Adult only 22% (9) 21% (7) 19% (6) 21% (22)
Adult and children 78% (32) 79% (26 81% (25) 79% (83)
Hospital affiliation
Hospital affiliated 51% (21) 60% (20) 35% (11) 50% (52)
Not hospital affiliated 49% (20) 40% (13) 65% (20) 50% (53)
Group or network status
Part of group or network 80% (33) 82% (27) 84% (26) 82% (86)
Not part of group or network 20% (8) 18% (6) 16% (5) 18% (19)
Ownership
Privately-owned 32% (13) 30% (10) 26% (8) 30% (31)
Hospital-owned 22% (9) 24% (8) 14% (4) 20% (21)
FQHC 29% (12) 45% (15) 30% (9) 35% (36)
Other (incl. health system-affiliated, medical/academic health center, or HMO) 7 (17%) 0 (0%) 10 (30%) 15% (17)

NOTE: Bold = highest column percentage.

Patient Experience Survey Characteristics

Overall, 31% administered the CAHPS-PCMH survey, 29% administered a “homegrown” survey, 22% another standardized survey and 17% the core CG-CAHPS survey. Table 2 provides detail on practices’ patient experience surveys.

Table 2:

Characteristics of Patient Experience (PE) Surveys, Overall and By Survey

Never Used CAHPS-PCMH Survey (N=41) Currently Use CAHPS-PCMH Survey (N=33) Previously Used CAHPS-PCMH Survey (N=31) Overall (N=105)
PE Survey % (N) % (N) % (N) % (N)
 CAHPS+PCMH survey 0% (0)* 100% (33) * 0% (0)* 31% (33)
 CAHPS survey 24% (10) 0% (0)* 26% (8) 17% (18)
 Homegrown survey 46% (19) 0% (0)* 36% (11) 29% (30)
 Other PE survey 29% (12) 0% (0)* 36% (11) 22% (23)
 No PE survey at time of interview 0% (0)* 0% (0)* 0.3% (1) 0% (1)
Years Administering PE Survey Mean (N) Mean (N) Mean (N) Mean (N)
 Administering any PE survey 8.7 (41) 7.8 (33) 6.7 (31) 7.8 (105)
 Administering CAHPS-PCMH Survey 0 (0)* 5.8 (33) 2.0 (28) 4.1 (61)
Survey Vendor % (N) % (N) % (N) % (N)
 Press Ganey 32% (13) 30% (10) 26% (8) 30% (31)
 In house (or internal) 39% (16) 3% (1) 32% (10) 26% (27)
 Other vendor 27% (11) 67% (22) 39% (12) 43% (45)
 Missing or NA 2% (1) 0% (0) 2% (1) 2% (2)
Survey Mode of Administration
 Mail only 7% (3) 39% (13) 26% (8) 23% (24)
 Mail with phone follow up 2% (1) 0% (0) 2% (1) 2% (2)
 In office 24% (10) 3% (1) 32% (10) 20% (21)
 Other modes 61% (25) 58% (19) 35% (11) 52% (55)
 Missing or NA 5% (2) 0% (0) 2% (1) 3% (3)
Language of Survey
 English only 34% (14) 64% (21) 52% (16) 49% (51)
 English and Spanish 63% (26) 36% (12) 45% (14) 50% (52)
Survey Reference period
 12-month reference 7% (3) 48% (16) 23% (7) 25% (26)
 Visit-based 2% (1) 27% (9) 2% (1) 10% (11)
 Other reference 12% (5) 12% (4) 0% (0) 9% (9)
 Survey does not use a reference period 76% (31) 0 (0%)* 74% (23) 51% (54)
 Don’t know 2% (1) 12% (4) 0% (0) 5% (5)
Survey’s Narrative Response Option
 Included Any Narrative Response Option 80% (33) 48% (16) 81% (25) 70% (74)
Type of Narrative Response Option Used
 Comment text box only 59% (24) 42% (14) 61% (19) 54% (57)
 Final open-ended question(s) only 22% (9) 6% (2) 19% (6) 16% (17)
Total 41 33 31 105

NOTE:

*

indicates that the non-existence of a given survey was by definition.

Bold = highest column percentage.

Of the 30 practices administering a “homegrown” survey, 13 (43%) included CAHPS items, either “exactly plagiarizing CAHPS” (5 practices) or by adapting them (8 practices). Eight of all 105 practices (8%) reported administering the CAHPS-PCMH Survey and other surveys: three fielded a Medicaid survey; three fielded an additional homegrown survey (e.g., focused on visit type, or procedure) and two fielded an additional standardized survey (e.g., BluePrint survey).

Central Themes

Four main themes emerged on how practices used patient experience data for PCMH-transformation.

THEME 1: Practices used patient experience data most often to assess improvements related to PCMH goals; CAHPS measures were used to discuss best practices, share data with patient advisory councils and improve provider performance.

The most common uses of patient experience data across all practices were monitoring and assessing changes in patient experience related to the PCMH change process (90%). This aligns with the PCMH standard for Performance measurement and quality improvement.33 This was similar for practices currently, previously, or never administering the CAHPS-PCMH Survey. One leader described how they share their data:

We monitor trending reports on patient experience quarterly, comparing overall CAHPS scores and picking out particular items that we really want to focus on improving… those CAHPS scores are disseminated across the entire practice and discussed at monthly staff meetings… We also share them with our QI collaborative which has representatives from all our primary care clinics, specialty clinics, and from throughout the hospital…[That] is a nice opportunity for people that are not right in the thick of it to have a look at CAHPS data and make suggestions…We also share these data at the clinic level…we have an expectation that patient experience is always on the agenda.

–Current_1071

Another leader noted using CAHPS to start QI efforts:

We monitor the information on the CAHPSCAHPS-PCMH Survey including the comments. The first place I send the data is to the CEO…Then it goes to the monthly QA/QI committee where we compare it to previous surveys…CAHPS data help us get things set up by asking, “What do you identify from the trends and what do we need to work on?” Then we always pick several areas we desire to increase and start new QI efforts. We do this for at least three or four findings from the CAHPS-PCMH, as these data really jumpstart our QI process and QI changes touch every department.”

–Current_18415

Table 3 lists quotes on how practices use patient experience data to meet PCMH standards. Table 4 lists uses of patient experience data, including sharing performance trends with patient advisory councils (55%) and leadership (20%). These uses vary by CAHPS-PCMH Survey administration. Practices currently using the CAHPS-PCMH Survey were most likely to use them for monitoring and QI, but also to discuss best practices with staff or to improve provider performance. Practices that previously used the CAHPS-PCMH Survey were more likely than others to track performance.

Table 3:

Examples of using patient experience data to meet PCMH standards

PCMH Standard Exemplar Quote
Team-based care and practice organization
Yes, I would say the CAHPS-PCMH survey was helpful to reorganize the practice to be more patient oriented because patients wanted to see more educational, information stuff in our waiting area, things that were beneficial for them, and that we’ve added on our big screen in our waiting areas to provide more information that’s for the patient. The surveys did help us change certain methods of communicating and providing information to the patients.
–Previous_1036
Knowing and managing your patients
We decided we would figure out who our “high risk” patients are, because some patients never “no show” and some patients “no show” all the time. So, we made a list of the patients that we thought we really need to call personally before every appointment. Not a robocall, a personal call. And we started doing that, and it did help cut down our “no show” rate. Basically, we implemented this new policy of calling specific people given we know their habit. Then the second part, we planned to call all long appointments. So, any patient coming in for a physical the next day was going to get a personal phone call. Any patient coming in for an annual wellness visit the next day was going to get a personal phone call. We created extra work for ourselves managing the patients, but it did cut down on the amount of “no shows” because then they would say oh gosh, that’s right, I can’t make it. But at least we would know ahead of time so when we got three phone calls in the morning, we could fit those people in.
–Previous_4145
Patient-centered access and continuity
One thing that’s been useful with our patient experience survey, the CAHPS-PCMH survey, is in structuring our afterhours care. We had a shared coverage arrangement with a group of practices in our area and the survey helped us to realize that those specific afterhours providers weren’t providing the best of patient care, which we have since changed and been able to bring that coverage in-house, improving those patients experiences.
–Current_1110
Care management and support
We used the CAHPS-PCMH survey to work on our follow-up for labs and diagnostics. When we started Patient-Centered Medical Home, it was different, we had not tracked labs before. We had not called with normal results, and it was a big change, to track everything. Everybody gets a phone call or a letter. We’ve had improvement, but we’re still trying to drive that one forward.
–Previous_4226
Care coordination and care transitions
Well, the ones we feel that we have the most control over have to do with setting of appointments and then the management of things like labs and referrals, and how patients feel that they get that information in a timely way. So, I think we’ve looked a lot at patient experiences around notification of their test results and their referral consults, and do they have their appointments scheduled and all that. So those are two areas we changed by using CAHPS data. And we feel like we have control over most of those measures.
–Previous_1160
Performance measurement and quality improvement
Improving medication decisions was a focus for us last year for PCMH because that was one of the areas that we were particularly low in relation to our region and the national numbers and we were lower than we wanted to be. So, we paid particular attention to those items on the CAHPS-PCMH survey. In the past, we’ve also paid attention to the mental and behavioral health aspect of care, so we did make a change there with QI and using the CAHPS items. With PMCH we also worked on QI related to communication and involving the individuals in their own plan of care, so that is what measures we focused on in for QI and patient experience in the last couple of years.
–Current_1115
Table 4:

Uses of Patient Experience (PE) Data During PCMH, Overall and By Survey Used

Never Used CAHPS-PCMH Survey (N=41) Currently Use CAHPS-PCMH Survey (N=33) Previously Used CAHPS-PCMH Survey (N=31) Overall (N=105)
Uses of PE Survey Data % (N) % (N) % (N) % (N)
 Monitoring 93% (38) 91% (30) 90% (28) 91% (96)
 Share with Patient Advisory Committee 41% (17) 73% (24) 55% (17) 55% (58)
 Discuss best practices based on PE data 44% (18) 55% (18) 35% (11) 45% (47)
 Track/ trend performance using PE data 41% (17) 33% (11) 45% (14) 40% (42)
 Use PE data for PCMH-related QI 39% (16) 36% (12) 29% (9) 35% (37)
 Discuss areas for quality improvement (QI) 41% (17) 18% (6) 39% (12) 33% (35)
 Started QI targeting PE metric 29% (12) 18% (6) 26% (8) 25% (26)
 Improve provider performance on PE data 17% (7) 27% (9) 19% (6) 21% (22)
 Share PE data with leadership 24% (10) 21% (7) 13% (4) 20% (21)

NOTE: PCMH = Patient-centered medical home; CAHPS= Consumer Assessment of Healthcare Providers and Systems; PE= patient experience; QI= quality improvement. Italics indicates highest percentage across never used, currently using or previously used CAHPS-PCMH Survey. Bold=highest column percentage. Grey shading=top three most common column percentages.

THEME 2: Practices used patient experience data for QI

All practices reported using patient experience data for QI, PCMH changes and tracking their progress. Most often, practices—including 90% of those previously using the CAHPS-PCMH survey and 67% of those currently or never using it—used a general QI methodology to implement and track changes over time. Twenty percent also reported using a specific QI method such as Plan-Do-Study-Act (PDSA) cycles, root-cause analysis, Pareto analysis, or lean methodologies for implementing PCMH. One leader reported:

Every practice gets a monthly CAHPS report including responses to each question. Every site has a multidisciplinary site-level QI team that works on specific quality measures for NCQA, and CAHPS metrics are the measures they work on improving. So every month, they’d see the CAHPS data and talk about it, come up with an improvement plan, and roll the plan out in their practice and track future trend data…using a PDSA cycle approach.

–Previous_4139

Another leader noted using patient narrative comments to assess whether practice changes improved care:

We’ve been monitoring our newly implemented PCMH processes for wait times …..adjusting and tweaking processes as we need to as part of QI. We look at our patient experience data regularly, also looking at any comments to see if we’re still getting the same written comments from patients.

–Never_11421

All practices reported using their patient experience data extensively for QI during PCMH-transformation.

THEME 3: Practices had various reasons for choosing their patient experience survey.

Most practices (81%) reported that leadership rather than those in charge of implementing PCMH changes selected their patient experience survey. Twenty percent of practice leaders also reported that their practice chose their patient experience survey to meet the quality measurement PCMH standard. This was most common in practices that previously implemented the CAHPS-PCMH Survey and for practices that never had administered the CAHPS-PCMH Survey but administered their own homegrown surveys.

Practices that never implemented or previously implemented the CAHPS-PCMH Survey were more likely to report using the core CAHPS survey before PCMH implementation. Practices currently administering the CAHPS-PCMH Survey chose to pursue PCMH in tandem with CAHPS-PCMH Survey administration rather than independently.

Over 70% of practices chose to change their patient experience survey during their PCMH transformation. Practices that previously administered the CAHPS-PCMH Survey were the most likely to change which survey they used. Many practices that previously implemented the CAHPS-PCMH Survey were part of programs or initiatives that determined which survey they would use. Once those programs ended, or once those programs required practices to pay for survey administration costs, these practices chose to drop the CAHPS-PCMH Survey or switch to a new survey all together. One leader said:

We do our own surveys. We did do the CAHPS-PCMH when we were still within the [state program], but we graduated from that group…They were the ones to actually send those CAHPS surveys out. …[Now]we have our own patient surveys that we give to our patients, usually twice a year, with obviously different questions to see how we’re doing; some of those are similar to the CAHPS questions anyway.

–Previous_4170

Many practices that currently administer the CAHPS-PCMH Survey reported that they chose to also administer a second patient experience survey. The most common reason for administering a second survey was the desire to obtain more frequent data to use in implementing and monitoring PCMH changes. Some practices also added a survey to target specific aspects of patient experience, such as probing more closely on wait times or lab test turnaround. One leader discussed administering a supplemental patient survey:

CAHPS-PCMH is only done once a year. Our [supplemental survey] is done at every visit or procedure for all patients…It’s more comprehensive, more timely and provides data on a monthly basis.

–Current_4064

Practices that were responsible for paying survey administration costs noted a desire to change from CG-CAHPS or CAHPS-PCMH Survey due to the high cost of survey administration. Practices for which a state program or network paid survey administration costs did not report issues with the cost of administering CAHPS surveys. One respondent summarized the balance between costs and quality by noting:

We have done an internal patient satisfaction survey for 22 years. It’s fairly robust, but it wasn’t evidence-based or vetted through random-controlled studies, so we started HCAHPS in the hospital and had our care coordination department participating in that. We actually hired a company to administer the HCAHPS survey and we liked that very much. Unfortunately, it was costing us $20,000-$25,000 a year.

–Never_4273

THEME 4: Practices administering the CAHPS-PCMH Survey focused on a diverse set of patient experience improvement areas and reported that the CAHPS data was actionable.

Practices currently administering the CAHPS-PCMH Survey focused QI efforts on provider-patient communication (30%), shared decision making (30%), coordinating patient care (30%), and nurse-patient communication (29%) in addition to overall ratings of providers (27%) and the clinic (30%). Practices that previously used the CAHPS-PCMH Survey focused on two issues: nurse-patient communication (29%) and overall rating of providers (26%). Practices that never used the CAHPS-PCMH Survey focused on four aspects of care: provider-patient communication (29%), self-management support (24%), coordinating patient care (22%) and overall rating of the clinic (23%).

Among practices that had used CAHPS-PCMH items, 88% of current users and 39% of previous users thought these items were actionable. When asked how these items were actionable, 30% said they helped standardize and formalize PCMH change processes, 18% said they helped in structural/environmental decisions and another 15% said they were useful for monitoring specific areas of patient experience such as coordinating patient care and enhancing patient self-management support.

Forty-five percent of those currently using the CAHPS-PCMH Survey indicated the PCMH-specific items helped them achieve recognition in specific PCMH standards or goals. These practices pointed to two specific items: “patients caring for their own health” (45% of practices currently administering the CAHPS-PCMH Survey) and “gaining access to care from other providers” (e.g. via referrals) (30% of practices currently administering the CAHPS-PCMH Survey). One leader noted:

To confirm if there’s any barriers that would keep the patient from meeting the goals that we need them to meet [to be] able to manage themselves, we specifically used the CAHPS-PCMH items about taking care of own health and talking about medication with the patient…With the older population, who are on more medicines, it helps place priority on making sure they don’t have any barriers to taking medication… and making sure that they are on some type of regimen [for] exercise and diet.

–Current_4356

Forty-seven percent of practices discussed how the CAHPS-PCMH items added value to their PCMH transformation journey. For example, 41% of practices described how the CAHPS-PCMH items helped improve provider access by highlighting issues related to scheduling, clinic hours, and questions being answered. One leader said:

One of the biggest areas of opportunity [we] found from using CAHPS-PCMH was that a high percentage of our patients did not know how to receive care on the weekends or after hours…the clinic put together a QI plan to increase the awareness and really increase the percentage of patients that knew how to receive care after hours. We put together a PCMH brochure which was shared with all patients and was displayed in our exam rooms. As part of our Patient and Family Advisory Council, the patients decided to create a newsletter. So that served as a communication channel not just to patients on the council but to all patients here at the practice.

–Current_11279

Similarly, practices reported using CAHPS-PCMH items to identify a range of complex gaps in care and track progress in meeting patient needs for medication management and behavioral health integration. One provider noted:

The CAHPS-PMCH medication question was fairly easy to deal with, simply because it involved our medical assistants…They do medication reconciliations at every visit, but somehow that information wasn’t getting through to patients…we changed our scripting for how that works… there wasn’t some miraculous big change, but over time, there will be.

–Current_1115

Furthermore, 11% of providers relayed how they improved their process of providing patient test results and follow up. One provider said:

The CAHPS-PCMH access question about after hours and weekends was especially useful for our practice, and the medication question and the question under care coordination about patients receiving test results in a timely fashion. We talked about that test results data quite a bit and did scripting with staff…Scripting helped give the patient a reference as to when they might know something. And that prevents the patient from undue worry [and] the staff from getting multiple calls…When we use scripting, staff can say that X particular test is going to take three days, so that what we convey to the patient is specific and helpful.

–Previous_4127

DISCUSSION

Our study extends previous research1923 by specifically examining use of patient experience data for a nationwide sample of practices. We found that practices engaged in PCMH-transformation used patient experience data to standardize patient-centered care and to identify and assess improvements related to PCMH goals. The most common use of patient experience data across all practices was to monitor progress. Data was also shared widely within organizations from CEOs to advisory councils and used for discussions about best practices with staff, providers or other network practices. Han et al. 2013 also found that a third of PCMH practices engaged patients via advisory groups and patient experience survey feedback.34 Patient experience data was also commonly used to specifically improve provider-patient interactions (e.g., one-on-one counseling based on CAHPS performance).

Studies specific to health systems using CAHPS data found that practice leaders used CAHPS data to implement QI, develop a shared vision, and coach providers and staff on performance.19,23 We extend this evidence by identifying that practices administering the CAHPS-PCMH Survey used these data as guideposts for providing patient-centered care and focused on a broader range of patient experience related improvement projects than practices not using CAHPS data. The CAHPS-PCMH items helped practices standardize how care is delivered, share best practices, provide care that is coordinated with other providers and focus on supporting patient’s self-management needs. Data from CAHPS surveys were considered actionable by practice leaders, particularly for provider-patient and nurse-patient communication, shared decision making, coordinating patient care, and improving global ratings.

Limitations

While we studied a large, varied national set of practices, the sample is not nationally representative. We did not include practices that sought or gained PCMH-certification under different recognition programs. Also, this study is not a survey of practices’ activities using patient experience data, therefore it does not contain an exhaustive exploration of all uses of patient experience surveys from all stakeholders.

Conclusions

Practice leaders most often used their patient experience data to assess QI and PCMH related improvements. Those that administered CAHPS used the data to discuss best practices, share data with leaders and patient advisory councils, and improve provider-patient interactions. Practice leaders used both CAHPS and non-CAHPS patient experience data as part of QI activities, with practices administering the CAHPS-PCMH Survey focused on a more diverse set of patient experience improvement areas. Importantly, CAHPS PCMH patient experience data was reported as actionable in making improvements in patient-centeredness. Specifically, practice leaders indicated that CAHPS-PCMH Survey data helped them improve care coordination, self-management support, communication and standardizing and coordinating the provision of care. CAHPS data were integral to the continuous QI needed for moving beyond formal PCMH-recognition and maximizing primary care medical home transformation. This supports the recommendation of NCQA to administer CAHPS or CAHPS-PCMH items as part of PCMH-transformation.

Supplementary Material

Table e-Appendix

Summary Statement followed by Bullet Points:

Prior research has assessed how providers undergoing patient-centered medical home (PCMH) transformation use patient experience data to improve care experiences and make care more patient-centered, with little research examining the use of the CAHPS-PCMH Survey.

  • The CAHPS-PCMH Survey was used in standardizing and coordinating care.

  • Practices used patient experience data most often to assess improvements in patient experience related to PCMH goals; CAHPS measures were used to discuss best practices, share data with patient advisory councils, and improve provider performance.

  • Practices administering the CAHPS-PCMH Survey focused on a diverse set of patient experience improvement areas and found CAHPS data actionable.

Funding:

This work was supported by a cooperative agreement from the Agency for Healthcare and Research Quality (AHRQ) [Contract number: U18-HS016980 and U18-HS025920].

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Table e-Appendix

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