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American Journal of Alzheimer's Disease and Other Dementias logoLink to American Journal of Alzheimer's Disease and Other Dementias
. 2011 May;26(3):218–226. doi: 10.1177/1533317511399570

The Memory Club: Providing Support to Persons with Early-Stage Dementia and Their Care Partners

Joseph E Gaugler 1, Karen Gallagher-Winker 2, Kathy Kehrberg 3, Angela M Lunde 4, Connie M Marsolek 5, Kathryn Ringham 6, Gerise Thompson 7, Michelle Barclay 8
PMCID: PMC10845559  PMID: 21362755

Abstract

There is a growing emphasis on delivering services for persons with early-stage dementia (ie, ‘‘persons with memory loss,’’ or PWMLs) and their family members (care partners). The goal of this evaluation was to determine whether participation in the Memory Club, a 10- to 13-session joint support group, would result in decreased distress, enhanced preparation for care, and improved feelings of confidence managing the challenges of early-stage dementia. The single group, pre-/post-test evaluation included 63 PWMLs and 61 care partners who participated in three Memory Club sites in Minnesota. Paired T-test results found that care partners reported significant (P < .05) increases in preparation activities, feelings of preparation, and confidence in managing memory loss. The results suggest that the Memory Club can fill an important gap in early-stage dementia care by offering care partners the opportunity to plan, prepare, and increase coping skills in the face of early dementia progression.

Keywords: Alzheimer’s disease, caregiving, early stage, cognitive impairment, caregiver intervention, support group

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Contributor Information

Joseph E. Gaugler, Center on Aging, School of Nursing, University of Minnesota, Minneapolis, MN, USA, gaug0015@umn.edu .

Karen Gallagher-Winker, Center for Senior Services, Park-Nicollet Clinic, St. Louis Park, MN, USA.

Kathy Kehrberg, Memory Loss Program, Amherst H. Wilder Foundation, St. Paul, MN, USA.

Angela M. Lunde, Alzheimer's Disease Research Center, The Mayo Clinic, Rochester, MN, USA.

Connie M. Marsolek, Center for Senior Services, Park-Nicollet Clinic, St. Louis Park, MN, USA.

Kathryn Ringham, Memory Loss Program, Amherst H. Wilder Foundation, St. Paul, MN, USA.

Gerise Thompson, Alzheimer's Association Minnesota/North Dakota, Rochester, MN, USA.

Michelle Barclay, Alzheimer's Association Minnesota/North Dakota, Minneapolis, MN, USA.

References

  1. Arends D. The nurse’s role in screening and early detection of Alzheimer’s disease. Advanced Stud Nursing. 2005;3(6):206-218. [Google Scholar]
  2. Chang CY, Silverman DH Accuracy of early diagnosis and its impact on the management and course of Alzheimer’s disease. Expert Rev Mol Diagn. 2004;4(1):63-69. [DOI] [PubMed] [Google Scholar]
  3. Espino DV, Andel R. Toward optimal health: the experts discuss memory loss in aging women . J Womens Health. 2004; 13(8): 856-862. [DOI] [PubMed] [Google Scholar]
  4. Leifer BP Early diagnosis of Alzheimer’s disease: clinical and economic benefits . J Am Geriatr Soc. 2003;51(5 suppl dementia):S281-S288. [DOI] [PubMed] [Google Scholar]
  5. Marin DB, Sewell MC, Schlechter A. Alzheimer’s disease. Accurate and early diagnosis in the primary care setting. Geriatrics. 2002;57(2):36, 40,; quiz 43. [PubMed] [Google Scholar]
  6. Mulligan R., Juillerat AC, Van der Linden M. Dementia screening and surveillance: are there opportunities for early detection ? Dis Manage Health Outcomes. 1998. ;3(4):173-181. [Google Scholar]
  7. Santacruz KS , Swagerty D. Early diagnosis of dementia. Am Fam Physician. 2001;63(4):703-713. [PubMed] [Google Scholar]
  8. Small G. Early diagnosis of Alzheimer’s disease. New Dir Ment Health Serv. 1997;(76):39-51. [DOI] [PubMed] [Google Scholar]
  9. Wilkinson H. Empowerment and decision-making for people with dementia: the use of legal interventions in Scotland. Aging Ment Health. 2001;5(4):322-328. [DOI] [PubMed] [Google Scholar]
  10. Relkin N. Screening and early diagnosis of dementia. Am J Manag Care . 2000;6(22):S1111-S1124. [PubMed] [Google Scholar]
  11. Ashford JW, Borson S., O’Hara R., et al. Should older adults be screened for dementia? Alzheimers Dement. 2006;2(2):76-85. [DOI] [PubMed] [Google Scholar]
  12. Mueller SG, Weiner MW, Thal LJ, et al. Ways toward an early diagnosis in Alzheimer’s Disease: the Alzheimer’s Disease Neuroimaging Initiative (ADNI). Alzheimers Dement. 2005; 1(1):55-66. [DOI] [PMC free article] [PubMed] [Google Scholar]
  13. Weimer DL, Sager MA Early identification and treatment of Alzheimer’s disease: social and fiscal outcomes. Alzheimers Dement. 200. 9;5(3):215-226. [DOI] [PMC free article] [PubMed] [Google Scholar]
  14. LaBarge E., Trtanj F. A support group for people in the early stages of dementia of the Alzheimer type. J Appl Gerontol. 1995;14(3):289-301. [Google Scholar]
  15. Yale R. Support groups and other services for individuals with early-stage Alzheimer’s disease. Generations. 1999. ;23(1):57-61. [Google Scholar]
  16. Marshall A. Coping in early dementia: findings of a new type of support group. In: Jones GMM, Miesen BML, eds. Care-Giving in Dementia: Research and Applications . New York, NY: Brunner-Routledge; 2004:235-255. [Google Scholar]
  17. Miesen B. Toward a psychology of dementia care: Awareness and intangible loss . In: Jones GMM, Miesen BML, eds. Care-Giving in Dementia: Research and Applications . New York, NY: Brunner-Routledge; 2004:179-209. [Google Scholar]
  18. McAfee MA, Ruh PA, Bell P., Martichuski D. Including persons with early-stage Alzheimer’s disease in support groups and strategy planning. Am J Alzheimers Dis Other Demen. 1989;4(18):22. [Google Scholar]
  19. Snyder L., Jenkins C., Joosten L. Effectiveness of support groups for people with mild to moderate Alzheimer’s disease: An evaluative survey. Am J Alzheimers Dis Other Demen . 2007;22(1): 14-19. [DOI] [PMC free article] [PubMed] [Google Scholar]
  20. Snyder L., Quayhagen MP, Shepherd S., Bower D. Supportive seminar groups: an intervention for early stage dementia patients . Gerontologist. 1995;35(5):691-695. [DOI] [PubMed] [Google Scholar]
  21. Goldsilver PM , Gruneir MR Early stage dementia group: An innovative model of support for individuals in the early stages of dementia . Am J Alzheimers Dis Other Demen. 2001;16(2):109-114. [DOI] [PMC free article] [PubMed] [Google Scholar]
  22. Logsdon RG, Pike KC, McCurry SM, et al. Early-stage memory loss support groups: Outcomes from a randomized controlled clinical trial. J Gerontol B Psychol Sci Soc Sci. 2010;65(6): 691-697. [DOI] [PMC free article] [PubMed] [Google Scholar]
  23. Logsdon RG, McCurry SM, Teri L. Evidence-based psychological treatments for disruptive behaviors in individuals with dementia. Psychol Aging. 2007;22(1):28-36. [DOI] [PubMed] [Google Scholar]
  24. Zarit SH, Femia EE, Watson J., Rice-Oeschger L., Kakos B. Memory club: a group intervention for people with early-stage dementia and their care partners. Gerontologist. 2004. ;44(2): 262-269. [DOI] [PubMed] [Google Scholar]
  25. Folstein MF , Folstein SE, McHugh PR Mini-mental state: a practical method for grading the cognitive state of patients for the clinician . J Psychiatr Res. 1975;12(3):189-198. [DOI] [PubMed] [Google Scholar]
  26. Lawton MP, Brody EM Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist. 1969;9(3):179-186. [PubMed] [Google Scholar]
  27. Zarit SH, Stephens MAP, Townsend A., Greene R. Stress reduction for family caregivers: effects of adult day care use. J Gerontol B Psychol Sci Soc Sci. 1998. ;53(5):S267-S278. [DOI] [PubMed] [Google Scholar]
  28. Grann JD Assessment of emotions in older adults: mood disorders, anxiety, psychological well-being, and hope. In: Kane RL, Kane RA, eds. Assessing Older Persons: Measures, Meanings, and Practical Applications. New York: : Oxford University Press; 2000. :129-169. [Google Scholar]
  29. Sheikh J., Yesavage J. Geriatric depression scale: recent evidence and development of a shorter version . Clin Gerontologist. 1986;5(1):165-173. [Google Scholar]
  30. Lyness JM, Noel TK, Cox C., King DA, Conwell Y., Caine ED Screening for depression in elderly primary care patients. A comparison of the center for epidemiologic studies-depression scale and the geriatric depression scale. Arch Intern Med. 1997;157(4):449-454. [PubMed] [Google Scholar]
  31. Sörensen S., Webster JD, Roggman LA Adult attachment and preparing to provide care for older relatives. Attach Hum Dev. 2002;4(1):84-106. [DOI] [PubMed] [Google Scholar]
  32. Sörensen S., Zarit SH Preparation for caregiving: a study of multigenerational families. Int J Aging Hum Dev. 1996;42(1):43-63. [DOI] [PubMed] [Google Scholar]
  33. Zarit SH, Femia EE Evaluation of Memory Club. University Park, PA: : The Pennsylvania State University; 2003. [Google Scholar]
  34. Langley L. Cognitive assessment of older adults. In: Kane RL, Kane RA, eds. Assessing Older Persons: Measures, Meanings, and Practical Applications. New York: Oxford University Press; 2000:65-128. [Google Scholar]

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