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. 2024 Feb 14;48(1):38–47. doi: 10.1093/swr/svae002

Caregiving and Obesity among Black American Adults

Katrina R Ellis 1,, Dolapo Raji 2, Jacquelyn S Pennings 3, Roland J Thorpe Jr 4, Marino A Bruce 5
PMCID: PMC10915901  PMID: 38455109

Abstract

Black American adults often report higher rates of obesity and caregiving compared with other racial or ethnic groups. Consequently, many Black American caregivers and care recipients are obese or have obesity-related chronic conditions (e.g., diabetes, hypertension). This study investigated associations between caregiving and obesity among Black Americans, including the role of health behaviors and chronic conditions. The sample included data from 2015 and 2017 Behavioral Risk Factor Surveillance System for non-Hispanic Black (NHB) or African American adult caregivers (n = 2,562) and noncaregivers (n = 7,027). The association between obesity (dependent variable) and caregiving status, fruit consumption, vegetable consumption, physical activity, and number of chronic conditions (independent variables) were evaluated using hierarchical binomial logistic regressions. Caregiving, being female, and chronic conditions were associated with higher odds of obesity, while physical activity was associated with lower odds of obesity. Physical activity, diet, and chronic conditions did not account for differences in obesity among caregiving and noncaregiving Black Americans. Increasing understanding of health behaviors and chronic disease burden of NHB caregivers has implications for programs aiming to improve obesity-related outcomes for caregivers and recipients. Future research should investigate multilevel factors that contribute to observed differences.

Keywords: Black Americans, caregiving, chronic conditions, health behavior, obesity


Family caregivers are essential components of the health, social, and aging services infrastructure in the United States (Neugaard et al., 2008; Reeves et al., 2012; Schulz & Czaja, 2018). There are over 40 million family caregivers in the United States, representing family members, relatives, or friends who provide support and assistance, often unpaid, to children and adults with health problems or disabilities (Edwards et al., 2017; Neugaard et al., 2008; Singer et al., 2010). The aging of the U.S. population (Eifert et al., 2016), rise in chronic disease and multimorbidity, and standardization of chronic and complex disease management in home settings have heightened the need for family caregiver support. This support includes healthcare management, assistance with personal tasks (e.g., food preparation, transportation, finances), administering prescriptions, symptoms management, and emotional support (Schulz & Czaja, 2018). Consequently, individuals who are aging, managing health conditions, or living with a disability may decrease healthcare utilization (Friedman et al., 2019) and remain living at home for a longer period of time with the support of caregivers.

Seminal work by Pearlin et al. (1990) and Schulz and Beach (1999) underscore that caregivers are at increased vulnerability for poor health outcomes (Pearlin et al., 1990; Schulz & Beach, 1999). Caregiving tasks and responsibilities may be a barrier to caregivers’ own self-care and health-promoting behaviors (Gross et al., 2003; Y. Liu et al., 2020; McGuire et al., 2010), but research findings in this area are mixed. Some studies have reported that caregivers are more likely than noncaregivers to engage in behaviors that can negatively influence health, including smoking, diets with regular consumption of soda and fast food (Hoffman et al., 2012), and poorer-quality sleep (Moon & Dilworth-Anderson, 2015). Other studies, however, have reported better health habits such as increased physical activity (McGuire et al., 2010) and cancer screenings (Son et al., 2011) correlating with caregiving status, or similar levels of physical activity between caregivers and noncaregivers (Castro et al., 2007).

Obesity—or excess adiposity (i.e., body fat)—is measured with various methods, including body mass index (BMI), waist circumference, waist-to-hip ratio, skinfold thickness, magnetic resonance imaging (or MRI), and computerized tomography (or CT; Williams et al., 2015). Several of the aforementioned studies have discussed implications of obesity given associated health behaviors but did not report any observed independent effects of obesity on behaviors (Gross et al., 2003; Hoffman et al., 2012; Moon & Dilworth-Anderson, 2015; Son et al., 2011). Of note, Y. Liu and colleagues (2020) reported a higher prevalence of obesity among caregivers, while other studies reported no association between weight and caregiving status (Castro et al., 2007; McGuire et al., 2010).

Obesity has been directly and indirectly associated with increased risk of comorbidity, reduced quality of life, and premature mortality (Jastreboff et al., 2019; Williams et al., 2015). Indeed, while it is widely known that caregivers often support individuals diagnosed with obesity-related conditions such as diabetes, heart disease, and stroke (National Alliance for Caregiving & AARP, 2020), limited research has examined contributors to obesity among caregivers themselves. Analysis of data from women in the 2009 Behavioral Risk Factor Surveillance System (BRFSS) linked caregiving with greater odds of obesity among White women but not among non-White women (Reeves et al., 2012). In a longitudinal study of caregiving and adiposity in the United Kingdom (Lacey et al., 2018), gender and employment-related differences were observed: Women who were caregivers had higher adiposity compared with women who were not caregivers, but this difference was not observed in men (adiposity was assessed via BMI, waist circumference, and percentage body fat calculated using bioelectrical impedance). However, higher adiposity was observed among male caregivers also working part-time and female caregivers working full-time compared with noncaregiving counterparts with similar levels of employment (Lacey et al., 2018). In contrast, in a longitudinal study of middle age and older adults in Germany, Hajek and König (2017) found that the onset of informal caregiving was associated with increasing BMI in men, but not women. Findings from these studies highlight a number of sociodemographic factors that may be associated with obesity among caregivers (e.g., gender, age) that warrant further investigation.

Several national studies have reported that Black Americans have higher rates of family caregiving (National Academies of Sciences, Engineering, and Medicine [NASEM], 2016; National Alliance for Caregiving & AARP, 2020; Rote et al., 2019; Rote & Moon, 2018) and obesity (Ogden et al., 2020) compared with other racial or ethnic groups. However, research at the intersection of these two issues is sparse. Strong cultural justifications for caregiving (Dilworth-Anderson et al., 2005) and increased need for support among Black Americans due to high rates of serious and chronic illnesses compared with other racial and ethnic groups (Centers for Medicare and Medicaid Services, 2012; National Center for Health Statistics, 2016) may help explain the higher prevalence of caregiving among Black Americans. Pathways leading to increased obesity among African American adults are complex (Huang et al., 2009); factors operating at different ecological levels (i.e., individual, familial, and community levels) often make weight management and engagement in health-promoting, weight-related behaviors a challenge among this population (Jackson et al., 2010). Thus, while both family caregiving and obesity are common among Black Americans, the relationship between the two remains unclear.

The purpose of this study was to examine whether caregiving status is associated with obesity among Black Americans. There were two research questions guiding this study. First, is there a difference in obesity prevalence between Black American caregivers and noncaregivers? We hypothesized that caregivers would be more likely to be obese compared with noncaregivers. Second, do health behaviors or chronic health conditions help to explain observed relationships (if any) between caregiver status and weight status? We hypothesized that lower levels of physical activity, less consumption of fruits and vegetables, and a higher number of chronic health conditions would account for variation in obesity among caregiving and noncaregiving Black Americans.

Method

Study Design and Data Source

Data for this study were drawn from the BRFSS, an ongoing system of landline and cellular telephone surveys that collect state-level data from noninstitutionalized U.S. residents, age 18 and older, regarding health-related behaviors, conditions, and preventive service utilization (Centers for Disease Control and Prevention [CDC], 2023). Data are collected from adults in all 50 states, the District of Columbia, and three U.S. territories. Components of the BRFSS include a standardized core questionnaire, optional modules chosen for use by states, and state-added questions. In 2005, the BRFSS began pilot-testing an optional caregiver module to collect public health data on informal or unpaid caregiving (CDC, 2022). A 10-item optional caregiver module was included in the BRFSS from 2009 to 2012. After further revisions and testing, a nine-item caregiver module was launched in 2015. Institutional review board approval was not required because BRFSS data are deidentified and publicly available.

Sample

Data from 2015 and 2017 were combined to obtain a sufficient sample of non-Hispanic Black or African American adults. After excluding respondents who were pregnant at the time of survey (n = 1,858), the final analytic sample included 9,589 respondents. Of those respondents, there were 2,562 caregivers and 7,027 noncaregivers.

Measures

Caregiver Status

Caregiver status, the main independent variable, was determined by responses to the question: “During the past 30 days, did you provide regular care or assistance to a friend or family member who has a health problem or disability?” Caregivers were defined as participants who responded “yes” to this question; non-caregivers were defined as those who responded “no.”

Obesity

Obesity, the dependent variable, was based on a BRFSS-calculated variable of BMI. Self-reported height and weight were used to calculate BMI, by dividing a person’s weight in kilograms by the square of their height in meters (kg/m2). Obesity was categorized as a BMI of 30.0 or higher, and nonobesity was categorized as a BMI below 30.0.

Physical Activity

Physical activity was based on a BRFSS-calculated summary variable capturing minutes of total physical activity per week. This continuous variable was calculated based on respondent reports of (1) the two most common nonwork-related physical activities they engaged in, (2) how often they took part in these activities (reported as times per week or times per month), and (3) how long they took part in the activity (reported in hours and minutes). Higher scores indicated more minutes of physical activity.

Diet

Fruit and vegetable consumption were based on BRFSS-calculated summary variables reporting times per day these foods were consumed. Fruit consumption data were based on respondent reports of how often they consumed 100% pure fruit juice or fruit. Data on vegetable consumption were from respondent reports of how often they ate vegetables or beans. Consumption per day was included as a continuous variable. Higher scores indicated greater daily consumption of fruits and vegetables.

Chronic Conditions

The number of chronic conditions was calculated based on respondent affirmative reports of ever being told (yes/no) whether they had any of the following conditions: high blood cholesterol, a depressive disorder, asthma, high blood pressure, chronic obstructive pulmonary disease, kidney disease, cancer, angina or coronary heart disease, heart attack/myocardial infarction, stroke, diabetes, or arthritis. Higher scores indicated a greater number of chronic conditions.

Covariates

Continuous covariates included age and number of persons in respondent’s household. Income was measured (in dollars) categorically with four groups: missing/not available, 0–34,999, 35,000–74,999, and ≥75,000. Covariates measured dichotomously include sex (male versus female), educational attainment (high school diploma or less versus some college or more education), marital status (married or in a relationship versus other), employment status (employed, homemaker, or student versus out of/unable to find work), and health insurance (no insurance versus insured).

Data Analysis

Mean and proportional differences between caregiving and noncaregiving groups for demographics and health-related variables were assessed using a one-way analysis of variance and chi-square tests with weighted data. The associations between obesity (dependent variable) and caregiving status, fruit consumption, vegetable consumption, physical activity, and chronic conditions (independent variables) were evaluated using hierarchical binary logistic regressions. Model 1 included caregiver status (only). Next, Model 2 included caregiver status along with demographic variables and count of respondent chronic conditions. Model 3 included variables from the previous models along with fruit and vegetable consumption. Last, Model 4 included variables from the previous models and physical activity.

In line with BRFSS guidelines, regression analyses included complex sampling weights provided with the BRFSS datasets, which were applied after constructing the aggregate sample and creating a new, consistently named weight variable (CDC, 2016, 2018). Weighted data are used to reduce potential bias resulting from nonresponse or noncoverage of certain segments of the population (CDC, 2016, 2018); p values less than .05 were considered statistically significant. All statistical procedures were performed using IBM SPSS Statistics software (Version 25).

Results

Sample characteristics for the overall study population, and caregiving and non-caregiving sub-samples, are presented in Table 1. The total sample size of non-Hispanic Black American adults completing the 2015 or 2017 BRFSS survey included in the weighted data analysis is 9,782,372 participants. The average age of the study population was 44.7 years old (SE = 0.3). About 51% were women, 37% married or in a relationship, 58% had some college degree or more, and 86% had health insurance. With regard to health-related factors, 38% were classified as obese. On average, respondents reported consuming less than two servings per day of fruit and vegetables and engaging in approximately 37 minutes of exercise per week.

Table 1:

Select Characteristics of Non-Hispanic Black American Adult Caregivers and Noncaregivers

Total (N = 9,782,372)
Caregivers (n = 2,606,956)
Noncaregivers (n = 7,175,416)
Characteristic M (SE) % (SE) M (SE) % (SE) M (SE) % (SE) p
Age (years) 44.7 (0.3) 44.2 (0.7) 44.8 (0.4) .457
Female 50.7 (1.0) 57.4 (2.1) 48.3 (1.2) <.001
Married or in a relationship 37.1 (1.0) 37.2 (1.9) 37.1 (1.1) .961
Education .314
 High school graduate or less 42.3 (1.0) 40.5 (2.0) 42.9 (1.2)
 Some college or more 57.7 (1.0) 59.5 (2.0) 57.1 (1.2)
Employed/self-employed 68.4 (0.9) 68.5 (1.7) 68.4 (1.0) .932
Insured 86.0 (0.9) 85.1 (1.8) 86.3 (1.0) .535
Income level ($) .047
 0–34,999 39.8 (1.0) 40.9 (1.9) 39.4 (1.2)
 35,000–74,999 25.7 (0.9) 25.1 (1.8) 25.9 (1.1)
  75,000 22.9 (0.9) 19.8 (1.6) 24.0 (1.0)
 Missing data 11.6 (0.7) 14.2 (1.7) 10.6 (0.7)
Number in household 3.0 (0.0) 3.1 (0.1) 3.0 (0.1) .094
Count of chronic conditions 1.7 (0.0) 1.7 (0.0) 1.6 (0.0) .093
Obesity 37.7 (1.0) 41.7 (2.0) 36.2 (1.1) .008
Fruit consumption 1.6 (0.0) 1.7 (0.1) 1.5 (0.0) .053
Vegetable consumption 1.8 (0.0) 1.9 (0.1) 1.8 (0.0) .159
Physical activity 37.3 (0.9) 40.2 (1.9) 36.3 (1.1) .072

Note: Behavioral Risk Factor Surveillance System (BRFSS) 2015 and 2017 weighted data were used. In line with Centers for Disease Control and Prevention guidelines for BRFSS data analysis, weighted data are analyzed, such that the number of cases analyzed with weighted data mirror population estimates. Thus, the total weighted sample size (N = 9,782,372) noted here is greater than the survey sample size (N = 9,589).

Similarities and differences were observed when comparing the characteristics of caregiving and noncaregiving adults. Caregivers were more likely to be obese than noncaregivers (42% versus 36%; p < .008). A larger proportion of caregivers were female (p < .001) and a smaller proportion of caregivers had income of $75,000 and above compared with noncaregivers (p = .047). No other significant differences were observed between caregivers and noncaregivers.

The models examining the association between caregiving status, health behaviors, and obesity are presented in Table 2. In Model 1, the odds of being obese were higher among caregivers compared with noncaregivers (odds ratio [OR] = 1.26; 95% confidence interval [CI] [1.04, 1.52]). After adjusting for covariates and adding number of chronic conditions in Model 2, caregivers continued to have higher odds of being obese than non-caregivers (OR = 1.22; 95% CI [1.01, 1.48]). In Model 3, fruit consumption and vegetable consumption were added to the models. Neither of these factors were associated with obesity. Caregiver status remained associated with higher odds of obesity (OR = 1.23; 95% CI [1.01, 1.48]).

Table 2:

Associations between Caregiver Status, Demographics, Health Factors, and Obesity among Non-Hispanic Black American Adults

Model 1
Model 2
Model 3
Model 4
Characteristic OR [95% CI] OR [95% CI] OR [95% CI] OR [95% CI]
Caregiver 1.26 [1.04, 1.52] 1.22 [1.01, 1.48] 1.23 [1.01, 1.48] 1.23 [1.02, 1.49]
Age 1.00 [1.00, 1.01] 1.00 [1.00, 1.01] 1.00 [1.00, 1.01]
Female 1.34 [1.13, 1.60] 1.35 [1.13, 1.60] 1.34 [1.12, 1.59]
Married/in a relationship 1.06 [0.88, 1.29] 1.07 [0.88, 1.29] 1.07 [0.88, 1.30]
High school diploma or less education 1.03 [0.85, 1.23] 1.02 [0.85, 1.23] 1.03 [0.86, 1.24]
Employed 0.97 [0.78, 1.20] 0.97 [0.78, 1.20] 0.96 [0.78, 1.19]
Insured 0.93 [0.70, 1.25] 0.93 [0.69, 1.25] 0.93 [0.69, 1.25]
Income ($)a          
 35,000–74,999 1.27 [0.91, 1.78] 1.08 [0.86, 1.36] 1.07 [0.86, 1.25]
 ≥75,000 1.48 [1.08, 2.04] 0.93 [0.72, 1.20] 0.92 [0.71, 1.19]
 Missing 1.37 [1.03, 1.83] 0.73 [0.54, 0.97] 0.72 [0.54, 0.97]
Number of people in household 1.04 [0.97, 1.10] 1.04 [0.97, 1.10] 1.04 [0.97, 1.10]
Number of chronic conditions 1.17 [1.10, 1.25] 1.17 [1.10, 1.25] 1.17 [1.10, 1.25]
Fruit consumption 0.98 [0.92, 1.05] 0.99 [0.92, 1.06]
Vegetable consumption 0.99 [0.94, 1.05] 1.00 [0.94, 1.06]
Physical activity 0.98 [0.97, 1.00]

Notes: Behavioral Risk Factor Surveillance System 2015 and 2017 weighted data were used. OR = odds ratio; CI = confidence interval.

a

The reference category is $0–34,999.

In the fourth and final model, physical activity was added to existing variables. Caregiver status remained associated with obesity in the fully adjusted model (OR = 1.23; 95% CI [1.02, 1.49]). Every one-minute increase in physical activity was associated with a corresponding 1.7% decrease in the odds of being obese (OR = 0.98; 95% CI [0.97, 1.00]). Moreover, each additional chronic health condition was associated with a corresponding 17.4% increase in the odds of being obese (OR = 1.17; 95% CI [1.10, 1.25]). Interactions between caregiver status and health behaviors as well as caregiver status and chronic conditions were tested, but were not significant (p > .05; data not in tables).

Discussion

This study aimed to determine whether family caregiving was associated with obesity among Black American adults. Results indicate that caregivers were more likely to be obese than noncaregivers. In addition, higher odds of obesity among caregivers remained after accounting for diet, physical activity, number of chronic health conditions, and sociodemographic factors.

The association between caregiving and obesity among Black Americans is consistent with findings from studies with other subpopulations in the United States and in international research, though important differences should be noted. An earlier analysis of BRFSS data examined the associations between caregiving and cancer risk behaviors among women, with racial stratification modeled as White respondents versus non-White respondents (Reeves et al., 2012). This study found the association between caregiving and obesity to be significant for White women only; the association between caregiving and obesity among non-White women in the sample was not significant. In contrast, the present study found that after controlling for gender, caregiving was associated with obesity among Black Americans. It is possible that analyzing data from Black Americans exclusively helped to uncover associations that were previously masked with the use of a heterogeneous non-White racial subgroup.

Findings from the present study suggest that physical activity, dietary habits, and the number of chronic health conditions do not completely attenuate the difference in odds of obesity between caregiving and noncaregiving Black Americans. As such, alternative explanations should be explored in future research. For example, it is possible that caregivers and care recipients have increased exposure to risk factors that contribute to obesity and the need for caregiving (e.g., care recipients’ health problems) and decreased exposure to protective factors that would reduce their likelihood of negative health outcomes. Future studies accounting for variations in exposure to obesity-related risk and protective factors among Black Americans would add an important context to these findings. In addition, data were not available to account for obesity prior to the onset of caregiving in the analysis. If obesity that predates the onset of caregiving helps to explain the noted association, identifying factors associated with both the likelihood of future caregiving and obesity risk could be important avenues for intervention.

The connections between mental health and physical health also cannot be ignored. Broader research points to a bidirectional relationship between obesity and mental health, with several physiological pathways identified as potential mediators of the noted associations (Avila et al., 2015). Studies often report poorer mental health among caregivers compared with noncaregivers (Anderson et al., 2013), including more days with poorer mental health within the past month (Trivedi et al., 2013). While several studies have reported better mental health among Black American caregivers compared with caregivers of other racial groups (C. Liu et al., 2021), this is not an indicator that the mental health of Black American caregivers should not be a priority (Cothran et al., 2022). Thus, social work research and interventions that prioritize integrated approaches to addressing physical and mental health among caregivers could help to meet important needs and disrupt suspected pathways between mental health and obesity (Robinson et al., 2022; Stanhope et al., 2015).

Indeed, it may be useful for future studies to investigate physiological responses to the stress of caregiving to help explain the association between caregiving and obesity (Capistrant, 2016; Scott et al., 2012). Caregiving is an arduous task; the stress and strain that often accompany caregiving is a risk factor for poor health outcomes (Bauer & Sousa-Poza, 2015; Hoffman et al., 2012; Kotronoulas et al., 2012; Schulz & Beach, 1999). In the caregiver stress process model, caregiving-related stress may result from the challenges of fulfilling multiple roles when taking on caregiving and family responsibilities and other daily activities (Pearlin et al., 1990; Revenson et al., 2016). Examining the association between psychological distress and cytokine levels among caregivers, Sherwood et al. (2016) suggested that caregivers with high BMI were less likely to attain the state of physical adaptation to stress in response to a more demanding and conflicting schedule of caregiving. Moreover, examining whether the associations between obesity and caregiving remain when considering short-term vs. long-term care (e.g., 30 days versus 30 months) were beyond the scope of the current study. However, a longitudinal study of Alzheimer’s disease caregivers showed that the duration of caregiving was directly associated with increased C-reactive protein levels, thereby contributing to other risk factors including poor cardiovascular health and obesity (Von Känel et al., 2012). Further research should examine physiological responses to caregiving stress among Black Americans and also take into account broader sociocontextual factors that influence stress and coping among this population (Cogburn, 2019; Harrell et al., 2003).

In the Black American community, the family has been a cornerstone of support for the vulnerable and chronically ill (Bennett et al., 2014; Turner et al., 2004). Black Americans often rely more heavily on family caregivers and report lower usage of formal caregiving services than their White counterparts (Crawley et al., 2000; Rizzuto & Aldridge, 2018). This reliance on family caregiving among Black Americans has been attributed to several factors such as mistrust of the healthcare systems, greater availability of family support, and deeply rooted cultural and spiritual beliefs that the family should care for one another (Bennett et al., 2014; Turner et al., 2004). Future research should investigate whether associations between caregiving and obesity are stronger for certain subgroups. For example, mixed-methods studies that examine whether associations between caregiving and obesity differ by care recipient illness type with quantitative methods, and include qualitative methods to better understand similarities and differences in the lived experiences of caregivers and care recipients by illness type, could be very useful for identifying key commonalities to inform broader research and intervention efforts.

Additional Considerations for Social Work Research and Practice

There are several additional considerations that can inform this important area of work. First, an increased use of caregiving and social needs assessments by social workers can provide a more comprehensive understanding of Black American caregiver experiences and unmet needs, and help to facilitate timely interventions to improve health outcomes. There is increasing support for these types of efforts. The recent report Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation’s Health advocates for five activities (i.e., 5As) to better integrate social care (NASEM, 2019; Zebrack et al., in press). Adjustment and assistance include activities focused on individuals that respond to social risks and protective factors, alignment and advocacy include activities focused on social care in communities, and awareness recognizes individual- and community-targeted efforts informed by socioeconomic and contextual factors most relevant to the populations they aim to serve (NASEM, 2019). Social work practice with Black American caregivers and care recipients that aligns with and helps to build momentum of these broader initiatives can play a critical role in strengthening policy and system-level support for social care and healthcare integration (Zebrack et al., in press).

Second, interventions should be sensitive and responsive to how weight-related perceptions and stigma influence caregiver health, including their ability to access and receive appropriate healthcare (Tomiyama et al., 2018). Research indicates that women, who traditionally and historically are more likely to take on caregiving roles, are more susceptible to fat stigma than men, and this stigma may contribute to weight retention and gain (Brewis, 2014). Researchers have also argued that weight stigma is a key contributor to the growing prevalence of obesity (Tomiyama et al., 2018). Thus, it is important to address weight-related stigma, bias, and stereotypes social workers may hold about obese individuals—who could be in roles of caregiver and/or care recipient—that can negatively influence their social work practice (Green et al., 2020; Lawrence et al., 2019; McCardle, 2008; Shinan-Altman, 2017). Social work education and training that increase understanding of obesity as both a health risk and a social stigma, and highlight the opportunities for social workers to engage with and advocate for effective policies and practices to prevent obesity and reduce obesity-related stigma, can help to alleviate mistreatment of obese individuals (Lawrence et al., 2012). Given the noted bias in medical treatment against Black Americans (Hall et al., 2015; Smedley et al., 2003), intersectional approaches to addressing discrimination faced by Black Americans who are obese are certainly warranted.

Third, a culturally informed, strength-based perspective acknowledging the critical support provided by Black American caregivers and families is necessary. More specifically, interventions that seek to build on the substantial resources that already exist in families can help to promote collaboration with families and guard against deficit models that lead to victim blaming and harm. Collaboration is a familiar—but understudied—topic in caregiving-related research and practice. A recent study by Ellis and colleagues (2022) provides a framework for conceptualizing family caregiver collaboration and quantitative index to capture variation in collaboration across family contexts with multiple caregivers. Obesity-related interventions that include multiple individuals serving in caregiving roles within a family system may benefit from research such as this when making decisions about intervention design and evaluation that can improve practice and, conversely, help to inform ongoing theory and measurement development.

Limitations and Strengths

This analysis uses cross-sectional data and, as such, cannot account for obesity among caregivers prior to the onset of caregiving or variation in obesity over time. It also does not account for caregivers who may be obese but metabolically healthy (or conversely, not obese, but metabolically unhealthy). Second, caregivers are defined in the BRFSS as those who report providing care at the time of the study. This analysis is unable to consider previous caregiving experiences of respondents. Third, as BRFSS data are collected with adults, this study does not examine associations between caregiving and obesity among individuals under the age of 18 who are caregivers. Last, available data do not allow us to account for ethnic diversity among Black Americans.

Despite these limitations, there are several strengths. Population-based studies that compare outcomes for caregivers and noncaregivers recruited and enrolled with similar methods have been described as “surprisingly rare” in comparison with the large majority of studies of family caregiving utilizing clinical or convenience samples (Roth et al., 2015). The BRFSS provides nationally representative data through well-tested and refined methodology, which results in a large and robust sample for analysis of this racial subgroup. In addition, results obtained in this study can be compared with data from future annual surveys to examine patterns over time. Population-based studies examining risk factors and risk predictors are informative for intervention implementation, including policy and practice strategies that can make the greatest impact on population health (Neta et al., 2018). Last, this study can help inform future within-group research with Black Americans in this topic area, providing a useful compliment to (more common) racially comparative studies (Kauh et al., 2021; Whitfield et al., 2008). While comparative studies that draw attention to important racial disparities are critical for making progress, these types of studies are not sufficient for increasing understanding of variation within racial groups. More specificity can be particularly helpful for designing targeted and tailored intervention programs to support this population (Kreuter et al., 2003; McCarthy et al., 2021). Overall, this study investigates critical questions that—based on health, aging, and demographic trends—are expected to grow in relevance in the years to come.

Conclusion

Family caregiving contributes immensely to the health of the U.S. population and the healthcare system. As such, the health of caregivers is closely tied to those for whom they provide care. Given their role in supporting individuals and families, and their pursuit of social justice for vulnerable groups, social work researchers and practitioners are uniquely positioned to advocate for and support the health of Black American caregivers, particularly those affected by weight-related health challenges. Broader attention to the use of caregiver needs assessments and the disruption of weight-related stigma is needed, as are culturally informed, strength-based interventions. Social work interventions that attend to the health of caregivers, care recipients, and the broader family can help to address both the independent and interdependent aspects of health and build on existing forms of collaborative care.

Contributor Information

Katrina R Ellis, PhD, MPH, MSW, is assistant professor, School of Social Work, University of Michigan, 1080 South University Avenue, Ann Arbor, MI 48109, USA.

Dolapo Raji, MPH, MHI, is research associate specialist intermediate, School of Public Health, University of Michigan, Ann Arbor, MI, USA.

Jacquelyn S Pennings, PhD, PStat, is research associate professor, Department of Orthopaedic Surgery, Department of Biostatistics, Center for Musculoskeletal Research, Vanderbilt University Medical Center, Nashville, TN, USA.

Roland J Thorpe, Jr., PhD, is professor, Program for Research on Men’s Health, Hopkins Center for Health Disparities Solutions, Baltimore, MD, USA

Marino A Bruce, PhD, is associate dean for research and clinical professor, Tilman J. Fertitta Family College of Medicine, University of Houston, Houston, TX, USA.

This research was supported by grants from the National Heart, Lung, and Blood Institute [R25HL126145: Ellis, Thorpe, Bruce] and the National Institute of Minority Health and Health Disparities [U54MD000214: Thorpe].

References

  1. Anderson L. A., Edwards V. J., Pearson W. S., Talley R. C., McGuire L. C., Andresen E. M. (2013). Adult caregivers in the United States: Characteristics and differences in well-being, by caregiver age and caregiving status. Preventing Chronic Disease, 10, Article E135. [DOI] [PMC free article] [PubMed] [Google Scholar]
  2. Avila C., Holloway A. C., Hahn M. K., Morrison K. M., Restivo M., Anglin R., Taylor V. H. (2015). An overview of links between obesity and mental health. Current Obesity Reports, 4, 303–310. [DOI] [PubMed] [Google Scholar]
  3. Bauer J. M., Sousa-Poza A. (2015). Impacts of informal caregiving on caregiver employment, health, and family. Journal of Population Ageing, 8, 113–145. [Google Scholar]
  4. Bennett S., Sheridan M. J., Richardson F. (2014). Caregiving as ministry: Perceptions of African Americans providing care for elders. Families in Society, 95, 51–58. [Google Scholar]
  5. Brewis A. A. (2014). Stigma and the perpetuation of obesity. Social Science and Medicine, 118, 152–158. 10.1016/j.socscimed.2014.08.003 [DOI] [PubMed] [Google Scholar]
  6. Capistrant B. D. (2016). Caregiving for older adults and the caregivers’ health: An epidemiologic review. Current Epidemiology Reports, 3, 72–80. [Google Scholar]
  7. Castro C. M., King A. C., Housemann R., Bacak S. J., McMullen K. M., Brownson R. C. (2007). Rural family caregivers and health behaviors: Results from an epidemiologic survey. Journal of Aging and Health, 19, 87–105. [DOI] [PubMed] [Google Scholar]
  8. Centers for Disease Control and Prevention. (2016, July). Behavioral Risk Factor Surveillance System: Module data for analysis for 2015 BRFSS.https://www.cdc.gov/brfss/annual_data/2015/pdf/2015moduleanalysis.pdf
  9. Centers for Disease Control and Prevention. (2018, July). The Behavioral Risk Factor Surveillance System: Complex sampling weights and preparing 2017 BRFSS module data for analysis.https://www.cdc.gov/brfss/annual_data/2017/pdf/Complex-Smple-Weights-Prep-Module-Data-Analysis-2017-508.pdf
  10. Centers for Disease Control and Prevention. (2022). Behavioral Risk Factor Surveillance System (BRFSS) Caregiver Module.https://www.cdc.gov/aging/healthybrain/brfss-faq-caregiver.htm
  11. Centers for Disease Control and Prevention. (2023). Behavioral Risk Factor Surveillance System.https://www.cdc.gov/brfss/index.html
  12. Centers for Medicare and Medicaid Services. (2012). Chronic conditions among Medicare beneficiaries [Chartbook] (2012 ed.). Author.
  13. Cogburn C. D. (2019). Culture, race, and health: Implications for racial inequities and population health. Milbank Quarterly, 97, 736–761. [DOI] [PMC free article] [PubMed] [Google Scholar]
  14. Cothran F. A., Paun O., Strayhorn S., Barnes L. L. (2022). ‘Walk a mile in my shoes’: African American caregiver perceptions of caregiving and self-care. Ethnicity and Health, 27, 435–452. 10.1080/13557858.2020.1734777 [DOI] [PMC free article] [PubMed] [Google Scholar]
  15. Crawley L., Payne R., Bolden J., Payne T., Washington P., Williams S. (2000). Palliative and end-of-life care in the African American community. JAMA, 284, 2518–2521. [DOI] [PubMed] [Google Scholar]
  16. Dilworth-Anderson P., Brummett B. H., Goodwin P., Williams S. W., Williams R. B., Siegler I. C. (2005). Effect of race on cultural justifications for caregiving. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 60, S257–S262. [DOI] [PubMed] [Google Scholar]
  17. Edwards V. J., Anderson L. A., Thompson W. W., Deokar A. J. (2017). Mental health differences between men and women caregivers, BRFSS 2009. Journal of Women and Aging, 29, 385–391. 10.1080/08952841.2016.1223916 [DOI] [PMC free article] [PubMed] [Google Scholar]
  18. Eifert E. K., Adams R., Morrison S., Strack R. (2016). Emerging trends in family caregiving using the life course perspective: Preparing health educators for an aging society. American Journal of Health Education, 47, 176–197. [Google Scholar]
  19. Ellis K. R., Koumoutzis A., Lewis J. P., Lin Z., Zhou Y., Chopik W. J., Gonzalez R. (2022). Conceptualizing and operationalizing collaboration among multiple caregivers of older adults. Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 78, S27–S37. [DOI] [PMC free article] [PubMed] [Google Scholar]
  20. Friedman E. M., Rodakowski J., Schulz R., Beach S. R., Martsolf G. R., James A. E. III. (2019). Do family caregivers offset healthcare costs for older adults? A mapping review on the costs of care for older adults with versus without caregivers. The Gerontologist, 59, e535–e551. 10.1093/geront/gny182 [DOI] [PubMed] [Google Scholar]
  21. Green L., Moran L., Vania N. (2020). Medical and social constructionist perspectives on obesity and their relevance for social work: Contradictory explanations for ever expanding nations? British Journal of Social Work, 50, 1049–1068. [Google Scholar]
  22. Gross R., Brammli-Greenberg S., Bentur N. (2003). Women caring for disabled parents and other relatives: Implications for social workers in the health services. Social Work in Health Care, 37, 19–37. [DOI] [PubMed] [Google Scholar]
  23. Hajek A., König H.-H. (2017). The longitudinal association between informal caregiving and body mass index in the second half of life: Findings of the German Ageing Survey. Public Health, 151, 81–86. [DOI] [PubMed] [Google Scholar]
  24. Hall W. J., Chapman M. V., Lee K. M., Merino Y. M., Thomas T. W., Payne B. K., Eng E., Day S. H., Coyne-Beasley T. (2015). Implicit racial/ethnic bias among health care professionals and its influence on health care outcomes: A systematic review. American Journal of Public Health, 105, e60–e76. [DOI] [PMC free article] [PubMed] [Google Scholar]
  25. Harrell J. P., Hall S., Taliaferro J. (2003). Physiological responses to racism and discrimination: An assessment of the evidence. American Journal of Public Health, 93, 243–248. 10.2105/ajph.93.2.243 [DOI] [PMC free article] [PubMed] [Google Scholar]
  26. Hoffman G. J., Lee J., Mendez-Luck C. A. (2012). Health behaviors among baby boomer informal caregivers. The Gerontologist, 52, 219–230. [DOI] [PMC free article] [PubMed] [Google Scholar]
  27. Huang T. T., Drewnosksi A., Kumanyika S., Glass T. A. (2009). A systems-oriented multilevel framework for addressing obesity in the 21st century [Editorial]. Preventing Chronic Disease, 6, A82. [PMC free article] [PubMed] [Google Scholar]
  28. Jackson J. S., Knight K. M., Rafferty J. A. (2010). Race and unhealthy behaviors: Chronic stress, the HPA axis, and physical and mental health disparities over the life course. American Journal of Public Health, 100, 933–939. [DOI] [PMC free article] [PubMed] [Google Scholar]
  29. Jastreboff A. M., Kotz C. M., Kahan S., Kelly A. S., Heymsfield S. B. (2019). Obesity as a disease: The Obesity Society 2018 position statement. Obesity, 27, 7–9. [DOI] [PubMed] [Google Scholar]
  30. Kauh T. J., Read J. G., Scheitler A. J. (2021). The critical role of racial/ethnic data disaggregation for health equity. Population Research and Policy Review, 40, 1–7. [DOI] [PMC free article] [PubMed] [Google Scholar]
  31. Kotronoulas G., Wengstrom Y., Kearney N. (2012). Informal carers: A focus on the real caregivers of people with cancer. Forum of Clinical Oncology, 3, 58–65. [Google Scholar]
  32. Kreuter M. W., Lukwago S. N., Bucholtz D. C., Clark E. M., Sanders-Thompson V. (2003). Achieving cultural appropriateness in health promotion programs: Targeted and tailored approaches. Health Education and Behavior, 30, 133–146. [DOI] [PubMed] [Google Scholar]
  33. Lacey R. E., McMunn A., Webb E. (2018). Informal caregiving and markers of adiposity in the UK Household Longitudinal Study. PLOS ONE, 13, Article e0200777. [DOI] [PMC free article] [PubMed] [Google Scholar]
  34. Lawrence S. A., Abel E. M., Stewart C., Dziuban C. (2019). Social work students’ perceptions of obesity. Social Work Education, 38, 377–391. [Google Scholar]
  35. Lawrence S. A., Hazlett R., Abel E. M. (2012). Obesity related stigma as a form of oppression: Implications for social work education. Social Work Education, 31, 63–74. [Google Scholar]
  36. Liu C., Badana A. N. S., Burgdorf J., Fabius C. D., Roth D. L., Haley W. E. (2021). Systematic review and meta-analysis of racial and ethnic differences in dementia caregivers’ well-being. The Gerontologist, 61, e228–e243. [DOI] [PMC free article] [PubMed] [Google Scholar]
  37. Liu Y., Wheaton A. G., Edwards V. J., Xu F., Greenlund K. J., Croft J. B. (2020). Short self-reported sleep duration among caregivers and non-caregivers in 2016. Sleep Health, 6, 651–656. 10.1016/j.sleh.2020.01.015 [DOI] [PMC free article] [PubMed] [Google Scholar]
  38. McCardle M. (2008). Weight bias and social work practice: An empirical exploration. City University of New York. [Google Scholar]
  39. McCarthy M. J., Sanchez A., Garcia Y. E., Bakas T. (2021). A systematic review of psychosocial interventions for Latinx and American Indian patient-family caregiver dyads coping with chronic health conditions. Translational Behavioral Medicine, 11, 1639–1654. 10.1093/tbm/ibab051 [DOI] [PubMed] [Google Scholar]
  40. McGuire L. C., Bouldin E. L., Andresen E. M., Anderson L. A. (2010). Examining modifiable health behaviors, body weight, and use of preventive health services among caregivers and non-caregivers aged 65 years and older in Hawaii, Kansas, and Washington using 2007 BRFSS. Journal of Nutrition, Health & Aging, 14, 373–379. 10.1007/s12603-010-0083-0 [DOI] [PubMed] [Google Scholar]
  41. Moon H., Dilworth-Anderson P. (2015). Baby boomer caregiver and dementia caregiving: Findings from the National Study of Caregiving. Age and Ageing, 44, 300–306. [DOI] [PMC free article] [PubMed] [Google Scholar]
  42. National Academies of Sciences, Engineering, and Medicine. (2016). Families caring for an aging America. National Academies Press. [PubMed] [Google Scholar]
  43. National Academies of Sciences, Engineering, and Medicine. (2019). Integrating social care into the delivery of health care: Moving upstream to improve the nation’s health. National Academies Press. [PubMed] [Google Scholar]
  44. National Alliance for Caregiving & AARP. (2020). Caregiving in the United States: 2020 report.https://www.caregiving.org/wp-content/uploads/2020/06/AARP1316_RPT_CaregivingintheUS_WEB.pdf
  45. National Center for Health Statistics. (2016). Health, United States, 2015: With special feature on racial and ethnic health disparities. Author. [PubMed]
  46. Neta G., Brownson R. C., Chambers D. A. (2018). Opportunities for epidemiologists in implementation science: A primer. American Journal of Epidemiology, 187, 899–910. 10.1093/aje/kwx323 [DOI] [PMC free article] [PubMed] [Google Scholar]
  47. Neugaard B., Andresen E., McKune S. L., Jamoom E. W. (2008). Health-related quality of life in a national sample of caregivers: Findings from the Behavioral Risk Factor Surveillance System. Journal of Happiness Studies, 9, 559–575. 10.1007/s10902-008-9089-2 [DOI] [Google Scholar]
  48. Ogden C. L., Fryar C. D., Martin C. B., Freedman D. S., Carroll M. D., Gu Q., Hales C. M. (2020). Trends in obesity prevalence by race and Hispanic origin—1999-2000 to 2017-2018. JAMA, 324, 1208–1210. [DOI] [PMC free article] [PubMed] [Google Scholar]
  49. Pearlin L. I., Mullan J. T., Semple S. J., Skaff M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594. 10.1093/geront/30.5.583 [DOI] [PubMed] [Google Scholar]
  50. Reeves K. W., Bacon K., Fredman L. (2012). Caregiving associated with selected cancer risk behaviors and screening utilization among women: Cross-sectional results of the 2009 BRFSS. BMC Public Health, 12, Article 685. [DOI] [PMC free article] [PubMed] [Google Scholar]
  51. Revenson T., Griva K., Luszczynska A., Morrison V., Panagopoulou E., Vilchinsky N., Hagedoorn M. (2016). Caregiving in the illness context. Springer. [Google Scholar]
  52. Rizzuto J., Aldridge M. D. (2018). Racial disparities in hospice outcomes: A race or hospice‐level effect? Journal of the American Geriatrics Society, 66, 407–413. [DOI] [PMC free article] [PubMed] [Google Scholar]
  53. Robinson M. A., Kim I., Mowbray O., Disney L. (2022). African Americans, Caribbean Blacks and depression: Which biopsychosocial factors should social workers focus on? Results from the National Survey of American Life (NSAL). Community Mental Health Journal, 58, 366–375. [DOI] [PMC free article] [PubMed] [Google Scholar]
  54. Rote S. M., Angel J. L., Moon H., Markides K. (2019). Caregiving across diverse populations: New evidence from the national study of caregiving and Hispanic EPESE. Innovation in Aging, 3, Article igz033. [DOI] [PMC free article] [PubMed] [Google Scholar]
  55. Rote S. M., Moon H. (2018). Racial/ethnic differences in caregiving frequency: Does immigrant status matter? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 73, 1088–1098. [DOI] [PubMed] [Google Scholar]
  56. Roth D. L., Fredman L., Haley W. E. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55, 309–319. [DOI] [PMC free article] [PubMed] [Google Scholar]
  57. Schulz R., Beach S. R. (1999). Caregiving as a risk factor for mortality: The Caregiver Health Effects Study. JAMA, 282, 2215–2219. 10.1001/jama.282.23.2215 [DOI] [PubMed] [Google Scholar]
  58. Schulz R., Czaja S. J. (2018). Family caregiving: A vision for the future. American Journal of Geriatric Psychiatry, 26, 358–363. [DOI] [PubMed] [Google Scholar]
  59. Scott K. A., Melhorn S. J., Sakai R. R. (2012). Effects of chronic social stress on obesity. Current Obesity Reports, 1, 16–25. [DOI] [PMC free article] [PubMed] [Google Scholar]
  60. Sherwood P. R., Price T. J., Weimer J., Ren D., Donovan H. S., Given C. W., Given B. A., Schulz R., Prince J., Bender C. (2016). Neuro-oncology family caregivers are at risk for systemic inflammation. Journal of Neuro-Oncology, 128, 109–118. [DOI] [PMC free article] [PubMed] [Google Scholar]
  61. Shinan-Altman S. (2017). Medical social workers’ perceptions of obesity. Journal of Social Work, 17, 343–357. [Google Scholar]
  62. Singer G. H. S., Biegel D. E., Ethridge B. L. (2010). Trends impacting public policy support for caregiving families. Journal of Family Social Work, 13, 191–207. 10.1080/10522151003773867 [DOI] [Google Scholar]
  63. Smedley B. D., Stith A. Y., Nelson A. R. (Eds.). (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. National Academies Press. [PubMed] [Google Scholar]
  64. Son K. Y., Park S. M., Lee C. H., Choi G. J., Lee D., Jo S., Lee S. H., Cho B. (2011). Behavioral risk factors and use of preventive screening services among spousal caregivers of cancer patients. Supportive Care in Cancer, 19, 919–927. [DOI] [PubMed] [Google Scholar]
  65. Stanhope V., Videka L., Thorning H., McKay M. (2015). Moving toward integrated health: An opportunity for social work. Social Work in Health Care, 54, 383–407. [DOI] [PubMed] [Google Scholar]
  66. Tomiyama A. J., Carr D., Granberg E. M., Major B., Robinson E., Sutin A. R., Brewis A. (2018). How and why weight stigma drives the obesity ‘epidemic’ and harms health. BMC Medicine, 16, Article 123. 10.1186/s12916-018-1116-5 [DOI] [PMC free article] [PubMed] [Google Scholar]
  67. Trivedi R., Beaver K., Bouldin E. D., Eugenio E., Zeliadt S. B., Nelson K., Rosland A.-M., Szarka J. G., Piette J. D. (2013). Characteristics and well-being of informal caregivers: Results from a nationally-representative US survey. Chronic Illness, 10, 167–179. [DOI] [PubMed] [Google Scholar]
  68. Turner W. L., Wallace B. R., Anderson J. R., Bird C. (2004). The last mile of the way: Understanding caregiving in African American families at the end‐of‐life. Journal of Marital and Family Therapy, 30, 427–438. [DOI] [PubMed] [Google Scholar]
  69. Von Känel R., Mills P. J., Mausbach B. T., Dimsdale J. E., Patterson T. L., Ziegler M. G., Ancoli-Israel S., Allison M., Chattillion E. A., Grant I. (2012). Effect of Alzheimer caregiving on circulating levels of C-reactive protein and other biomarkers relevant to cardiovascular disease risk: A longitudinal study. Gerontology, 58, 354–365. [DOI] [PMC free article] [PubMed] [Google Scholar]
  70. Whitfield K. E., Allaire J. C., Belue R., Edwards C. L. (2008). Are comparisons the answer to understanding behavioral aspects of aging in racial and ethnic groups? Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 63, P301–P308. [DOI] [PMC free article] [PubMed] [Google Scholar]
  71. Williams E. P., Mesidor M., Winters K., Dubbert P. M., Wyatt S. B. (2015). Overweight and obesity: Prevalence, consequences, and causes of a growing public health problem. Current Obesity Reports, 4, 363–370. [DOI] [PubMed] [Google Scholar]
  72. Zebrack B., Ellis K. R., Doherty M. (in press). Beyond distress screening: the future of psychosocial oncology and palliative care. In Hedlund S., Miller B., Christ G., Messner C. (Eds.), Oncology and palliative social work: Psychosocial care for people coping with cancer. Oxford University Press. [Google Scholar]

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