Abstract
After reading the article and completing the quiz, participants will be able to:
Define rare cancers
Describe demographic patterns of the burden of rare cancers
- Rare cancers have poor outcomes due to which of the following?
- Lack of standard of care guidelines
- Limited treatment options
- Limited eligibility in clinical trials
- Timeliness of diagnosis
- All of the above
- How did the Surveillance of Rare Cancers in Europe project define rare cancers operationally?
- Starting in an unusual place in the body
- Having a crude annual incidence rate <2 per 100,000 people per year
- Having a crude annual incidence rate <6 per 100,000 people per year
- Having a crude annual incidence rate <15 per 100,000 people per year
- The Surveillance, Epidemiology and End Results (SEER) Program introduced a Rare Cancer Classification variable that includes cancer groups from tiers 1, 2, and 3 of the Joint Action on Rare Cancers list.
- True
- False
- Unknown if true or false
- How many tier 2 rare cancer groups were rare in either the United States or Canada but not both?
- 3
- 1
- 2
- Using Cancer in North America (CiNA) data, what was the approximate percentage of microscopically confirmed invasive cancers that were considered rare in Canada and the United States?
- 5%
- 10%
- 20%
- 45%
- Children aged 0–14 years had the highest percentage of rare cancers.
- True
- False
- Unknown if true or false
- Which geographic region had the lowest percentage of rare cancers among all invasive cancers?
- Puerto Rico
- Canada, Atlantic
- Canada, Ontario
- Canada, British Columbia
- Which age group had the highest incidence rate of all rare cancers combined?
- 0–14 years
- ≥70 years
- 55–69 years
- Which US racial/ethnic group had the highest percentage of rare cancers?
- Non-Hispanic American Indian/Alaskan native
- Non-Hispanic Asian/Pacific Islander
- Non-Hispanic Black
- Non-Hispanic White
- Hispanic (all races)
- Which of the following best describes the burden of rare cancers in CiNA incidence data?
- Accurately reflected
- Likely underestimated
- Likely overestimated
- Unable to be assessed
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