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. 2002 Jan 12;324(7329):109. doi: 10.1136/bmj.324.7329.109/a

Should NHS patients be allowed to pay extra for their care?

Patient payments bring new resources into system

Karol Sikora 1
PMCID: PMC1121999  PMID: 11786461

Editor—Richards et al in their article raise the issue of patients contributing to payments for cancer drugs in Britain's NHS.1 It is pleasing to see that times are changing for ethics committees even if the pervasive tone of self righteousness is a bit grating. If British politicians cannot manage to improve the NHS, why should a patient not pay for drug treatment perceived as beneficial? Would the group consider it unethical for a patient to pay for vitamin pills, special diets, alternative medicine, or a second opinion?

Over the next three years there is going to be a major shift in cancer care. New molecularly targeted medicines that block specific signalling pathways and angiogenesis will become available. These will take the form of simple tablets, to be taken once a day. They will prolong survival by a few months in many cancers, but as the predictive power of genomics and proteomics bites, cancer will become a chronic, controllable disease. The cost will exceed the budget of Britain's national cancer plan, which is just a catching up exercise on 30 years of underinvestment by successive governments. In a global society no group of armchair ethicists sitting in Nottingham can stop people ordering these new drugs through the internet and paying with their credit card. Debating the issue is futile.

What we can do is to ensure that the core cancer services offered to everyone by the NHS improve. The cancer plan provides an excellent structure but is underfunded. Creating the new bureaucracy has provided excellent spin for politicians who think they have “done cancer.” The reality is grim—ageing radiotherapy machines, clear examples of continuing postcode prescribing, overworked staff, and lack of consultation time. Allowing patients to pay for treatments outside the core is one way of bringing additional resources into the system. Another is to privatise their delivery.

References

  • 1.Richards C, Dingwall R, Watson A. Should NHS patients be allowed to contribute extra money to their care? BMJ. 2001;323:563–565. doi: 10.1136/bmj.323.7312.563. . (9 September.) [DOI] [PMC free article] [PubMed] [Google Scholar]
BMJ. 2002 Jan 12;324(7329):109.

Debate is essential, not futile

Hazel Thornton 1

Editor—Richards et al raise many ethical and legal issues, discussing whether or not NHS patients should be allowed to contribute extra money to their care.1-1 In his rapid response and the letter above Sikora argues that debating the issue is futile.1-2 I believe that extensive debate by all stakeholders in the NHS is essential. This new class of “active” patient, wealthy enough to purchase expensive pharmacogenomic drugs such as Herceptin (trastuzumab), could add a new, unbalancing component to shared decision making, by rendering clinicians scarcely more than technicians. The effect on the research process would do a disservice to fellow patients with breast cancer and be disruptive to equitable and evidence based provision of health care in general in a health provision system that is based on egalitarian principles such as we have in the United Kingdom.

An editorial in the Lancet described the political activism of the national breast cancer coalition in the United States that, according to its president, brought Herceptin to women two years earlier than this would have happened without its advocacy.1-3 This attitude may bring benefits to its members but does not redress the balance of power in the research community.1-4 The conduct and quality of research globally would, however, be further diminished by ad hoc personal purchasing. Cultural differences and different systems of healthcare provision—for example between the United States and the United Kingdom—would probably result in even more divisive availability of treatments.

Furthermore, patients who have purchased such an expensive drug are not likely to agree to its administration only within the restraints of a trial protocol, where informed consent to test for eligibility and participation in the trial will be required. Trials are needed to establish the drug's efficacy in patients with early breast cancer. Will patients who purchase Herceptin also be allowed to sidestep testing for HER2 expression, which is necessary to determine eligibility for its use (where only 25-30% of primary breast cancers express the HER2 protein), thereby avoiding the discriminatory potential of the genetic test (which is only 80% accurate) for this type of breast cancer, for which the prognosis is worse?1-5 It will make the treatment of breast cancer even more discriminatory if there is a further subdivision of patients who can either pay for it or pay for it and receive it outside of the context of a clinical trial, thus delaying production of data even longer. Problems of consent and information provision to participants of prospective trials will be particularly difficult with this new class of drugs, without the added problem of ad hoc purchasing.

References

  • 1-1.Richards C, Dingwall R, Watson A. Should NHS patients be allowed to contribute extra money to their care? BMJ. 2001;323:563–565. doi: 10.1136/bmj.323.7312.563. . (9 September.) [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 1-2.Sikora K. Copayments for cancer drugs. Electronic response to Should NHS patients be allowed to contribute extra money to their care? bmj.com 2001;323 (bmj.com/cgi/eletters/323/7312/563#16524). [DOI] [PMC free article] [PubMed]
  • 1-3.Anonymous. How consumers can and should improve clinical trials. Lancet. 2001;357:1721. [PubMed] [Google Scholar]
  • 1-4.Thornton T. Consumers and trials. Lancet. 2001;358:763. doi: 10.1016/S0140-6736(01)05918-9. [DOI] [PubMed] [Google Scholar]
  • 1-5.Peres J. Test problems flaw breast cancer care. Chicago Tribune 2001 Jul 2.
BMJ. 2002 Jan 12;324(7329):109.

Pragmatism should rule, not policy committees

Richard Osborne 1

Editor—The approach at our cancer centre has been different to that reported in the paper by Richards et al.2-1 For non-funded cancer drugs, patients have been advised that they may continue under the care of their NHS consultant, who will supervise the administration of the cytotoxic agent as usual. The only difference from normal practice is that the hospital pharmacy sends an invoice for the drug cost to the patient. Although this is not perfect, it is satisfactory for the patient who requires a particular treatment that is otherwise unavailable on the NHS and who is willing and able to pay.

References

  • 2-1.Richards C, Dingwall R, Watson A. Should NHS patients be allowed to contribute extra money to their care? BMJ. 2001;323:563–565. doi: 10.1136/bmj.323.7312.563. . (9 September.) [DOI] [PMC free article] [PubMed] [Google Scholar]
BMJ. 2002 Jan 12;324(7329):109.

Charges for NHS dental care have led to privatisation

Tony Kilcoyne 1

Editor—Richards et al asked whether patients in the NHS should be allowed to contribute extra money to their care. In NHS dental primary care charges to patients have been high for over 10 years.3-1 NHS patients pay up to £360 towards just one course of treatment, and these charges now account for 80% of the full cost of most dental treatments performed in the NHS.

So have these patient charges improved NHS dental care? In theory, they should have, through additional funding, but after only a few years the government deducted any payments from patients from government payments to dentists, leaving us as unpaid tax collectors with no more funding and a lot more extra paperwork.

With many patients paying such high NHS charges, it was, however, a small step to ask patients to pay the full costs, or to join a low cost plan at about £12 per month to receive the high quality private dentistry that the government is unprepared to allow or fund properly in the NHS.

So additional patient charges are a good thing—they help the public to start “valuing” medical services while initially providing some additional funds. If the government stays true to form and starts to count charges to patients as government funds, deducting these from grants, etc, then at least offering private quality care will be one step nearer for the public.

Modern patient care must come before thinking like a third world government, even if that means funding care outside the NHS. This is now well established in dental care in the United Kingdom, and medicine would do well to learn from NHS dentistry's problems and solutions.

References

  • 3-1.Richards C, Dingwall R, Watson A. Should NHS patients be allowed to contribute extra money to their care? BMJ. 2001;323:563–565. doi: 10.1136/bmj.323.7312.563. . (9 September.) [DOI] [PMC free article] [PubMed] [Google Scholar]

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