Table 1.
Interview guide questions.
| S/N | Questions |
|---|---|
| Interview guide—Parents | |
| 1 | Thank you very much. I would like to start by a general discussion on your knowledge on the Sickle Cell Disease. Briefly tell me what you understand about Sickle Cell Disease (SCD). (Probe: Meaning of the disease, Causes of the disease (genetical vs a causative agent), Transmission of the disease (congenital vs a causative agent), Treatment of the disease (symptomatic vs full treatment) and Prevention (means of prevention?) |
| 2 | Thank you for the response. I would like to discuss in brief your medication history. (Probe: Drugs used (Probe for Hydroxyurea, L-glutamine oral powder, Crizanlizumab, Voxelotor, antipain, antibiotics, pneumococcal vaccine, chloroquine, FEFO, BT) and If changing drugs, probe for reasons for the change (S/effects, availability etc)) |
| 3 | Now that we have discussed your drug history, I would like to know if there is any drug you prefer more than the other and why? (Probe: Facility factors such as availability of drug, customer care of providers, providers’ advice, skills, knowledge etc., and Patient related factors for utilization of HU, such as efficacy, side effect, clinic follow-up, knowledge about the drug)) |
| 4 | What do you think the government should do to increase the compliance of Hydroxyurea to SCD patients? (Probe: Incorporate the drug to Insurance, vertical program) |
| 5 | Is there anything else concerning this topic that you would like to share with me before we close the discussion? |
| Interview guide—Medical Doctors | |
| 1 | Could you tell me what drugs are used to manage sickle cell Disease in your facility? (Probe for Hydroxyurea, L-glutamine oral powder, Crizanlizumab, Voxelotor, antipain, antibiotics, pneumococcal vaccine, chloroquine, FEFO, BT) |
| 2 | You have mentioned Hydroxyurea among others, could you tell me the reasons for you to prescribe/dispense hydroxyurea for SCD? (Probe for facility factors such as availability/affordability of drug, efficacy, side effects, patient compliance etc.) |
| 3 | What do you think the government should do to increase the compliance of Hydroxyurea to SCD patients? (Probe: Incorporate the drug to Insurance, vertical program) |
| 4 | Is there anything else concerning this topic that you would like to share with me before we close this discussion? |
| Interview guide—National Health Insurance Fund | |
| 1 | Why is HU not covered by health insurances? (Probe: What are the criteria used to allocate a drug under NHIF coverage? What are the criteria used to allocate a drug under vertical program? and What should HU need to meet for it to be covered by NHIF or placed under vertical program) |
| 2 | Is there anything else concerning this topic that you want to share with me before we close this discussion? |