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. 2024 Oct 7;13:930. Originally published 2024 Aug 15. [Version 2] doi: 10.12688/f1000research.153797.2

Table 9. Themes, Sub-themes, and Codes on Social Justice, Equity, Human Rights, and Socio-functional Outcomes (n=84).

Themes Sub-themes Sample codes
Structural (in)equality Discriminatory practices Systemic discrimination: “In 2 cases, permission/key to use the toilet has to be sought, and in 1 case the toilet cannot be used as it is currently a storeroom.”
Policy-level discrimination: “… I mean the builders could not have built an inaccessible place if there was a stipulation in the contract which came from policies which says all buildings must be accessible.’
Individual discriminatory behaviors: ‘There is no money lying around for things like that, if we see an urgent need then it’s a joint effort and we then try to get the money together, but there is not ….”
Empowerment and Autonomy Autonomy “Accessible means freedom, in general…Independence would mean [I could do] anything I choose to do.”
Power Dynamics Infantilisation: “feel insecure and uncomfortable in situations that require them to be carried to a different floor”
Instrumentalisation of participants: “The researchers consider not including adults with CPs with Intellectual disability stating that “they may not have been able to follow the interview procedures”.
Human Rights violations Right to dignity and independence “the findings show public toilet person on a wheelchair has to get down from wheelchair, crawl using bare hand to access the facilities. This affects basic dignity, hygiene and health. The participant also mentioned wrapping hands with plastic bags for crawling”
Right to Privacy and Safety “They are forced to give their PIN numbers to someone else who then has access to their bank account, knowing what their balances are etc. This puts the security of their accounts at risk, and also impacts on their right to privacy.”
Right to access basic needs & Right to health “These findings suggest people with mobility impairments, … exist in virtual “food deserts” and are at a disadvantage in maintaining a healthy lifestyle because of limited access to healthy food choices”
Social and functional outcomes Basic functions including dressing and toileting “They put up a sign saying “disabled toilet”. But they neglect to say that there is a two-foot step to get in to the place. They try to do a bit but they never quite get it right ….”
Education and academic engagement “We have uncovered gutters on campus …. We have pavements that there are a whole lot of broken bricks. So, it makes our movement very difficult on campus.”
Employment “… felt confined within very limited spaces, such as their homes, neighborhoods, and workplaces (if they worked outside the home)"
Physical activity “I think there needs to be this kind of whole linking between the actual gyms and then the [health professionals] that are looking after them outside of the gyms … …”
Shopping and leisure activity “I want to spent more time on shopping and I am forced to quickly shop and leave because whoever I am with wants to go. I want my freedom.”
Travel Truth be told, the town wasn’t adapted either, so that I could go out[…] As long as I was isolated at home, I was being torn all the time by this idea.”
Socio-cultural and religious participation “I had to be carried into the church like a sick person due to the slippery tiles and the huge stairway with no rails. I felt very embarrassed given that I was one of the many clergymen invited.”
“Due to lack of universal access, they are not getting the opportunity to go for ‘a night out’ or for ‘dating’.”
Safety and health “I nearly lost my life on my way to write an exam. When I got to this split mental drain cover, the front tire of my wheelchair got stuck in there and I lost my balance and fell out of my wheelchair.”