Enhancing nonformal caregiver capacity in rural areas through community educational interventions

Dear Editor,

We read with enthusiasm the article by Vélez-López et al., ¹ “Educational community intervention with nonformal caregivers in a rural population to improve knowledge and resources related to palliative care: Study protocol,” which has been recently published in Palliative Care and Social Practice. This study highlights the urgent need to enhance the capacity of informal caregivers in rural areas through community-based educational interventions and the urgency of ensuring equitable access to palliative care services amid geographical challenges and limited resources.

First, we appreciate the quasi-experimental methodology with a pretest–posttest design employed by the authors. This approach allows for evaluating the impact on caregivers’ knowledge and quality of life after the intervention. It serves as a model that can be replicated in other rural contexts. However, we wish to emphasize that the success of implementing similar programs is greatly influenced by cultural sensitivity, the availability of digital infrastructure (e.g., online streaming for caregivers who cannot attend in person), and cross-sectoral engagement, including civil society organizations. ²

Second, this study’s key strength is its use of validated instruments such as the Zarit Scale, EuroQol-5D, PaCKS, and Goldberg Anxiety Scale. However, we encourage future authors and researchers to complement quantitative assessments with qualitative approaches, such as in-depth interviews or focus groups, to explore caregivers’ subjective experiences, emotional challenges, and spiritual needs, which are often hidden behind the numbers. ³

Third, the proposed caregiver school initiative is highly worthy of widespread adoption. This model empowers families in patient care and builds essential social support networks to prevent caregiver burnout and enhance social cohesion in rural communities. Collaborative efforts between healthcare workers, local governments, and communities can strengthen the sustainability of such interventions.^4,5

In conclusion, we fully support the implementation of community education interventions for informal caregivers as an essential pillar of inclusive and equitable palliative care. Further studies using a mixed-methods approach are urgently needed to ensure that future policies and practices truly address the needs of patients and families from diverse backgrounds.

Isnaria Rizki Hayati
Department of Guidance and Counselling,
Universitas Riau, Pekanbaru, Indonesia

Rikas Saputra
Department of Islamic Guidance and Counselling,
Universitas Islam Negeri Raden Fatah Palembang,
Indonesia

Yenni Lidyawati
Department of Indonesian Language
and Literature Education, Universitas
Sriwijaya, Palembang, Indonesia