Abstract
Background and Aims
Childhood cancer survival rates in sub-Saharan Africa remain low due to high treatment costs, inadequate pediatric oncology infrastructure, sociocultural barriers, and low awareness. Faraja Cancer Support Trust provides financial assistance to indigent patients requiring chemotherapy and radiotherapy through a dedicated childhood cancer fund. This study aims at examining the financial burden of treatment for pediatric neuro-oncology patients seeking financial support from a cancer charity.
Methods
A retrospective desk review cost analysis of treatment and financial data of neuro-oncology pediatric patients who applied for financial support from a cancer charity.
Results
Thirteen pediatric patients with neurological tumors applied for financial support during the study period. Of these, 61% had brain tumors, with 50% diagnosed with medulloblastoma. The age range was 3–18 years (mean: 10.6 years). All patients received radiotherapy and or chemotherapy. 87% underwent neurosurgical intervention. The total cost of treatment for these patients was USD 56,000 (KES 7,274,175). The Social Health Insurance Fund covered 43% (approximately USD 24,135), leaving a significant financial gap. Patients fundraised or borrowed money to cover part of the cost and Faraja supported the remaining costs. At the 12 months follow- up 92% of the patients that were supported patients completed their treatment and are doing well.
Conclusions
The cost of treating childhood cancer remains prohibitive even with social health insurance. Patients and families are forced to incur substantial out-of-pocket expenses or seek help from cancer charities. Financial barriers contribute to treatment abandonment, reinforcing the critical role of organizations like Faraja Cancer Support Trust in bridging gaps in care. These findings align with global studies on the financial challenges of pediatric oncology treatment in low-resource settings.