Full text
PDFSelected References
These references are in PubMed. This may not be the complete list of references from this article.
- Abbott J., Dodd M., Bilton D., Webb A. K. Treatment compliance in adults with cystic fibrosis. Thorax. 1994 Feb;49(2):115–120. doi: 10.1136/thx.49.2.115. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Abbott J., Dodd M., Webb A. K. Different perceptions of disease severity and self care between patients with cystic fibrosis, their close companions, and physician. Thorax. 1995 Jul;50(7):794–796. doi: 10.1136/thx.50.7.794. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Bergner M., Bobbitt R. A., Carter W. B., Gilson B. S. The Sickness Impact Profile: development and final revision of a health status measure. Med Care. 1981 Aug;19(8):787–805. doi: 10.1097/00005650-198108000-00001. [DOI] [PubMed] [Google Scholar]
- Blair C., Cull A., Freeman C. P. Psychosocial functioning of young adults with cystic fibrosis and their families. Thorax. 1994 Aug;49(8):798–802. doi: 10.1136/thx.49.8.798. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Busschbach J. J., Horikx P. E., van den Bosch J. M., Brutel de la Rivière A., de Charro F. T. Measuring the quality of life before and after bilateral lung transplantation in patients with cystic fibrosis. Chest. 1994 Mar;105(3):911–917. doi: 10.1378/chest.105.3.911. [DOI] [PubMed] [Google Scholar]
- Caine N., Sharples L. D., Smyth R., Scott J., Hathaway T., Higenbottam T. W., Wallwork J. Survival and quality of life of cystic fibrosis patients before and after heart-lung transplantation. Transplant Proc. 1991 Feb;23(1 Pt 2):1203–1204. [PubMed] [Google Scholar]
- Congleton J., Hodson M. E., Duncan-Skingle F. Quality of life in adults with cystic fibrosis. Thorax. 1996 Sep;51(9):936–940. doi: 10.1136/thx.51.9.936. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Dennis C., Caine N., Sharples L., Smyth R., Higenbottam T., Stewart S., Wreghitt T., Large S., Wells F. C., Wallwork J. Heart-lung transplantation for end-stage respiratory disease in patients with cystic fibrosis at Papworth Hospital. J Heart Lung Transplant. 1993 Nov-Dec;12(6 Pt 1):893–902. [PubMed] [Google Scholar]
- Eigen H., Clark N. M., Wolle J. M. NHLBI workshop summary. Clinical-behavioral aspects of cystic fibrosis: directions for future research. Am Rev Respir Dis. 1987 Dec;136(6):1509–1513. doi: 10.1164/ajrccm/136.6.1509. [DOI] [PubMed] [Google Scholar]
- Grieco A., Long C. J. Investigation of the Karnofsky Performance Status as a measure of quality of life. Health Psychol. 1984;3(2):129–142. doi: 10.1037//0278-6133.3.2.129. [DOI] [PubMed] [Google Scholar]
- Guyatt G. H., Berman L. B., Townsend M., Pugsley S. O., Chambers L. W. A measure of quality of life for clinical trials in chronic lung disease. Thorax. 1987 Oct;42(10):773–778. doi: 10.1136/thx.42.10.773. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Heijerman H. G., van Rossem R. N., Bakker W. Effect of rhDNase on lung function and quality of life in adult cystic fibrosis patients. Neth J Med. 1995 Jun;46(6):293–297. doi: 10.1016/0300-2977(95)00022-f. [DOI] [PubMed] [Google Scholar]
- Jaeschke R., Singer J., Guyatt G. H. Measurement of health status. Ascertaining the minimal clinically important difference. Control Clin Trials. 1989 Dec;10(4):407–415. doi: 10.1016/0197-2456(89)90005-6. [DOI] [PubMed] [Google Scholar]
- Jones P. W. Issues concerning health-related quality of life in COPD. Chest. 1995 May;107(5 Suppl):187S–193S. doi: 10.1378/chest.107.5_supplement.187s. [DOI] [PubMed] [Google Scholar]
- Jones P. W., Quirk F. H., Baveystock C. M., Littlejohns P. A self-complete measure of health status for chronic airflow limitation. The St. George's Respiratory Questionnaire. Am Rev Respir Dis. 1992 Jun;145(6):1321–1327. doi: 10.1164/ajrccm/145.6.1321. [DOI] [PubMed] [Google Scholar]
- Juniper E. F., Guyatt G. H., Epstein R. S., Ferrie P. J., Jaeschke R., Hiller T. K. Evaluation of impairment of health related quality of life in asthma: development of a questionnaire for use in clinical trials. Thorax. 1992 Feb;47(2):76–83. doi: 10.1136/thx.47.2.76. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Kaplan R. M., Anderson J. P., Wu A. W., Mathews W. C., Kozin F., Orenstein D. The Quality of Well-being Scale. Applications in AIDS, cystic fibrosis, and arthritis. Med Care. 1989 Mar;27(3 Suppl):S27–S43. doi: 10.1097/00005650-198903001-00003. [DOI] [PubMed] [Google Scholar]
- Orenstein D. M., Kaplan R. M. Measuring the quality of well-being in cystic fibrosis and lung transplantation. The importance of the area under the curve. Chest. 1991 Oct;100(4):1016–1018. doi: 10.1378/chest.100.4.1016. [DOI] [PubMed] [Google Scholar]
- Orenstein D. M., Nixon P. A., Ross E. A., Kaplan R. M. The quality of well-being in cystic fibrosis. Chest. 1989 Feb;95(2):344–347. doi: 10.1378/chest.95.2.344. [DOI] [PubMed] [Google Scholar]
- Orenstein D. M., Pattishall E. N., Nixon P. A., Ross E. A., Kaplan R. M. Quality of well-being before and after antibiotic treatment of pulmonary exacerbation in patients with cystic fibrosis. Chest. 1990 Nov;98(5):1081–1084. doi: 10.1378/chest.98.5.1081. [DOI] [PubMed] [Google Scholar]
- Shepherd S. L., Hovell M. F., Slymen D. J., Harwood I. R., Hofstetter C. R., Granger L. E., Kaplan R. M. Functional status as an overall measure of health in adults with cystic fibrosis: further validation of a generic health measure. J Clin Epidemiol. 1992 Feb;45(2):117–125. doi: 10.1016/0895-4356(92)90004-7. [DOI] [PubMed] [Google Scholar]
- Torrance G. W. Measurement of health state utilities for economic appraisal. J Health Econ. 1986 Mar;5(1):1–30. doi: 10.1016/0167-6296(86)90020-2. [DOI] [PubMed] [Google Scholar]
- Ware J. E., Jr, Sherbourne C. D. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992 Jun;30(6):473–483. [PubMed] [Google Scholar]