Skip to main content
Wiley Open Access Collection logoLink to Wiley Open Access Collection
. 2026 Apr 15;59(8):1713–1723. doi: 10.1002/eat.70109

Experiencing Extreme Hunger in Anorexia Nervosa Recovery: A Qualitative Analysis of Reddit Narratives

Léonie Langanay 1, Charlotte Meric 1, Margot Trimbur 1,2,3, Joël Charbit 1, Maxime Bubrovszky 1,3,4, Marion Hendrickx 5, Antoine Lamer 1,3,✉
PMCID: PMC13446243  PMID: 41983301

ABSTRACT

Objective

Recovery from anorexia nervosa involves psychological and social adjustments that extend beyond weight restoration. Online forums increasingly serve as spaces where recovery experiences are openly shared, including accounts of “extreme hunger” during refeeding—a phenomenon that has not been reported in the clinical literature. This study explores how extreme hunger is experienced in original posts shared within an online forum dedicated to anorexia nervosa recovery.

Method

Using the Reddit API, 987 analyzable posts from r/AnorexiaRecovery published between July 25, 2023, and January 4, 2024, were collected. An initial exploratory review identified extreme hunger as a recurrent topic warranting focused investigation. Posts explicitly referring to it (n = 92; 9.3%) were analyzed using reflexive thematic analysis. Coding was conducted iteratively through collaborative review, with codes refined, grouped into subthemes, and synthesized into overarching themes.

Results

Three interconnected themes characterized experiences of extreme hunger. Participants reported (1) “anxiety over its perceived abnormality,” worrying that honoring it indicated binge eating or the development of binge eating disorder. They also described (2) “extreme hunger as a threat to recovery,” as it could lead to significant distress, thoughts of suicide, renewed food restriction, and relapse. Finally, users highlighted (3) “a perceived lack of guidance for its management,” often turning to online content for answers in the absence of professional advice.

Discussion

Extreme hunger emerged as a misunderstood and destabilizing experience during anorexia nervosa recovery. Greater clinical recognition may improve recovery support. Further research is needed to clarify its prevalence, underlying mechanisms, and clinical significance.

Keywords: anorexia nervosa, extreme hunger, online forum, qualitative research, recovery, refeeding, social media, thematic analysis

Summary

  • Some individuals recovering from anorexia nervosa describe experiencing “extreme hunger,” an intense and unusual hunger that can feel difficult to satisfy. Although discussed within online recovery communities, it has not yet been studied in scientific research. In this study, we analyzed 92 posts from a Reddit community dedicated to anorexia recovery to explore what people share about extreme hunger.

  • Many users expressed anxiety about whether their hunger was normal. Some worried that “honoring” their hunger meant they were binge eating or developing binge eating disorder. They often searched for reassurance that extreme hunger was a common part of recovery.

  • Users also described how extreme hunger could threaten their recovery. Rapid weight gain frequently led to significant emotional distress and, in some cases, thoughts of suicide. These experiences could sometimes trigger renewed food restriction and relapse.

  • Many users felt they lacked guidance on how to manage extreme hunger. In the absence of professional advice addressing their concerns, some turned to online content that did not always meet their needs. These findings highlight the need for scientific research on extreme hunger and for clear evidence‐based information to support both patients and clinicians during recovery.

1. Introduction

Eating disorders (ED) are severe psychiatric conditions associated with profound physical and psychological complications, functional impairments, and reduced quality of life (Attia and Walsh 2025). Among these disorders, anorexia nervosa is characterized by persistent restriction of energy intake leading to significantly low weight, an intense fear of gaining weight, and either a disturbance in body image or a persistent lack of recognition of the seriousness of the current underweight status (American Psychiatric Association 2022). Low body weight results primarily from dietary restriction and excessive physical activity, though some individuals also experience binge eating accompanied by compensatory behaviors. Anorexia nervosa comprises two subtypes: restrictive type and binge‐eating/purging type (American Psychiatric Association 2022). The prognosis remains poor, with fewer than half achieving full recovery and many experiencing relapse or chronicity (Solmi et al. 2024).

Weight restoration and nutritional rehabilitation are essential for reducing immediate health risks but represent only one dimension of anorexia nervosa recovery (Kenny et al. 2020; Kenny and Lewis 2023). Recovery is increasingly recognized as a multidimensional process involving physical, behavioral, and cognitive adjustments extending beyond symptom remission (Bardone‐Cone et al. 2010, 2019). Physical recovery may occur before psychological recovery, creating vulnerabilities as individuals can appear medically stable despite ongoing cognitive difficulties (Bardone‐Cone et al. 2010). Recovery is further complicated by stigma, shame, financial constraints, and restricted access to specialized services (Kazdin et al. 2017), often leaving individuals with insufficient professional support and increasing reliance on alternative guidance sources.

In this context, social media platforms have become important spaces for sharing recovery experiences and seeking peer support (Park et al. 2022). While research documents potential harms—including pro‐ED content exposure, thin ideal glorification, and triggering comparisons (Borzekowski et al. 2010; Feldhege et al. 2021; Sidani et al. 2016)—these platforms also offer benefits. Pseudonymous, peer‐driven communities such as Reddit provide access to spontaneous, unsolicited accounts that can reveal experiential aspects of ED recovery that are often underexplored in researcher‐directed studies (Bohrer et al. 2020; Hower et al. 2022; Kenny et al. 2020). Previous studies drawing on online material related to ED recovery have primarily focused on overarching recovery narratives and psychosocial dimensions; however, important experiential dimensions may remain underexplored.

Among them, specific physiological features of the refeeding process—including hunger and satiety—have received little attention in research drawing on patient‐generated discourse. Historical evidence from the Minnesota Starvation Experiment provides a useful reference point: healthy male volunteers subjected to 6 months of semi‐starvation exhibited marked hyperphagia during refeeding, persisting for months beyond weight restoration and partly driven by the magnitude of prior energy deficit and losses in fat and fat‐free mass, suggesting that heightened post‐restriction appetite may reflect an adaptive homeostatic response (Keys et al. 1950; Dulloo 2021).

However, the applicability of these findings to anorexia nervosa recovery remains uncertain. Unlike healthy volunteers, individuals with anorexia nervosa present with intense fear of weight gain, body image disturbance, and prolonged malnutrition that may alter appetite regulation through multiple pathways: delayed gastric emptying, bloating, nausea, epigastric discomfort (Westmoreland et al. 2016), disrupted interoceptive awareness, altered taste perception (Kinnaird et al. 2018; Phillipou et al. 2022), and dysregulation of reward‐related neural circuits and appetite‐regulating hormones (Monteleone et al. 2018). The few clinical studies examining hunger and satiety during refeeding report inconsistent findings—some describing reduced hunger relative to controls (Andersen et al. 1996; Peterson et al. 2016), others a modest increase following weight gain (Klastrup et al. 2020)—highlighting significant gaps in understanding how hunger is subjectively experienced during anorexia nervosa recovery.

This study addresses this gap by examining how individuals recovering from anorexia nervosa experience “extreme hunger” within an online peer‐support community. By centering participant voices and lived experiences, this work aims to inform more responsive approaches to supporting individuals through the refeeding phase of anorexia nervosa recovery.

2. Method

2.1. Data Source

Reddit is a widely used social media platform organized into specialized communities, known as subreddits, each focused on specific topics (Proferes et al. 2021). The platform supports both public discussion and pseudonymity, as users can post under pseudonyms or “throwaway” accounts—temporary accounts created for sharing particularly sensitive content (Norman Adams 2024). This combination makes Reddit a suitable space for discussing stigmatized health conditions, including EDs (Park et al. 2022). Reddit posts are typically longer and more narratively oriented than content on platforms such as Instagram or X, offering richer material for thematic analysis. The subreddit r/AnorexiaRecovery was selected for its explicit focus on supporting individuals recovering from anorexia nervosa, with community guidelines emphasizing peer support, recovery‐oriented content, and discouragement of pro‐ED material.

2.2. Data Collection

Using the Reddit API, we extracted 999 original posts published on r/AnorexiaRecovery between July 25, 2023, and January 4, 2024. We focused exclusively on original posts (rather than comments) to center the analysis on users' self‐initiated recovery narratives. From the initial corpus, 12 posts were excluded, including seven calls for research participation, two advertisements, and three duplicates. This resulted in a corpus of 987 analyzable posts (Figure 1).

FIGURE 1.

FIGURE 1

Flowchart of post selection for thematic analysis.

2.3. Identification of “Extreme Hunger” as a Research Focus

The initial research aim was exploratory, seeking to identify salient concerns discussed by individuals recovering from anorexia nervosa that may be underrecognized clinically. The research team conducted a preliminary review of the first 100 posts in chronological order. During this process, “extreme hunger” emerged as a recurrent topic, frequently associated with expressions of distress, confusion, and requests for guidance. Given its apparent prominence and the limited attention it has received in the clinical literature, we subsequently focused the analysis on posts explicitly referencing “extreme hunger.”

2.4. Data Selection for Analysis

We systematically reviewed the 987 posts to identify all posts explicitly mentioning “extreme hunger,” “EH,” or “eh” in either the post title or body. This search was conducted manually, as automated text searches may overlook misspellings (e.g., “extremem hunger”), lack sensitivity to contextual variations (e.g., “extreme mental hunger”), and inadvertently capture irrelevant terms, such as “eh” used as an interjection. We acknowledge that individuals may have described similar experiences using alternative terminology (e.g., “insatiable hunger,” “always hungry”), and such narratives were not captured. We focused on the specific term “extreme hunger” because: it appeared to function as a shared community concept and enabled a more coherent and focused analysis.

Through this process, we identified 92 posts (9.3% of the total corpus) explicitly referencing “extreme hunger,” authored by distinct individuals. The median post length was 103 words (Q1–Q3: 56–167). These posts constituted the corpus for reflexive thematic analysis. The remaining 895 posts (90.7%) covered a range of recovery‐related topics, including relationships, food, and exercise—areas that have already been well documented in prior research on social media platforms (Moessner et al. 2018).

2.5. Analytic Approach

We conducted reflexive thematic analysis as described by Braun and Clarke (2006, 2019), adopting an inductive, data‐driven approach. Themes were conceptualized as interpretative constructions shaped by researchers' engagement with the data, rather than as objective entities emerging passively from it. L.L., a public health physician, and C.M., a clinical psychiatrist, independently conducted the initial coding before meeting to compare codes and develop a preliminary coding framework. L.L. then applied and refined this framework across the corpus. Codes were iteratively grouped into subthemes, which were further refined and organized into coherent overarching themes. The coding process continued until thematic coverage was reached. Senior researchers (M.T., J.C., M.B., M.H., and A.L.) with expertise in qualitative methodology and eating disorder care provided ongoing guidance. Throughout the process, the research team engaged in reflexive discussions to ensure that themes remained grounded in participants' narratives.

2.6. Researcher Positionality

The two primary coders (L.L. and C.M.) are early‐career researchers who gained exposure to ED inpatient and outpatient services. These experiences informed their familiarity with clinical presentations, language, and distress associated with anorexia nervosa recovery and motivated their interest in exploring underexamined recovery experiences.

2.7. Ethical Considerations

This study analyzed publicly available data from an open access subreddit. In accordance with French research ethics standards (MR‐004 methodology; Délibération n° 2018–155 du 3 mai 2018), analysis of publicly available, non‐identifiable online content for research purposes does not require formal ethics committee approval.

We adhered to established ethical guidelines for internet‐mediated research (British Psychological Society 2021). To protect participant privacy and prevent traceability, all quoted excerpts were carefully paraphrased while preserving semantic meaning, and no usernames, dates, or other identifying information were reported (Norman Adams 2024).

3. Results

Thematic analysis of the 92 posts referring to extreme hunger during anorexia nervosa recovery identified three overarching themes: (1) anxiety over the perceived abnormality of extreme hunger, (2) extreme hunger as a threat to recovery, and (3) perceived lack of guidance for managing extreme hunger (Figure 2). The full hierarchy of overarching themes, subthemes and codes is presented in Appendix S1.

FIGURE 2.

FIGURE 2

Thematic map of extreme hunger during anorexia nervosa recovery.

3.1. Theme 1. Anxiety Over the Perceived Abnormality of Extreme Hunger

Theme 1 captures participants' pervasive worry about the perceived abnormality of extreme hunger during recovery. It encompasses uncertainty regarding the nature of this hunger, apprehension about responding to it inappropriately, and fear of its potential pathological significance. Three subthemes illustrate distinct facets of this anxiety: (1.1) uncertainty regarding the emergence of unusual hunger during recovery; (1.2) concern about exceeding “normal” recovery intake while honoring extreme hunger; and (1.3) fear about transitioning from “normal” recovery to another pathology.

3.1.1. Uncertainty Regarding the Emergence of Unusual Hunger During Recovery

This subtheme refers to the worry participants experienced regarding the perceived excess of hunger during anorexia nervosa recovery, as well as the fear that this hunger was primarily “mental” rather than physiological.

Participants described extreme hunger as an unusually intense form of hunger emerging during recovery. The intensity of this experience itself was a source of anxiety, as illustrated by one participant: “Really struggling right now. I'm dealing with intense anxiety around my extreme hunger. I'm terrified of the hunger itself. It's not about gaining weight, I think I can come to terms with that. It's the feeling of never being satisfied and not knowing when the next wave of hunger will hit. It's genuinely petrifying. I'm scared to leave the house or do anything.”

Some participants reported uncertainty in distinguishing between physiological hunger and “mental” hunger, questioning whether their experience reflected genuine physiological need or mental preoccupation with food. Some described their hunger as predominantly “physical,” characterized by somatic symptoms resembling hypoglycemia: “I just started full recovery on my own 3 days ago. I have extreme hunger of course, but it's mainly physical so my stomach has been constantly screaming and growling if I go more than 3 hours without eating. I also feel sick if I don't follow my eating schedule or honor my extreme hunger, same symptoms as if I was restricting.” These symptoms were reported to occur despite the ingestion of quantities of food perceived as sufficient. For these participants, such symptoms suggested that their body was signaling a need for nourishment and provided validation that this hunger was “real.”

Other participants described their hunger as predominantly “mental”: “My stomach quite literally feels like a furnace and I can't seem to get full no matter what I eat. I just eat and eat until I am literally so bloated, but I swear I'm still so mentally hungry.” Despite signs indicating gastric fullness, satiety remained difficult to achieve, generating anxiety about whether their situation was normal. The perception that hunger was more “mental” than “physical” was often accompanied by feelings of guilt, as if hunger lacking clear physical cues were less legitimate: “I heard that we shouldn't eat when we're not hungry and to not emotionally eat, which I do agree with but it makes me feel guilty when I eat when I'm not hungry.” Some participants expressed preoccupation that hunger might reflect emotional eating or eating for pleasure. Taken together, these accounts reflect a broader fear of eating in the absence of perceived physiological need, implying that “mental” hunger should not be honored in the same way as “physical” hunger.

3.1.2. Concern About Exceeding “Normal” Recovery Intake While Honoring Extreme Hunger

This subtheme refers to participants' concern about the large quantities and high‐calorie foods they felt compelled to eat in response to extreme hunger, which created a sense of dysregulated fullness cues. This perceived excess was often accompanied by guilt, shame, and fear of losing control.

Many participants reported difficulty achieving satiety despite large food intake: “I just ate a huge breakfast and I was still hungry afterward. It feels like my satiety signals are completely out of sync.” This apparent paradox, between large food intake and a persistent need to eat, generated concern and confusion. They also noted a strong attraction for energy‐dense, highly palatable foods: “I think I have extreme hunger which I mainly honor at night, which results in staying up till 2 a.m. eating packets of cookies, bags of chips, and so on every night. Will this go away or have I lost all of my self‐control? I am actually eating what I want now, but what I want is highly processed and calorie‐dense foods.” The types of foods consumed (e.g., processed or sugary foods) added a further layer of distress—guilt, shame, and self‐disgust—to the perception of overeating. Given the quantities and types of foods consumed, some participants reported a fear of losing control, leading them to question whether their eating still reflected genuine recovery‐related needs or had shifted toward a more pathological pattern.

3.1.3. Fear About Transitioning From “Normal” Recovery to Another Pathology

This subtheme captures participants' fear that persistent extreme hunger might signal a transition from to another eating disorder. The continued intensity of extreme hunger, even after weight restoration, generated uncertainty about its normalcy.

Some participants attempted to normalize extreme hunger by framing it as an expected physiological response to prior restriction, serving to restore depleted energy reserves: “It's as if my body is still preparing for a famine, even though food has been regularly coming in for months now and I've gained a significant amount of weight. I'm trying to trust my body, I know it still wants me to gain weight, and I know that the extreme hunger won't stop until I reach my set point”. However, as weight restoration progressed, many reported persistent extreme hunger, leading to uncertainty about its normality: “My extreme hunger still feels unbelievably strong, I'm probably eating around 5000 calories a day, mostly from highly processed foods, and I'm worried it won't ever stop, especially since I'm basically weight‐restored now.” The persistence of extreme hunger despite markers of physical recovery—such as weight restoration, return of menstruation, or normalization of biological markers—generated doubts regarding its expected course.

Participants also expressed fear that persistent extreme hunger might signal the onset of binge eating disorder: “I'm just about at weight restoration, and I'm extremely worried that I'm developing binge eating disorder. Many people say this will pass and that some overshoot is necessary, but I have this sinking feeling that I'm really just transferring to another eating disorder.” Some described fear of having shifted from “normal” recovery process to another ED, where honoring hunger was reinterpreted as binge eating. Some participants attempted to reassure themselves by adopting the belief that “binges don't exist in recovery.” Others emphasized that their eating episodes were driven by genuine hunger rather than emotions or compulsions: “I then realized that I am not binging due to emotions or compulsion. I eat loads due to feeling genuinely, ravenously hungry (extreme hunger).” Nonetheless, these accounts were embedded within a broader need for self‐reassurance, confirming that their experiences were expected during recovery and did not indicate a shift to another eating disorder.

Theme 1 highlights participants' persistent uncertainty and fears regarding whether their experience of extreme hunger was a normal part of recovery. They struggled to distinguish between “physical” and “mental” hunger, worried about losing control over eating, and feared developing another eating disorder.

3.2. Theme 2. Extreme Hunger as a Threat to Recovery

Theme 2 captures how extreme hunger threatened to derail participants' recovery. For many, its onset marked a turning point, accelerating weight gain beyond expectations and, in some cases, precipitating a return to restrictive behaviors. Three subthemes structure this theme: (2.1) Extreme hunger accelerating physical recovery beyond perceived legitimacy, (2.2) Extreme hunger jeopardizing the continuation of recovery, and (2.3) extreme hunger triggering relapse into restriction.

3.2.1. Extreme Hunger Accelerating Physical Recovery Beyond Perceived Legitimacy

This subtheme refers to the rapid acceleration of physical recovery driven by extreme hunger, often exceeding participants' expectations and outpacing psychological adaptation. This mismatch created barriers to the continuation of recovery.

For many participants, the onset of extreme hunger marked a sudden rupture in their recovery, described in terms such as “extreme hunger hit me” or “extreme hunger kicked in.” Rather than a gradual progression, extreme hunger functioned as a turning point: “I've been consuming an absurd amount of food and sugar each day due to extreme hunger. As a result, my weight has shot up way faster than I thought was possible in the past few days alone.” The large quantities consumed were reported to trigger rapid bodily changes, exceeding participants' expectations for the pace of physical recovery.

For some participants, the physical changes associated with extreme hunger generated a sense of no longer being “sick enough” to deserve or access treatment, creating a barrier to seeking the very support they needed. Some participants explicitly questioned whether they were still entitled to professional support following weight gain: “I'm wondering if a dietitian could still help me even though I'm technically weight restored. I've been trying to recover on my own, but I feel like I've been overeating a lot, likely because of extreme hunger. I've gained a noticeable amount of weight in just these two weeks, and it's making me feel like a complete fraud. I'm really afraid that the family therapist won't take me seriously.” This account illustrates a double bind: extreme hunger drives rapid weight gain, which in turn undermines the participant's perceived right to seek help, at a moment when distress and need for support are at their peak. Underlying this pattern was a concern that clinicians would perceive the eating disorder as less valid or less severe following weight gain. Participants feared that the visible physical markers of recovery, rather than the ongoing psychological and behavioral difficulties, would determine how their condition was assessed. Weight gain from honoring extreme hunger was thus experienced not only as a source of personal distress but as a potential threat to professional recognition of their illness, and consequently to their access to care.

3.2.2. Extreme Hunger Jeopardizing the Continuation of Recovery

This subtheme refers to the ways in which extreme hunger threatened the continuation of recovery—through severe psychological burden and, in some cases, suicidal ideation—leading participants to question their ability or willingness to continue.

Weight gain driven by extreme hunger was often experienced as too rapid and uncontrolled: “Her physical health has improved a lot. In recent weeks, she has recovered enough to enter the stage of extreme hunger. The lack of control over her eating and the resulting weight gain is destroying her emotionally.” Such accounts highlight a perceived divergence between physical and psychological recovery, where improvements in nutritional status were accompanied by worsening emotional well‐being.

In some cases, the burden associated with extreme hunger extended to acute suicidal risk: “Basically, extreme hunger is making me feel suicidal right now. Right now I just feel broken, and I hate it. I don't know how much longer I can handle feeling like this. If this doesn't ease up soon, I'm scared I might do something drastic. I know these thoughts come from the disorder and that they're unhealthy, but right now it feels like I'm not strong enough to get through this.” As illustrated by this account, extreme hunger was experienced as overwhelming to the point of compromising individuals' perceived ability to cope.

Some participants explicitly questioned whether continuing recovery was feasible: “Extreme hunger is overwhelming. I feel physically unwell: full yet still hungry, distressed, depressed, and bloated. I don't know if I can continue. I feel trapped: I cannot return to my previous behaviors because I'm too advanced in recovery, yet any sign of insufficient intake seems to worsen my current state.” The perceived impossibility of both continuing and reverting—creating a “no way out” situation—contributed to questioning the purpose and feasibility of recovery.

3.2.3. Extreme Hunger Triggering Relapse Into Restriction

This subtheme refers to the ways in which extreme hunger, when experienced as overwhelming and unmanageable, could precipitate a return to restrictive eating behaviors.

In some cases, participants described extreme hunger as becoming so difficult to tolerate that it triggered urges to restrict: “Every night after work, I feel unable to sleep until I have eaten several very calorie‐dense mug cakes, and I wake up feeling unwell and overwhelmed by the urge to restrict again. I know that restricting makes things worse and that resisting these urges can intensify them, but I feel so ashamed and distressed that it is difficult to do anything else.” Even when participants recognized that restriction was counterproductive, the need to regain control overrode this awareness.

Some participants described a return to restrictive behaviors as a strategy to cope with extreme hunger: “I had extreme hunger for about one month. All of a sudden one day I thought I'm going to train my brain to stop craving unnecessary foods. And it worked. Ever since then I've been only eating 3 meals and lost weight. I'm confused and a little scared. Feels wrong but also right. But I finally feel in control.” Restriction was experienced as temporarily containing the overwhelming nature of extreme hunger, enabling a perceived restoration of control, though with marked ambivalence.

Theme 2 highlights how extreme hunger can threaten the sustainability of recovery: by accelerating physical changes beyond psychological readiness, by generating sufficient distress to jeopardize the continuation of recovery, and by reactivating restrictive behaviors.

3.3. Theme 3. Perceived Lack of Guidance for Managing Extreme Hunger

Theme 3 captures participants' reported unmet need for support in navigating extreme hunger during recovery. Across accounts, participants described difficulties obtaining actionable, consistent, and sufficiently detailed guidance, as well as a broader sense that their experience might not be recognized or taken seriously by professionals. Two subthemes structure this theme: (3.1) insufficient and contradictory guidance on extreme hunger; and (3.2) active search for information on extreme hunger.

3.3.1. Insufficient and Contradictory Guidance on Extreme Hunger

This subtheme captures participants' frustration arising from insufficient, unclear, or contradictory guidance from both healthcare professionals and online sources, leaving them uncertain about how to respond to their hunger.

Some participants reported that their concerns about extreme hunger were not adequately addressed by healthcare professionals. Rather than receiving detailed, individualized guidance, they described vague recommendations with limited explanation. One participant recounted: “I'm doing outpatient recovery and weight restoration. I told the eating disorder psychologist I saw for the first time today about how I'm always hungry as soon as I eat. I asked her what I'm supposed to do with the hunger, she told me to distract myself and gave me a booklet about it.” This account highlights disappointment with a generic strategy (distraction) perceived as insufficient to address the intensity of extreme hunger.

In the absence of adequate professional guidance, many participants turned to online peer communities for information. For some, online communities represented the primary or only accessible source of information about recovery. However, this often amplified confusion rather than resolving it, due to contradictory advice: “Everywhere I look online I'm getting mixed advice about recovery. People telling me to honor all my hunger, physical and mental, regardless of how much I am eating. But then other people tell me that I should be careful and not overdo it. Then I get told that honoring your extreme hunger may lead to binging and other destructive eating disorder habits. I also read that honoring your hunger will inevitably end up in a relapse. This is also paired with the phrase all‐in recovery doesn't work.” Without professional guidance to elaborate individualized recommendations, participants were left without a stable framework.

Beyond inconsistency, online content could also be experienced as misleading or distressing. One participant expressed frustration with what they perceived as a lack of authenticity in online narratives: “I wanted to see what your extreme hunger stories are and if I'm actually experiencing it. It's so hard to tell with these recovery influencers claiming to have extreme hunger while barely eating. Ugh I hate our society.” The absence of clear definitions and credible experiences made it difficult for individuals to identify and validate their own experiences.

3.3.2. Active Search for Information and Guidance on Extreme Hunger

This subtheme reflects participants' active search for information and guidance to navigate extreme hunger. Faced with uncertainty and limited clear direction, participants formulated explicit questions and sought both practical strategies and explanatory knowledge.

Many participants sought guidance on whether to honor hunger or adhere to structured eating patterns: “Is going all‐in a good idea? Should I honor all my hunger?” Others questioned how to reconcile hunger cues with structured meal plans, reflecting a desire to determine which framework to prioritize in practice: “Should I stick to a structured meal plan (3 meals + 3 snacks) or keep eating whatever I'm craving?” These accounts point to concrete decision‐making difficulties in day‐to‐day eating and reflect a need for clear, actionable guidance on how to implement recovery in practice.

In addition, participants sought explanatory knowledge to understand extreme hunger: “I'm curious – why does extreme hunger often take a few months to really ‘kick in,’ rather than appearing right after someone begins re‐nourishing? Is there a scientific explanation for this? Are there any podcasts or interviews you've found particularly helpful on this topic?” This search reflects a need for structured, evidence‐based frameworks that could inform how to manage extreme hunger.

Theme 3 highlights that the absence of clear, structured, and consistent guidance leaves participants facing unresolved practical questions about how to manage extreme hunger, leading them to rely on fragmented or contradictory sources without a stable framework to guide their recovery.

4. Discussion

This qualitative analysis of Reddit narratives highlights extreme hunger as a lived experience in anorexia nervosa recovery that has not yet been conceptualized or examined in the scientific literature. Analysis of the corpus revealed three interconnected themes characterizing participants' experiences: (1) anxiety over the perceived abnormality of extreme hunger; (2) extreme hunger as a threat to recovery; and (3) a perceived lack of guidance for its management. By centering participant voices through spontaneous peer‐to‐peer narratives, this study draws attention to an underrecognized aspect of recovery that warrants greater clinical and research attention.

A central finding was participants' profound anxiety regarding the meaning and legitimacy of extreme hunger during anorexia nervosa recovery. Many struggled to determine whether this experience reflected a normative physiological response to prolonged restriction or signaled a pathological shift, such as the emergence of binge eating disorder. However, extreme hunger has not been operationalized or systematically examined as a construct in the scientific literature on anorexia nervosa. As a result, its prevalence, typical course, and clinical significance remain unclear, leaving individuals with little frameworks to interpret their experiences.

An important consideration is whether extreme hunger consistently reflects objectively heightened hunger cues. For individuals recovering from anorexia nervosa, physiologically normative hunger signals may be experienced as extreme, in the context of prior restriction and potential disruptions in interoceptive awareness (Kinnaird et al. 2018; Phillipou et al. 2022). This ambiguity has clinical implications: what participants describe as extreme hunger may, in some cases, reflect the restoration of normative hunger signaling—a process that may feel unfamiliar or overwhelming.

Participants' fears that extreme hunger may signal a transition toward binge eating disorder raise clinically significant questions. A recent meta‐analysis estimated that approximately 42% (95% CI 34%–50%) of individuals initially diagnosed with restrictive anorexia nervosa later develop binge‐eating or purging behaviors (Serra et al. 2022), yet the mechanisms driving this diagnostic transition remain insufficiently understood. Within our corpus, some participants reported prior diagnoses of binge‐eating/purging anorexia nervosa, binge eating disorder, bulimia nervosa, or other specified feeding or eating disorders (OSFED). Although these self‐reported histories could not be verified, their evocation raises questions about whether extreme hunger may be more frequently described among individuals with non‐exclusively restrictive eating disorder presentations, and how it should be clinically interpreted in these contexts. Reports of extreme hunger during anorexia nervosa recovery may reflect different underlying processes, including the persistence or re‐emergence of binge‐eating symptomatology, a trajectory toward binge eating disorder or bulimia nervosa, or alternatively a refeeding‐related physiological response distinct from pathological binge eating. More broadly, the same term “extreme hunger” may be used by patients to describe a range of clinically heterogeneous experiences. This phenomenological ambiguity underscores the need for clear conceptual definitions and clinical frameworks to guide appropriate interventions during recovery.

A central finding of our study was that extreme hunger threatens the sustainability of recovery. While weight gain is already recognized as psychologically challenging in anorexia nervosa (Darcy et al. 2010; Murray et al. 2017), our results highlight the specific contribution of extreme hunger in accelerating the pace of physical changes, often outpacing psychological readiness. This underscores the temporal disconnect between physical and psychological dimensions of recovery (2010, 2019). Rapid weight gain driven by extreme hunger was sometimes associated with participants' perceptions that their recovery was no longer legitimate, resonating with qualitative work showing that perceptions of being “not sick enough” could create barriers to accessing care (Barko and Moorman 2023).

Critically, some participants explicitly reported that extreme hunger was associated with depression and suicidal ideation. This aligns with the “no way out” experience described by Foye et al. (2025), in which participants conveyed a sense of being trapped in the recovery process, with no perceived escape or prospect of improvement. In this context, several participants reported that extreme hunger triggered urges to restrict and, in some cases, a return to restrictive behaviors—sometimes described as providing temporary relief by creating a sense of regained control, yet contributing to a self‐reinforcing cycle of restriction, refeeding, extreme hunger, distress, and relapse. These findings suggest that clinicians should remain attentive to suicidal ideation when patients report extreme hunger, particularly during periods of rapid and uncontrolled weight gain, as this experience may represent a specific window of heightened psychological vulnerability within the recovery process.

Participants reported a lack of clinical guidance on extreme hunger, leaving them uncertain about how to respond. When they discussed extreme hunger with therapists, responses were often described as generic or inadequate. In the absence of clear professional guidance, many turned to online peer communities, where information was sometimes contradictory. This created a dilemma between “honoring” internal hunger cues and adhering to structured meal plans. Since intuitive eating—eating in response to internal hunger and fullness cues (Van Dyke and Drinkwater 2014) – assumes reliable interoceptive signals, its application in anorexia nervosa recovery is complex. Additionally, standard refeeding protocols prioritize weight restoration through structured meal plans, yet some participants experienced hunger that exceeded prescribed amounts. These findings highlight a clinical challenge: patients may be unsure whether to strictly follow the meal plan or respond to their hunger, underscoring the need for guidance on safely navigating extreme hunger during recovery.

Extreme hunger appears to be infrequently or inconsistently addressed in clinical practice. Patients rarely report it spontaneously, possibly due to perceived illegitimacy of their experience, shame, or fear of a new diagnosis categorizing them as engaging in binge‐eating behaviors. Attending to extreme hunger in clinical practice could help identify patients at risk of distress or relapse and inform individualized support.

Several limitations should be noted. Our analysis included 92 posts from a single subreddit over a six‐month period. While this provided valuable qualitative data, the sample size remains modest. Demographic, contextual, and clinical information, including illness severity, fasting duration, recovery stage, meal plan protocols, and treatment status were unavailable, limiting interpretation of how extreme hunger might differ across individuals or recovery phases. Users of r/AnorexiaRecovery may not represent the broader anorexia nervosa population, as participants likely had internet access, English proficiency, and willingness to engage in online recovery communities. Our findings reflect experiences shared within a specific online community with its own cultural norms, shared language, and potentially shared beliefs about recovery. Experiences and interpretations might differ in other contexts, including different online communities, cultural settings, or healthcare systems. Focusing only on posts explicitly mentioning “extreme hunger” may have excluded similar experiences described using other language, potentially biasing the sample toward more engaged community members and it remains unclear whether different, or additional, themes would have emerged if other expressions of extreme hunger had been included in the analysis. Finally, analyzing existing social media lacked the depth that could be achieved through in‐depth qualitative interviews.

This study provides important insights into a largely unrecognized and clinically relevant phenomenon during anorexia nervosa recovery, highlighting substantial gaps in current knowledge. By analyzing 92 spontaneous posts from a peer‐support subreddit dedicated to anorexia recovery, we were able to access rich first‐person narratives of extreme hunger that might not emerge through traditional research methods, such as structured interviews or surveys. The online, pseudonymous context likely reduced social desirability bias, allowing participants to share candid experiences spontaneously with peers rather than with researchers or clinicians. Methodologically, the study benefited from collaboration among researchers with expertise in psychiatry, public health, sociology, and qualitative research, which strengthened analytic rigor and enhanced reflexivity. Using an inductive thematic approach, we were able to identify and characterize a phenomenon that, despite its apparent salience for individuals in recovery, has received surprisingly little attention in the clinical literature.

The present study offers a first qualitative characterization of extreme hunger as experienced during anorexia nervosa recovery, but several research priorities remain to be addressed. A foundational step will be to operationalize extreme hunger as a clinical construct, distinguishing it from normative hunger restoration, binge eating, and other related phenomena, so that it can be studied systematically. Future work should also examine the biological and psychological mechanisms underlying extreme hunger and identify individual‐level factors that may predispose certain patients to experience it, such as illness duration, severity of prior restriction, or co‐occurring binge‐eating symptomatology. At the clinical level, empirical work is needed to evaluate how different refeeding approaches affect the experience and course of extreme hunger, and to develop evidence‐based psychoeducational resources for both patients and clinicians. The perceived loss of clinical legitimacy identified in our data also warrants specific attention: future studies should examine whether weight‐restored individuals disengage from care following rapid weight gain, and whether proactive clinical acknowledgment of extreme hunger can mitigate this risk.

5. Conclusion

This qualitative study of Reddit narratives identifies extreme hunger as a phenomenon that has not yet been addressed in the scientific literature during anorexia nervosa recovery. Analysis revealed three key themes: (1) anxiety regarding the perceived abnormality of extreme hunger, (2) extreme hunger as a threat to recovery, and (3) a perceived lack of guidance for managing extreme hunger. These findings highlight critical gaps in knowledge regarding the refeeding phase. Future research should clarify the phenomenon's definition, determine its prevalence and underlying mechanisms, and develop evidence‐based strategies to help patients and clinicians navigate anorexia nervosa recovery.

Author Contributions

Maxime Bubrovszky: supervision, writing – review and editing. Antoine Lamer: conceptualization, data curation, supervision, writing – review and editing, writing – original draft. Léonie Langanay: data curation, formal analysis, writing – original draft, writing – review and editing. Charlotte Meric: data curation, formal analysis, writing – original draft, writing – review and editing. Joël Charbit: methodology, writing – review and editing. Margot Trimbur: methodology, writing – review and editing. Marion Hendrickx: conceptualization, supervision, writing – review and editing.

6. Lived Experience Involvement Statement

No specific efforts were undertaken to involve persons with lived experience in the study design or execution, or in the preparation of this manuscript.

Funding

The authors have nothing to report.

Conflicts of Interest

The authors declare no conflicts of interest.

Supporting information

APPENDIX S1: Hierarchical organization of themes, sub‐themes, and codes.

EAT-59-1713-s001.xlsx (8.3KB, xlsx)

Acknowledgments

Use of AI was not involved in any component of preparation of this manuscript. Open access publication funding provided by COUPERIN CY26.

Langanay, L. , Meric C., Trimbur M., et al. 2026. “Experiencing Extreme Hunger in Anorexia Nervosa Recovery: A Qualitative Analysis of Reddit Narratives.” International Journal of Eating Disorders 59, no. 8: 1713–1723. 10.1002/eat.70109.

Action Editor: A. Ghaderi

Data Availability Statement

The data that support the findings of this study are available on request from the corresponding author. The data are not publicly available due to privacy or ethical restrictions.

References

  1. American Psychiatric Association . 2022. Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition Text Revision. American Psychiatric Association. [Google Scholar]
  2. Andersen, A. , Stoner S., and Rolls B.. 1996. “Improved Eating Behavior in Eating‐Disordered Inpatients After Treatment: Documentation in a Naturalistic Setting.” International Journal of Eating Disorders 20, no. 4: 397–407. 10.1002/(SICI)1098-108X(199612)20:4<397::AID-EAT7>3.0.CO;2-. [DOI] [PubMed] [Google Scholar]
  3. Attia, E. , and Walsh B. T.. 2025. “Eating Disorders: A Review.” JAMA 333, no. 14: 12–42. 10.1001/jama.2025.0132. [DOI] [PubMed] [Google Scholar]
  4. Bardone‐Cone, A. M. , Alvarez A., Gorlick J., Koller K. A., Thompson K., and Miller A.. 2019. “Longitudinal Follow‐Up of a Comprehensive Operationalization of Eating Disorder Recovery: Concurrent and Predictive Validity.” International Journal of Eating Disorders 52: 1052–1057. 10.1002/eat.23128. [DOI] [PubMed] [Google Scholar]
  5. Bardone‐Cone, A. M. , Harney M. B., Maldonado C. R., et al. 2010. “Defining Recovery From an Eating Disorder: Conceptualization, Validation, and Examination of Psychosocial Functioning and Psychiatric Comorbidity.” Behaviour Research and Therapy 48, no. 3: 194–202. 10.1016/j.brat.2009.11.001. [DOI] [PMC free article] [PubMed] [Google Scholar]
  6. Barko, E. B. , and Moorman S. M.. 2023. “Weighing in: Qualitative Explorations of Weight Restoration as Recovery in Anorexia Nervosa.” Journal of Eating Disorders 11, no. 1: 14. 10.1186/s40337-023-00736-9. [DOI] [PMC free article] [PubMed] [Google Scholar]
  7. Bohrer, B. K. , Foye U., and Jewell T.. 2020. “Recovery as a Process: Exploring Definitions of Recovery in the Context of Eating‐Disorder‐Related Social Media Forums.” International Journal of Eating Disorders 53, no. 8: 1219–1223. 10.1002/eat.23218. [DOI] [PubMed] [Google Scholar]
  8. Borzekowski, D. L. G. , Schenk S., Wilson J. L., and Peebles R.. 2010. “E‐Ana and e‐Mia: A Content Analysis of Pro–Eating Disorder Web Sites.” American Journal of Public Health 100, no. 8: 1526–1534. 10.2105/AJPH.2009.172700. [DOI] [PMC free article] [PubMed] [Google Scholar]
  9. Braun, V. , and Clarke V.. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3, no. 2: 77–101. 10.1191/1478088706qp063oa. [DOI] [Google Scholar]
  10. Braun, V. , and Clarke V.. 2019. “Reflecting on Reflexive Thematic Analysis.” Qualitative Research in Sport, Exercise and Health 11, no. 4: 589–597. 10.1080/2159676X.2019.1628806. [DOI] [Google Scholar]
  11. British Psychological Society . “Ethics Guidelines for Internet‐Mediated Research.” 2021. BPS Research Board. https://www.bps.org.uk/guideline/ethics‐guidelines‐internet‐mediated‐research.
  12. Darcy, A. M. , Katz S., Fitzpatrick K. K., Forsberg S., Utzinger L., and Lock J.. 2010. “All Better? How Former Anorexia Nervosa Patients Define Recovery and Engaged in Treatment.” European Eating Disorders Review 18, no. 4: 260–270. 10.1002/erv.1020. [DOI] [PMC free article] [PubMed] [Google Scholar]
  13. Dulloo, A. G. 2021. “Physiology of Weight Regain: Lessons From the Classic Minnesota Starvation Experiment on Human Body Composition Regulation.” Obesity Reviews 22, no. S2: e13189. 10.1111/obr.13189. [DOI] [PubMed] [Google Scholar]
  14. Feldhege, J. , Moessner M., and Bauer S.. 2021. “Detrimental Effects of Online Pro‐Eating Disorder Communities on Weight Loss and Desired Weight: Longitudinal Observational Study.” Journal of Medical Internet Research 23, no. 10: e27153. 10.2196/27153. [DOI] [PMC free article] [PubMed] [Google Scholar]
  15. Foye, U. , Kakar S., McNamara N., et al. 2025. ““It's the Perfect Storm”: Why Are People With Eating Disorders at Risk of Suicide? A Qualitative Study.” BMC Medicine 23, no. 1: 481. 10.1186/s12916-025-04326-1. [DOI] [PMC free article] [PubMed] [Google Scholar]
  16. Hower, H. , LaMarre A., Bachner‐Melman R., Harrop E. N., McGilley B., and Kenny T. E.. 2022. “Conceptualizing Eating Disorder Recovery Research: Current Perspectives and Future Research Directions.” Journal of Eating Disorders 10, no. 1: 165. 10.1186/s40337-022-00678-8. [DOI] [PMC free article] [PubMed] [Google Scholar]
  17. Kazdin, A. E. , Fitzsimmons‐Craft E. E., and Wilfley D. E.. 2017. “Addressing Critical Gaps in the Treatment of Eating Disorders.” International Journal of Eating Disorders 50, no. 3: 170–189. 10.1002/eat.22670. [DOI] [PMC free article] [PubMed] [Google Scholar]
  18. Kenny, T. E. , Boyle S. L., and Lewis S. P.. 2020. “#Recovery: Understanding Recovery From the Lens of Recovery‐Focused Blogs Posted by Individuals With Lived Experience.” International Journal of Eating Disorders 53, no. 8: 1234–1243. 10.1002/eat.23221. [DOI] [PubMed] [Google Scholar]
  19. Kenny, T. E. , and Lewis S. P.. 2023. “More Than an Outcome: A Person‐Centered, Ecological Framework for Eating Disorder Recovery.” Journal of Eating Disorders 11, no. 1: 45. 10.1186/s40337-023-00768-1. [DOI] [PMC free article] [PubMed] [Google Scholar]
  20. Keys, A. , Brožek J., Henschel A., Mickelsen O., and Taylor H. L.. 1950. The Biology of Human Starvation. (2 Vols.). Univ. of Minnesota Press. [Google Scholar]
  21. Kinnaird, E. , Stewart C., and Tchanturia K.. 2018. “Taste Sensitivity in Anorexia Nervosa: A Systematic Review.” International Journal of Eating Disorders 51, no. 7: 771–784. 10.1002/eat.22886. [DOI] [PMC free article] [PubMed] [Google Scholar]
  22. Klastrup, C. , Frølich J., Winkler L. A.‐D., and Støving R. K.. 2020. “Hunger and Satiety Perception in Patients With Severe Anorexia Nervosa.” Eating and Weight Disorders ‐ Studies on Anorexia, Bulimia and Obesity 25, no. 5: 1347–1355. 10.1007/s40519-019-00769-7. [DOI] [PubMed] [Google Scholar]
  23. Moessner, M. , Feldhege J., Wolf M., and Bauer S.. 2018. “Analyzing Big Data in Social Media: Text and Network Analyses of an Eating Disorder Forum.” International Journal of Eating Disorders 51, no. 7: 656–667. 10.1002/eat.22878. [DOI] [PubMed] [Google Scholar]
  24. Monteleone, A. M. , Castellini G., Volpe U., et al. 2018. “Neuroendocrinology and Brain Imaging of Reward in Eating Disorders: A Possible Key to the Treatment of Anorexia Nervosa and Bulimia Nervosa.” Progress in Neuro‐Psychopharmacology & Biological Psychiatry 80: 132–142. 10.1016/j.pnpbp.2017.02.020. [DOI] [PubMed] [Google Scholar]
  25. Murray, H. B. , Tabri N., Thomas J. J., Herzog D. B., Franko D. L., and Eddy K. T.. 2017. “Will I Get Fat? 22‐Year Weight Trajectories of Individuals With Eating Disorders.” International Journal of Eating Disorders 50, no. 7: 739–747. 10.1002/eat.22690. [DOI] [PMC free article] [PubMed] [Google Scholar]
  26. Norman Adams, N. 2024. “‘Scraping’ Reddit Posts for Academic Research? Addressing Some Blurred Lines of Consent in Growing Internet‐Based Research Trend During the Time of Covid‐19.” International Journal of Social Research Methodology 27, no. 1: 47–62. 10.1080/13645579.2022.2111816. [DOI] [Google Scholar]
  27. Park, E. , Kim W.‐H., and Kim S.‐B.. 2022. “What Topics Do Members of the Eating Disorder Online Community Discuss and Empathize With? An Application of Big Data Analytics.” Healthcare (Basel, Switzerland) 10, no. 5: 9–28. 10.3390/healthcare10050928. [DOI] [PMC free article] [PubMed] [Google Scholar]
  28. Peterson, C. M. , Tissot A. M., Matthews A., et al. 2016. “Impact of Short‐Term Refeeding on Appetite and Meal Experiences in New‐Onset Adolescent Eating Disorders.” Appetite 105: 298–305. 10.1016/j.appet.2016.05.037. [DOI] [PMC free article] [PubMed] [Google Scholar]
  29. Phillipou, A. , Rossell S. L., Castle D. J., and Gurvich C.. 2022. “Interoceptive Awareness in Anorexia Nervosa.” Journal of Psychiatric Research 148: 84–87. 10.1016/j.jpsychires.2022.01.051. [DOI] [PubMed] [Google Scholar]
  30. Proferes, N. , Jones N., Gilbert S., Fiesler C., and Zimmer M.. 2021. “Studying Reddit: A Systematic Overview of Disciplines, Approaches, Methods, and Ethics.” Social Media + Society 7, no. 2: 20563051211019004. 10.1177/20563051211019004. [DOI] [Google Scholar]
  31. Serra, R. , Di Nicolantonio C., Di Febo R., et al. 2022. “The Transition From Restrictive Anorexia Nervosa to Binging and Purging: A Systematic Review and Meta‐Analysis.” Eating and Weight Disorders: EWD 27, no. 3: 857–865. 10.1007/s40519-021-01226-0. [DOI] [PMC free article] [PubMed] [Google Scholar]
  32. Sidani, J. E. , Shensa A., Hoffman B., Hanmer J., and Primack B. A.. 2016. “The Association Between Social Media Use and Eating Concerns Among US Young Adults.” Journal of the Academy of Nutrition and Dietetics 116, no. 9: 1465–1472. 10.1016/j.jand.2016.03.021. [DOI] [PMC free article] [PubMed] [Google Scholar]
  33. Solmi, M. , Monaco F., Højlund M., et al. 2024. “Outcomes in People With Eating Disorders: A Transdiagnostic and Disorder‐Specific Systematic Review, Meta‐Analysis and Multivariable Meta‐Regression Analysis.” World Psychiatry 23, no. 1: 124–138. 10.1002/wps.21182. [DOI] [PMC free article] [PubMed] [Google Scholar]
  34. Van Dyke, N. , and Drinkwater E. J.. 2014. “Review Article Relationships Between Intuitive Eating and Health Indicators: Literature Review.” Public Health Nutrition 17, no. 8: 1757–1766. 10.1017/S1368980013002139. [DOI] [PMC free article] [PubMed] [Google Scholar]
  35. Westmoreland, P. , Krantz M. J., and Mehler P. S.. 2016. “Medical Complications of Anorexia Nervosa and Bulimia.” American Journal of Medicine 129, no. 1: 30–37. 10.1016/j.amjmed.2015.06.031. [DOI] [PubMed] [Google Scholar]

Associated Data

This section collects any data citations, data availability statements, or supplementary materials included in this article.

Supplementary Materials

APPENDIX S1: Hierarchical organization of themes, sub‐themes, and codes.

EAT-59-1713-s001.xlsx (8.3KB, xlsx)

Data Availability Statement

The data that support the findings of this study are available on request from the corresponding author. The data are not publicly available due to privacy or ethical restrictions.


Articles from The International Journal of Eating Disorders are provided here courtesy of Wiley

RESOURCES