Abstract
Studies to date on the costs to family caregivers of children with chronic diseases and disabilities were surveyed. The survey was conducted in the context of an economic framework, which set cost categories and definitions as well as causal factors influencing costs. Emphasis was placed on variations in costs, and in particular on identifying those categories of families whose cost burdens are high. The analysis indicated a high cost burden for families in all disease categories studied, although a lack of uniformity in data presentation and in the variables studied prevented specific generalizations to be made about the numbers or characteristics of families with high costs. Suggestions are made for increasing the uniformity of data in future studies.
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- Anderson G., Knickman J. R. Patterns of expenditures among high utilizers of medical care services. The experience of Medicare beneficiaries from 1974 to 1977. Med Care. 1984 Feb;22(2):143–149. doi: 10.1097/00005650-198402000-00005. [DOI] [PubMed] [Google Scholar]
- Bloom B. S., Knorr R. S., Evans A. E. The epidemiology of disease expenses. The costs of caring for children with cancer. JAMA. 1985 Apr 26;253(16):2393–2397. [PubMed] [Google Scholar]
- Bodkin C. M., Pigott T. J., Mann J. R. Financial burden of childhood cancer. Br Med J (Clin Res Ed) 1982 May 22;284(6328):1542–1544. doi: 10.1136/bmj.284.6328.1542. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Butler J. A., Singer J. D., Palfrey J. S., Walker D. K. Health insurance coverage and physician use among children with disabilities: findings from probability samples in five metropolitan areas. Pediatrics. 1987 Jan;79(1):89–98. [PubMed] [Google Scholar]
- Hobbs N., Perrin J. M., Ireys H. T., Moynihan L. C., Shayne M. W. Chronically ill children in America. Rehabil Lit. 1984 Jul-Aug;45(7-8):206–213. [PubMed] [Google Scholar]
- Hodgson T. A., Meiners M. R. Cost-of-illness methodology: a guide to current practices and procedures. Milbank Mem Fund Q Health Soc. 1982 Summer;60(3):429–462. [PubMed] [Google Scholar]
- Horowitz A., Shindelman L. W. Social and economic incentives for family caregivers. Health Care Financ Rev. 1983 Winter;5(2):25–33. [PMC free article] [PubMed] [Google Scholar]
- Houts P. S., Lipton A., Harvey H. A., Martin B., Simmonds M. A., Dixon R. H., Longo S., Andrews T., Gordon R. A., Meloy J. Nonmedical costs to patients and their families associated with outpatient chemotherapy. Cancer. 1984 Jun 1;53(11):2388–2392. doi: 10.1002/1097-0142(19840601)53:11<2388::aid-cncr2820531103>3.0.co;2-a. [DOI] [PubMed] [Google Scholar]
- Lansky S. B., Cairns N. U., Clark G. M., Lowman J., Miller L., Trueworthy R. Childhood cancer: nonmedical costs of the illness. Cancer. 1979 Jan;43(1):403–408. doi: 10.1002/1097-0142(197901)43:1<403::aid-cncr2820430157>3.0.co;2-l. [DOI] [PubMed] [Google Scholar]
- Long S. H., Gibbs J. O., Crozier J. P., Cooper D. I., Jr, Newman J. F., Jr, Larsen A. M. Medical expenditures of terminal cancer patients during the last year of life. Inquiry. 1984 Winter;21(4):315–327. [PubMed] [Google Scholar]
- McCall N. Utilization and costs of Medicare services by beneficiaries in their last year of life. Med Care. 1984 Apr;22(4):329–342. doi: 10.1097/00005650-198404000-00004. [DOI] [PubMed] [Google Scholar]
- McCollum A. T. Cystic fibrosis: economic impact upon the family. Am J Public Health. 1971 Jul;61(7):1335–1340. doi: 10.2105/ajph.61.7.1335. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Newacheck P. W., Halfon N. The financial burden of medical care expenses for children. Med Care. 1986 Dec;24(12):1110–1117. doi: 10.1097/00005650-198612000-00004. [DOI] [PubMed] [Google Scholar]
- Perrin J. M., Ireys H. T. The organization of services for chronically ill children and their families. Pediatr Clin North Am. 1984 Feb;31(1):235–257. doi: 10.1016/s0031-3955(16)34549-7. [DOI] [PubMed] [Google Scholar]
- Rice D. P., Hodgson T. A. The value of human life revisited. Am J Public Health. 1982 Jun;72(6):536–538. doi: 10.2105/ajph.72.6.536. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Zook C. J., Moore F. D. High-cost users of medical care. N Engl J Med. 1980 May 1;302(18):996–1002. doi: 10.1056/NEJM198005013021804. [DOI] [PubMed] [Google Scholar]