Abstract
The parents of children with beta-thalassaemia displayed various patterns of emotion (guilt, death anxiety, denial of feelings) and their behaviour towards the child was inappropriate (overprotective, conspiracy of silence); this could affect his psychosocial development and lead to tension within the family. Some parents were overdemanding and even hostile to hospital staff, thus making the management of cases difficult. The therapeutic team has tried to concentrate on these problems in order to clarify them and give support to the families. This has facilitated communication within the family as well as between the family and hospital staff, and had diminished the problems.
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Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- Gordon N. B., Kutner B. Long term and fatal illness and the family. J Health Hum Behav. 1965 Winter;6(4):190–196. [PubMed] [Google Scholar]
- KNUDSON A. G., NATTERSON J. M. Participation of parents in the hospital care of fatally ill children. Pediatrics. 1960 Sep;26:482–490. [PubMed] [Google Scholar]
- MAXWELL G. M., GANE S. The impact of congenital heart disease upon the family. Am Heart J. 1962 Oct;64:449–454. doi: 10.1016/0002-8703(62)90028-5. [DOI] [PubMed] [Google Scholar]