Abstract
The introduction of newly developed medical genetic diagnostic tests has been accompanied by social problems involving privacy issues and genetic discrimination. Previous studies of genetic discrimination have focused on the areas of employment and insurance. In this paper, we provide six hypothetical illustrative cases of genetic discrimination involving access to public entities and to private entities considered to be public accommodations. We argue that many of these forms of genetic discrimination that arise in both the public and private sectors should be prohibited by Titles II and III, respectively, of the Americans with Disabilities Act of 1990.
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Selected References
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- Andrews L. B., Jaeger A. S. Confidentiality of genetic information in the workplace. Am J Law Med. 1991;17(1-2):75–108. [PubMed] [Google Scholar]
- Andrews L. B. Legal aspects of genetic information. Yale J Biol Med. 1991 Jan-Feb;64(1):29–40. [PMC free article] [PubMed] [Google Scholar]
- Antonarakis S. E. Diagnosis of genetic disorders at the DNA level. N Engl J Med. 1989 Jan 19;320(3):153–163. doi: 10.1056/NEJM198901193200305. [DOI] [PubMed] [Google Scholar]
- Billings Paul R., Alper Joseph S., Beckwith Jon, Barash Carol I., Natowicz Marvin R. Reply to Hook and Lowden: the definition and implications of genetic discrimination. Am J Hum Genet. 1992 Oct;51(4):903–905. [PMC free article] [PubMed] [Google Scholar]
- Fujita R., Hanauer A., Sirugo G., Heilig R., Mandel J. L. Additional polymorphisms at marker loci D9S5 and D9S15 generate extended haplotypes in linkage disequilibrium with Friedreich ataxia. Proc Natl Acad Sci U S A. 1990 Mar;87(5):1796–1800. doi: 10.1073/pnas.87.5.1796. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Gostin L. Genetic discrimination: the use of genetically based diagnostic and prognostic tests by employers and insurers. Am J Law Med. 1991;17(1-2):109–144. [PubMed] [Google Scholar]
- Holtzman N. A., Rothstein M. A. Eugenics and genetic discrimination. Am J Hum Genet. 1992 Mar;50(3):457–459. [PMC free article] [PubMed] [Google Scholar]
- Hook E. B. Muddling genetic discrimination. Am J Hum Genet. 1992 Oct;51(4):899–905. [PMC free article] [PubMed] [Google Scholar]
- Kark J. A., Posey D. M., Schumacher H. R., Ruehle C. J. Sickle-cell trait as a risk factor for sudden death in physical training. N Engl J Med. 1987 Sep 24;317(13):781–787. doi: 10.1056/NEJM198709243171301. [DOI] [PubMed] [Google Scholar]
- McEwen J. E., Reilly P. R. State legislative efforts to regulate use and potential misuse of genetic information. Am J Hum Genet. 1992 Sep;51(3):637–647. [PMC free article] [PubMed] [Google Scholar]
- Natowicz M. R., Alper J. K., Alper J. S. Genetic discrimination and the Americans with Disabilities Act. Am J Hum Genet. 1992 Oct;51(4):895–897. [PMC free article] [PubMed] [Google Scholar]
- Natowicz M. R., Alper J. K., Alper J. S. Genetic discrimination and the law. Am J Hum Genet. 1992 Mar;50(3):465–475. [PMC free article] [PubMed] [Google Scholar]
- Natowicz M. R., Alper J. K., Alper J. S. Genetic discrimination and the law. Am J Hum Genet. 1992 Mar;50(3):465–475. [PMC free article] [PubMed] [Google Scholar]
- Natowicz M. R., Alper J. S. Genetic screening: triumphs, problems, and controversies. J Public Health Policy. 1991 Winter;12(4):475–491. [PubMed] [Google Scholar]
- Navon R., Argov Z., Frisch A. Hexosaminidase A deficiency in adults. Am J Med Genet. 1986 May;24(1):179–196. doi: 10.1002/ajmg.1320240123. [DOI] [PubMed] [Google Scholar]
- de Gorgey A. The advent of DNA databanks: implications for information privacy. Am J Law Med. 1990;16(3):381–398. [PubMed] [Google Scholar]