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Archives of Disease in Childhood logoLink to Archives of Disease in Childhood
. 2004 Nov;89(11):1034–1036. doi: 10.1136/adc.2003.037671

High tolerance for oral galactose in classical galactosaemia: dietary implications

A Bosch 1, H Bakker 1, Wenniger-Pri L J M de B 1, R Wanders 1, F Wijburg 1
PMCID: PMC1719730  PMID: 15499058

Abstract

Methods: For a period of six weeks, increasing doses of oral galactose to a maximum of 600 mg per day, were added to a very strict galactose restricted diet in three adolescent patients homozygous for the Q188R mutation. During the study, physical examination, including an extended ophthalmic examination, and laboratory studies were performed on a weekly basis.

Results: No significant change in any of the studied clinical or biochemical parameters was observed.

Conclusions: These findings provide further evidence that attempts to exclude trace amounts of galactose from the diet are not justified. Once the diet is made more liberal, a long term follow up study will be necessary.

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Figure 1.

Figure 1

 Urinary galactitol values of patients 1, 2, and 3 during the study.

Figure 2.

Figure 2

 Red cell galactose-1-phosphate values of patients 1, 2, and 3 during the study. MPV, maximum permissible value.


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