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. 2004 Jan;89(1):F71–F75. doi: 10.1136/fn.89.1.F71

Parental concern and distress about infant pain

L Franck, S Cox, A Allen, I Winter
PMCID: PMC1721639  PMID: 14711862

Abstract

Objective: To describe parent views on infant pain care and to explore relations between parents' experience of their infant's pain care and parental stress.

Design: Descriptive, cross sectional survey.

Setting: Nine neonatal units (196 parents) in the United Kingdom and two neonatal units in the United States (61 parents).

Participants: Parents of preterm and full term infants admitted to hospital.

Interventions: Parents completed a three part questionnaire after the second day of the infant's admission and after they had made at least one previous visit to see their infant in the neonatal unit.

Main outcome measures: Parent concerns about infant pain; parental stress; parent state and trait anxiety.

Results: Parents reported that their infants had experienced moderate to severe pain that was greater than they had expected (p < 0.001). Few parents (4%) received written information, although 58% reported that they received verbal information about infant pain or pain management. Only 18% of parents reported that they were shown signs of infant pain, but 55% were shown how to comfort their infant. Parents had numerous worries about pain and pain treatments. Parental stress was independently predicted by parents' estimation of their infant's worst pain, worries about pain and its treatment, and dissatisfaction with pain information received, after controlling for state anxiety and satisfaction with overall care (F = 29.56, df 6, p < 0.001, R2 = 0.44). The findings were similar across sites, despite differences in infant characteristics.

Conclusions: Parents have unmet information needs about infant pain and wish greater involvement in their infant's pain care. Parent concerns about infant pain may contribute to parental stress.

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Selected References

These references are in PubMed. This may not be the complete list of references from this article.

  1. Bauchner H., Vinci R., May A. Teaching parents how to comfort their children during common medical procedures. Arch Dis Child. 1994 Jun;70(6):548–550. doi: 10.1136/adc.70.6.548. [DOI] [PMC free article] [PubMed] [Google Scholar]
  2. Franck L. S. The ethical imperative to treat pain in infants: are we doing the best we can? Crit Care Nurse. 1997 Oct;17(5):80–87. [PubMed] [Google Scholar]
  3. Franck Linda S., Bernal Holly, Gale Gay. Infant holding policies and practices in neonatal units. Neonatal Netw. 2002 Mar;21(2):13–20. doi: 10.1891/0730-0832.21.2.13. [DOI] [PubMed] [Google Scholar]
  4. Kristensson-Hallström I. Strategies for feeling secure influence parents' participation in care. J Clin Nurs. 1999 Sep;8(5):586–592. doi: 10.1046/j.1365-2702.1999.00282.x. [DOI] [PubMed] [Google Scholar]
  5. Meyer E. C., Garcia Coll C. T., Seifer R., Ramos A., Kilis E., Oh W. Psychological distress in mothers of preterm infants. J Dev Behav Pediatr. 1995 Dec;16(6):412–417. [PubMed] [Google Scholar]
  6. Miaskowski C., Nichols R., Brody R., Synold T. Assessment of patient satisfaction utilizing the American Pain Society's Quality Assurance Standards on acute and cancer-related pain. J Pain Symptom Manage. 1994 Jan;9(1):5–11. doi: 10.1016/0885-3924(94)90140-6. [DOI] [PubMed] [Google Scholar]
  7. Miles M. S., Funk S. G., Carlson J. Parental Stressor Scale: neonatal intensive care unit. Nurs Res. 1993 May-Jun;42(3):148–152. [PubMed] [Google Scholar]
  8. Miles M. S., Funk S. G., Kasper M. A. The stress response of mothers and fathers of preterm infants. Res Nurs Health. 1992 Aug;15(4):261–269. doi: 10.1002/nur.4770150405. [DOI] [PubMed] [Google Scholar]
  9. Shields-Poë D., Pinelli J. Variables associated with parental stress in neonatal intensive care units. Neonatal Netw. 1997 Feb;16(1):29–37. [PubMed] [Google Scholar]
  10. Simons J., Franck L., Roberson E. Parent involvement in children's pain care: views of parents and nurses. J Adv Nurs. 2001 Nov;36(4):591–599. doi: 10.1046/j.1365-2648.2001.02012.x. [DOI] [PubMed] [Google Scholar]
  11. Ward K. Perceived needs of parents of critically ill infants in a neonatal intensive care unit (NICU). Pediatr Nurs. 2001 May-Jun;27(3):281–286. [PubMed] [Google Scholar]
  12. Ward S. E., Gordon D. Application of the American Pain Society quality assurance standards. Pain. 1994 Mar;56(3):299–306. doi: 10.1016/0304-3959(94)90168-6. [DOI] [PubMed] [Google Scholar]
  13. Wereszczak J., Miles M. S., Holditch-Davis D. Maternal recall of the neonatal intensive care unit. Neonatal Netw. 1997 Jun;16(4):33–40. [PubMed] [Google Scholar]
  14. Woodgate R., Kristjanson L. J. A young child's pain: how parents and nurses 'take care'. Int J Nurs Stud. 1996 Jun;33(3):271–284. doi: 10.1016/0020-7489(95)00062-3. [DOI] [PubMed] [Google Scholar]
  15. Young Seideman R., Watson M. A., Corff K. E., Odle P., Haase J., Bowerman J. L. Parent stress and coping in NICU and PICU. J Pediatr Nurs. 1997 Jun;12(3):169–177. doi: 10.1016/s0882-5963(97)80074-7. [DOI] [PubMed] [Google Scholar]

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