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Journal of Medical Ethics logoLink to Journal of Medical Ethics
. 2000 Oct;26(5):400–403. doi: 10.1136/jme.26.5.400

Parental duties and untreatable genetic conditions

H Clarkeburn 1
PMCID: PMC1733300  PMID: 11055047

Abstract

This paper considers parental duties of beneficence and non-maleficence to use prenatal genetic testing for non-treatable conditions. It is proposed that this can be a duty only if the testing is essential to protect the interests of the child ie only if there is a risk of the child being born to a life worse than non-existence. It is argued here that non-existence can be rationally preferred to a severely impaired life. Uncontrollable pain and a lack of any opportunity to develop a continuous self are considered to be sufficient criteria for such preference. When parents are at risk of having a child whose life would be worse than non-existence, the parents have a duty to use prenatal testing and a duty to terminate an affected pregnancy. Further, such duty does not apply to any conditions where the resulting life can be considered better than non-existence.

Key Words: Prenatal testing • parental duties • beneficence • non-maleficence

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Selected References

These references are in PubMed. This may not be the complete list of references from this article.

  1. Feinberg Joel. Wrongful life and the counterfactual element in harming. Soc Philos Policy. 1986 Autumn;4(1):145–178. doi: 10.1017/s0265052500000467. [DOI] [PubMed] [Google Scholar]

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