Abstract
Objectives—To study the value of taking an ethics history as a means of assessing patients' preferences for decision making and for their relatives' involvement.
Design—Questionnaire administered by six junior doctors to 56 mentally competent patients, admitted into general and geriatric medical beds.
Setting—A large district general hospital in the United Kingdom.
Main measures—To establish whether patients were adequately informed about their illness and whether they minded the information being communicated to their relatives. To establish their preference regarding truthful disclosure and participation in decision making with risk attached. To establish whether they wished to be involved in CPR decision making, and if not, who should make the decision. To establish whether they knew of living wills and whether they had any advance directives.
Results—Twenty-four (43%) were inadequately informed of their illness.Forty-six (82%) said they would want to know were something serious to be found. Twenty-eight (50%) wanted to make their own decision if requiring risky treatment and 11 (20%) wanted family members involved. Thirty-one (55%) wanted to make a cardiopulmonary resuscitation (CPR) decision and five of these decisions differed from those made by the doctors. Twenty-five (45%) preferred the doctors to decide. Eleven (20%) of the patients had heard of living wills but only one had executed such a will. Seven (13%) of the patients wished to provide advance directives. Three (5%) did not find the history taking helpful but none were discomforted.
Conclusion—Taking an ethics history is a simple means of obtaining useful information about patients' preferences.
Key Words: Autonomy • confidentiality • CPR decision-making • advance directives
Full Text
The Full Text of this article is available as a PDF (76.5 KB).
Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- Angell M. Respecting the autonomy of competent patients. N Engl J Med. 1984 Apr 26;310(17):1115–1116. doi: 10.1056/NEJM198404263101710. [DOI] [PubMed] [Google Scholar]
- Brewin T. B. Truth, trust, and paternalism. Lancet. 1985 Aug 31;2(8453):490–492. doi: 10.1016/s0140-6736(85)90413-1. [DOI] [PubMed] [Google Scholar]
- Cox D. M., Sachs G. A. Advance directives and the patient self-determination act. Clin Geriatr Med. 1994 Aug;10(3):431–443. [PubMed] [Google Scholar]
- Doyal L., Wilsher D. Withholding cardiopulmonary resuscitation: proposals for formal guidelines. BMJ. 1993 Jun 12;306(6892):1593–1596. doi: 10.1136/bmj.306.6892.1593. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Ebrahim S. Do not resuscitate decisions: flogging dead horses or a dignified death? Resuscitation should not be withheld from elderly people without discussion. BMJ. 2000 Apr 29;320(7243):1155–1156. doi: 10.1136/bmj.320.7243.1155. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Gross M. D. What do patients express as their preferences in advance directives? Arch Intern Med. 1998 Feb 23;158(4):363–365. doi: 10.1001/archinte.158.4.363. [DOI] [PubMed] [Google Scholar]
- Heller A., Potter J., Sturgess I., Owen A., McCormack P. Resuscitation and patients' views. Questioning may be misunderstood by patients. BMJ. 1994 Aug 6;309(6951):408–408. [PMC free article] [PubMed] [Google Scholar]
- Hill M. E., MacQuillan G., Forsyth M., Heath D. A. Cardiopulmonary resuscitation: who makes the decision? BMJ. 1994 Jun 25;308(6945):1677–1677. doi: 10.1136/bmj.308.6945.1677. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Hodkinson H. M. Evaluation of a mental test score for assessment of mental impairment in the elderly. Age Ageing. 1972 Nov;1(4):233–238. doi: 10.1093/ageing/1.4.233. [DOI] [PubMed] [Google Scholar]
- Kohn M., Menon G. Life prolongation: views of elderly outpatients and health care professionals. J Am Geriatr Soc. 1988 Sep;36(9):840–844. doi: 10.1111/j.1532-5415.1988.tb04270.x. [DOI] [PubMed] [Google Scholar]
- Liddle J., Gilleard C., Neil A. The views of elderly patients and their relatives on cardiopulmonary resuscitation. J R Coll Physicians Lond. 1994 May-Jun;28(3):228–229. [PMC free article] [PubMed] [Google Scholar]
- Lo B., McLeod G. A., Saika G. Patient attitudes to discussing life-sustaining treatment. Arch Intern Med. 1986 Aug;146(8):1613–1615. [PubMed] [Google Scholar]
- Loewy E. H., Carlson R. W. Talking, advance directives, and medical practice. Arch Intern Med. 1994 Oct 24;154(20):2265–2267. [PubMed] [Google Scholar]
- Luttrell S. Living wills do have legal effect provided certain criteria are met. BMJ. 1996 Nov 2;313(7065):1148–1148. doi: 10.1136/bmj.313.7065.1148a. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Markson L. J., Fanale J., Steel K., Kern D., Annas G. Implementing advance directives in the primary care setting. Arch Intern Med. 1994 Oct 24;154(20):2321–2327. [PubMed] [Google Scholar]
- Mead G. E., Turnbull C. J. Cardiopulmonary resuscitation in the elderly: patients' and relatives' views. J Med Ethics. 1995 Feb;21(1):39–44. doi: 10.1136/jme.21.1.39. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Morgan R., King D., Prajapati C., Rowe J. Views of elderly patients and their relatives on cardiopulmonary resuscitation. BMJ. 1994 Jun 25;308(6945):1677–1678. doi: 10.1136/bmj.308.6945.1677a. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Morrison R. S., Morrison E. W., Glickman D. F. Physician reluctance to discuss advance directives. An empiric investigation of potential barriers. Arch Intern Med. 1994 Oct 24;154(20):2311–2318. [PubMed] [Google Scholar]
- Reilly B. M., Magnussen C. R., Ross J., Ash J., Papa L., Wagner M. Can we talk? Inpatient discussions about advance directives in a community hospital. Attending physicians' attitudes, their inpatients' wishes, and reported experience. Arch Intern Med. 1994 Oct 24;154(20):2299–2308. [PubMed] [Google Scholar]
- Sayers G. M., Schofield I., Aziz M. An analysis of CPR decision-making by elderly patients. J Med Ethics. 1997 Aug;23(4):207–212. doi: 10.1136/jme.23.4.207. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Seckler A. B., Meier D. E., Mulvihill M., Paris B. E. Substituted judgment: how accurate are proxy predictions? Ann Intern Med. 1991 Jul 15;115(2):92–98. doi: 10.7326/0003-4819-115-2-92. [DOI] [PubMed] [Google Scholar]
- Stern K. Living wills in English law. Palliat Med. 1993;7(4):283–288. doi: 10.1177/026921639300700404. [DOI] [PubMed] [Google Scholar]