Abstract
Objectives—The study was performed in order to investigate how end-of-life decisions are influenced by cultural and sociopolitical circumstances and to explore the compliance of doctors with patient wishes
Participants and measurement—Five hundred and thirty-five physicians were surveyed in Sweden (Umeå), Germany (Rostock and Neubrandenburg), and in Russia (Arkhangelsk) by a questionnaire. The participants were recruited according to availability and are not representative. The questionnaire is based on the one developed by Molloy and co-workers in Canada which contains three case vignettes about an 82-year-old Alzheimer patient with an acute life-threatening condition; the questionnaire includes different levels of information about his treatment wishes. We have added various questions about attitudes determining doctors' decision making process (legal and ethical concerns, patient's and family wishes, hospital costs, patient's age and level of dementia and physician's religion).
Results—Swedish physicians chose fewer life-prolonging interventions as compared with the Russian and the German doctors. Swedish physicians would perform cardiopulmonary resuscitation (CPR) in the event of a cardiac arrest less frequently, followed by the German doctors. More than half the Russian physicians decided to perform CPR irrespective of the available information about the patient's wishes. Level of dementia emerged as the most powerful determining attitude-variable for the decision making in all three countries.
Conclusions—The lack of compliance with patient wishes among a substantial number of doctors points to the necessity of emphasising ethical aspects both in medical education and clinical practice. The inconsistency in the treatment decisions of doctors from different countries calls for social consensus in this matter.
Key Words: End-of-life decision • DNR order • advance directive • physicians • cross-cultural comparison • survey
Full Text
The Full Text of this article is available as a PDF (129.2 KB).
Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- Alemayehu E., Molloy D. W., Guyatt G. H., Singer J., Penington G., Basile J., Eisemann M., Finucane P., McMurdo M. E., Powell C. Variability in physicians' decisions on caring for chronically ill elderly patients: an international study. CMAJ. 1991 May 1;144(9):1133–1138. [PMC free article] [PubMed] [Google Scholar]
- Arenson C. A., Novielli K. D., Chambers C. V., Perkel R. L. The importance of advance directives in primary care. Prim Care. 1996 Mar;23(1):67–82. doi: 10.1016/s0095-4543(05)70261-x. [DOI] [PubMed] [Google Scholar]
- Bruce-Jones P., Roberts H., Bowker L., Cooney V. Resuscitating the elderly: what do the patients want? J Med Ethics. 1996 Jun;22(3):154–159. doi: 10.1136/jme.22.3.154. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Brymer C., Gangbar E., O'Rourke K., Naglie G. Age as a determinant of cardiopulmonary resuscitation outcome in the coronary care unit. J Am Geriatr Soc. 1995 Jun;43(6):634–637. doi: 10.1111/j.1532-5415.1995.tb07197.x. [DOI] [PubMed] [Google Scholar]
- Cowe F. Living wills: making patients' wishes known. Prof Nurse. 1996 Mar;11(6):362–363. [PubMed] [Google Scholar]
- Davitt J. K., Kaye L. W. Supporting patient autonomy: decision making in home care. Soc Work. 1996 Jan;41(1):41–50. doi: 10.1093/sw/41.1.41. [DOI] [PubMed] [Google Scholar]
- Denton R., Thomas A. N. Cardiopulmonary resuscitation: a retrospective review. Anaesthesia. 1997 Apr;52(4):324–327. doi: 10.1111/j.1365-2044.1997.105-az0102.x. [DOI] [PubMed] [Google Scholar]
- Eisemann M., Richter J. Relationships between various attitudes towards self-determination in health care with special reference to an advance directive. J Med Ethics. 1999 Feb;25(1):37–41. doi: 10.1136/jme.25.1.37. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Emanuel L. L., Barry M. J., Emanuel E. J., Stoeckle J. D. Advance directives: can patients' stated treatment choices be used to infer unstated choices? Med Care. 1994 Feb;32(2):95–105. doi: 10.1097/00005650-199402000-00001. [DOI] [PubMed] [Google Scholar]
- Guyatt G. H., Mitchell A., Molloy D. W., Capretta R., Horsman J., Griffith L. Measuring patient and relative satisfaction with level or aggressiveness of care and involvement in care decisions in the context of life threatening illness. J Clin Epidemiol. 1995 Oct;48(10):1215–1224. doi: 10.1016/0895-4356(95)00024-x. [DOI] [PubMed] [Google Scholar]
- Johnston S. C., Johnson S. C. Advance directives: from the perspective of the patient and the physician. J R Soc Med. 1996 Oct;89(10):568–570. doi: 10.1177/014107689608901008. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Kapp M. B. State statutes limiting advance directives: death warrants or life sentences? J Am Geriatr Soc. 1992 Jul;40(7):722–726. doi: 10.1111/j.1532-5415.1992.tb01967.x. [DOI] [PubMed] [Google Scholar]
- Kapp M. B. Therapeutic jurisprudence and end-of-life medical care: physician perceptions of a statute's impact. Med Law. 1996;15(2):201–217. [PubMed] [Google Scholar]
- Kelner M., Bourgeault I. L., Hébert P. C., Dunn E. V. Advance directives: the views of health care professionals. CMAJ. 1993 Apr 15;148(8):1331–1338. [PMC free article] [PubMed] [Google Scholar]
- Layon A. J., Dirk L. Resuscitation and DNR: ethical aspects for anaesthetists. Can J Anaesth. 1995 Feb;42(2):134–140. doi: 10.1007/BF03028266. [DOI] [PubMed] [Google Scholar]
- Lynn J., Teno J. M., Phillips R. S., Wu A. W., Desbiens N., Harrold J., Claessens M. T., Wenger N., Kreling B., Connors A. F., Jr Perceptions by family members of the dying experience of older and seriously ill patients. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Ann Intern Med. 1997 Jan 15;126(2):97–106. doi: 10.7326/0003-4819-126-2-199701150-00001. [DOI] [PubMed] [Google Scholar]
- Löfmark R., Nilstun T. Do-not-resuscitate orders--should the patient be informed? J Intern Med. 1997 May;241(5):421–425. doi: 10.1046/j.1365-2796.1997.138144000.x. [DOI] [PubMed] [Google Scholar]
- Löfmark R., Nilstun T. Informing patients and relatives about do-not-resuscitate decisions. Attitudes of cardiologists and nurses in Sweden. J Intern Med. 1998 Mar;243(3):191–195. doi: 10.1046/j.1365-2796.1998.00263.x. [DOI] [PubMed] [Google Scholar]
- Melltorp G., Nilstun T. Age and life-sustaining treatment. Attitudes of intensive care unit professionals. Acta Anaesthesiol Scand. 1996 Sep;40(8 Pt 1):904–908. doi: 10.1111/j.1399-6576.1996.tb04558.x. [DOI] [PubMed] [Google Scholar]
- Molloy D. W., Guyatt G. H., Alemayehu E., McIlroy W., Willan A., Eisemann M., Abraham G., Basile J., Penington G., McMurdo M. E. Factors affecting physicians' decisions on caring for an incompetent elderly patient: an international study. CMAJ. 1991 Oct 15;145(8):947–952. [PMC free article] [PubMed] [Google Scholar]
- Molloy D. William, Urbanyi Mafalda, Horsman John R., Guyatt Gordon H., Bédard Michel. Two years experience with a comprehensive health care directive in a home for the aged. Ann R Coll Physicians Surg Can. 1992 Dec;25(7):433–436. [PubMed] [Google Scholar]
- Molloy David W., Guyatt Gordon, Alemayehu Efrem, McIlroy William E. Treatment preferences, attitudes toward advance directives and concerns about health care. Humane Med. 1991 Oct;7(4):285–290. [PubMed] [Google Scholar]
- Murphy C., Sweeney M. A. Conflict resolution with end of life decisions in critical care settings. Medinfo. 1995;8(Pt 2):1696–1696. [PubMed] [Google Scholar]
- Noelle-Neumann E. Studie: Senioren im Pflegemarkt. Die Alten wissen genau, was sie wollen. Pflege Z. 1995 Dec;48(12):733–733. [PubMed] [Google Scholar]
- Pinch W. J., Parsons M. E. The ethics of treatment decision making: the elderly patient's perspective. The vast resources--and costs--of available technology makes it crucial that we understand what the patient wants. Geriatr Nurs. 1993 Nov-Dec;14(6):289–293. doi: 10.1016/s0197-4572(06)80052-2. [DOI] [PubMed] [Google Scholar]
- Richter J., Eisemann M., Bauer B., Kreibeck H. Entscheidungen und Einstellungen bei der Behandlung inkompetenter, chronisch kranker, alter Menschen. Ein Vergleich zwischen Krankenschwestern und Arzten--oder: Warum fragt keiner die Krankenschwester? Z Gerontol Geriatr. 1999 Apr;32(2):131–138. doi: 10.1007/s003910050094. [DOI] [PubMed] [Google Scholar]
- Rogove H. J., Safar P., Sutton-Tyrrell K., Abramson N. S. Old age does not negate good cerebral outcome after cardiopulmonary resuscitation: analyses from the brain resuscitation clinical trials. The Brain Resuscitation Clinical Trial I and II Study Groups. Crit Care Med. 1995 Jan;23(1):18–25. doi: 10.1097/00003246-199501000-00007. [DOI] [PubMed] [Google Scholar]
- Ryan C. J. Betting your life: an argument against certain advance directives. J Med Ethics. 1996 Apr;22(2):95–99. doi: 10.1136/jme.22.2.95. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Scharf S., Flamer H., Christophidis N. Age as a basis for healthcare rationing. Arguments against agism. Drugs Aging. 1996 Dec;9(6):399–402. doi: 10.2165/00002512-199609060-00002. [DOI] [PubMed] [Google Scholar]
- Schecter W. P. Withdrawing and withholding life support in geriatric surgical patients. Ethical considerations. Surg Clin North Am. 1994 Apr;74(2):245–259. [PubMed] [Google Scholar]
- Thomasma D. C. The ethical challenge of providing healthcare for the elderly. Camb Q Healthc Ethics. 1995 Spring;4(2):148–162. doi: 10.1017/s096318010000582x. [DOI] [PubMed] [Google Scholar]
- Tulsky J. A., Fischer G. S., Rose M. R., Arnold R. M. Opening the black box: how do physicians communicate about advance directives? Ann Intern Med. 1998 Sep 15;129(6):441–449. doi: 10.7326/0003-4819-129-6-199809150-00003. [DOI] [PubMed] [Google Scholar]
- White B. D., Singer P. A., Siegler M. Continuing problems with patient self-determination. Am J Med Qual. 1993 Winter;8(4):187–193. doi: 10.1177/0885713X9300800405. [DOI] [PubMed] [Google Scholar]