Abstract
Recently there has been much discussion about the possibility of using dried blood spots on Guthrie cards as a source of DNA for research or testing purposes. The collections of Guthrie cards stored by state newborn-screening laboratories can thus be viewed as inchoate "DNA banks." This has generated concern among some persons who are interested in preserving the privacy of medical records. This study examines the policies of state newborn-screening laboratories in the United States, regarding their retention of Guthrie cards and the degree to which they permit the sharing of those cards with various third parties. We found that although most laboratories retain their cards, if at all, for only a short time, a growing number plan to keep them for an extended period--and, in several cases, indefinitely. We also found that although most laboratories would decline to release individually identifiable blood spots from the cards to third parties without a written release or other explicit authorization, a large number would at least consider sharing anonymous cards for research purposes.
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Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- McCabe E. R. Utility of PCR for DNA analysis from dried blood spots on filter paper blotters. PCR Methods Appl. 1991 Nov;1(2):99–106. doi: 10.1101/gr.1.2.99. [DOI] [PubMed] [Google Scholar]
- McEwen J. E., Reilly P. R. A review of state legislation on DNA forensic data banking. Am J Hum Genet. 1994 Jun;54(6):941–958. [PMC free article] [PubMed] [Google Scholar]
- Reilly P. R. DNA banking. Am J Hum Genet. 1992 Nov;51(5):1169–1170. [PMC free article] [PubMed] [Google Scholar]