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. 2000 May;46:1100–1106.

Experience of fibromyalgia. Qualitative study.

M C Raymond 1, J B Brown 1
PMCID: PMC2144885  PMID: 10845136

Abstract

OBJECTIVE: To explore illness experiences of patients diagnosed with fibromyalgia. DESIGN: Qualitative method of in-depth interviews. SETTING: Midsize city in Ontario. PARTICIPANTS: Seven patients diagnosed with fibromyalgia. METHOD: Seven in-depth interviews were conducted to explore the illness experience of patients diagnosed with fibromyalgia. All interviews were audiotaped and transcribed verbatim. All interview transcriptions were read independently by the researchers, who then compared and combined their analysis. Final analysis involved examining all interviews collectively, thus permitting relationships between and among central themes to emerge. The analysis strategy used a phenomenologic approach and occurred concurrently rather than sequentially. MAIN FINDINGS: Themes that emerged from the interpretive analysis depict patients' journeys along a continuum from experiencing symptoms, through seeking a diagnosis, to coping with the illness. Experiencing symptoms was composed of four subcategories: pain, a precipitating event, associated symptoms, and modulating factors. Seeking a diagnosis entailed frustration and social isolation. Confirmation of diagnosis brought relief as well as anxiety about the future. After diagnosis, several steps led to creation of adaptive coping strategies, which were influenced by several factors. CONCLUSION: Findings suggest that the conventional medical model fails to address the complex experience of fibromyalgia. Adopting a patient-centred approach is important for helping patients cope with this disease.

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Selected References

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  1. Ablon J. Stigmatized health conditions. Soc Sci Med Med Anthropol. 1981 Jan;15B(1):5–9. doi: 10.1016/0160-7987(81)90003-x. [DOI] [PubMed] [Google Scholar]
  2. Bengtsson A., Henriksson K. G., Jorfeldt L., Kågedal B., Lennmarken C., Lindström F. Primary fibromyalgia. A clinical and laboratory study of 55 patients. Scand J Rheumatol. 1986;15(3):340–347. doi: 10.3109/03009748609092601. [DOI] [PubMed] [Google Scholar]
  3. Birnie D. J., Knipping A. A., van Rijswijk M. H., de Blécourt A. C., de Voogd N. Psychological aspects of fibromyalgia compared with chronic and nonchronic pain. J Rheumatol. 1991 Dec;18(12):1845–1848. [PubMed] [Google Scholar]
  4. Boissevain M. D., McCain G. A. Toward an integrated understanding of fibromyalgia syndrome. I. Medical and pathophysiological aspects. Pain. 1991 Jun;45(3):227–238. doi: 10.1016/0304-3959(91)90047-2. [DOI] [PubMed] [Google Scholar]
  5. Brückle W., Lautenschläger J., Müller W. Schmerzverlauf und -topographie bei generalisierten Tendomyopathien. Z Rheumatol. 1991;50 (Suppl 1):19–28. [PubMed] [Google Scholar]
  6. Buchwald D., Goldenberg D. L., Sullivan J. L., Komaroff A. L. The "chronic, active Epstein-Barr virus infection" syndrome and primary fibromyalgia. Arthritis Rheum. 1987 Oct;30(10):1132–1136. doi: 10.1002/art.1780301007. [DOI] [PubMed] [Google Scholar]
  7. Campbell S. M., Clark S., Tindall E. A., Forehand M. E., Bennett R. M. Clinical characteristics of fibrositis. I. A "blinded," controlled study of symptoms and tender points. Arthritis Rheum. 1983 Jul;26(7):817–824. doi: 10.1002/art.1780260701. [DOI] [PubMed] [Google Scholar]
  8. Carette S. Fibromyalgia 20 years later: what have we really accomplished? J Rheumatol. 1995 Apr;22(4):590–594. [PubMed] [Google Scholar]
  9. Clark S., Campbell S. M., Forehand M. E., Tindall E. A., Bennett R. M. Clinical characteristics of fibrositis. II. A "blinded," controlled study using standard psychological tests. Arthritis Rheum. 1985 Feb;28(2):132–137. doi: 10.1002/art.1780280204. [DOI] [PubMed] [Google Scholar]
  10. Dailey P. A., Bishop G. D., Russell I. J., Fletcher E. M. Psychological stress and the fibrositis/fibromyalgia syndrome. J Rheumatol. 1990 Oct;17(10):1380–1385. [PubMed] [Google Scholar]
  11. Ehrmann-Feldmann D., Spitzer W. O., Del Greco L., Desmeules L. Perceived discrimination against cured cancer patients in the work force. CMAJ. 1987 Apr 1;136(7):719–723. [PMC free article] [PubMed] [Google Scholar]
  12. Felson D. T., Goldenberg D. L. The natural history of fibromyalgia. Arthritis Rheum. 1986 Dec;29(12):1522–1526. doi: 10.1002/art.1780291216. [DOI] [PubMed] [Google Scholar]
  13. Greenfield S., Fitzcharles M. A., Esdaile J. M. Reactive fibromyalgia syndrome. Arthritis Rheum. 1992 Jun;35(6):678–681. doi: 10.1002/art.1780350612. [DOI] [PubMed] [Google Scholar]
  14. Hart F. D. Fibrositis (fibromyalgia). A common non-entity? Drugs. 1988 Mar;35(3):320–327. doi: 10.2165/00003495-198835030-00006. [DOI] [PubMed] [Google Scholar]
  15. Hawley D. J., Wolfe F. Pain, disability, and pain/disability relationships in seven rheumatic disorders: a study of 1,522 patients. J Rheumatol. 1991 Oct;18(10):1552–1557. [PubMed] [Google Scholar]
  16. Hazlett R. L., Haynes S. N. Fibromyalgia: a time-series analysis of the stressor-physical symptom association. J Behav Med. 1992 Dec;15(6):541–558. doi: 10.1007/BF00844855. [DOI] [PubMed] [Google Scholar]
  17. Henriksson C. M. Living with continuous muscular pain--patient perspectives. Part I: Encounters and consequences. Scand J Caring Sci. 1995;9(2):67–76. doi: 10.1111/j.1471-6712.1995.tb00390.x. [DOI] [PubMed] [Google Scholar]
  18. Herek G. M., Glunt E. K. An epidemic of stigma. Public reactions to AIDS. Am Psychol. 1988 Nov;43(11):886–891. doi: 10.1037//0003-066x.43.11.886. [DOI] [PubMed] [Google Scholar]
  19. Kelleher D. J. Do self-help groups help? Int Disabil Stud. 1990 Apr-Jun;12(2):66–69. doi: 10.3109/03790799009166253. [DOI] [PubMed] [Google Scholar]
  20. Kirmayer L. J., Robbins J. M., Kapusta M. A. Somatization and depression in fibromyalgia syndrome. Am J Psychiatry. 1988 Aug;145(8):950–954. doi: 10.1176/ajp.145.8.950. [DOI] [PubMed] [Google Scholar]
  21. Leavitt F., Katz R. S., Golden H. E., Glickman P. B., Layfer L. F. Comparison of pain properties in fibromyalgia patients and rheumatoid arthritis patients. Arthritis Rheum. 1986 Jun;29(6):775–781. doi: 10.1002/art.1780290611. [DOI] [PubMed] [Google Scholar]
  22. Leavitt F., Katz R. S. Is the MMPI invalid for assessing psychological disturbance in pain related organic conditions? J Rheumatol. 1989 Apr;16(4):521–526. [PubMed] [Google Scholar]
  23. Ledingham J., Doherty S., Doherty M. Primary fibromyalgia syndrome--an outcome study. Br J Rheumatol. 1993 Feb;32(2):139–142. doi: 10.1093/rheumatology/32.2.139. [DOI] [PubMed] [Google Scholar]
  24. Powell E. D. Peer counselling in the management of diabetes mellitus. Can J Public Health. 1988 Jan-Feb;79(1):63–64. [PubMed] [Google Scholar]
  25. Scudds R. A., Rollman G. B., Harth M., McCain G. A. Pain perception and personality measures as discriminators in the classification of fibrositis. J Rheumatol. 1987 Jun;14(3):563–569. [PubMed] [Google Scholar]
  26. Snadden D., Brown J. B. The experience of asthma. Soc Sci Med. 1992 Jun;34(12):1351–1361. doi: 10.1016/0277-9536(92)90144-f. [DOI] [PubMed] [Google Scholar]
  27. Stewart M. J. Professional interface with mutual-aid self-help groups: a review. Soc Sci Med. 1990;31(10):1143–1158. doi: 10.1016/0277-9536(90)90236-l. [DOI] [PubMed] [Google Scholar]
  28. Uveges J. M., Parker J. C., Smarr K. L., McGowan J. F., Lyon M. G., Irvin W. S., Meyer A. A., Buckelew S. P., Morgan R. K., Delmonico R. L. Psychological symptoms in primary fibromyalgia syndrome: relationship to pain, life stress, and sleep disturbance. Arthritis Rheum. 1990 Aug;33(8):1279–1283. doi: 10.1002/art.1780330832. [DOI] [PubMed] [Google Scholar]
  29. Vaisrub S. The magic of a name. JAMA. 1980 May 16;243(19):1931–1932. [PubMed] [Google Scholar]
  30. Waylonis G. W., Heck W. Fibromyalgia syndrome. New associations. Am J Phys Med Rehabil. 1992 Dec;71(6):343–348. doi: 10.1097/00002060-199212000-00006. [DOI] [PubMed] [Google Scholar]
  31. Wolfe F., Cathey M. A., Kleinheksel S. M. Fibrositis (Fibromyalgia) in rheumatoid arthritis. J Rheumatol. 1984 Dec;11(6):814–818. [PubMed] [Google Scholar]
  32. Wolfe F., Hawley D. J., Cathey M. A., Caro X., Russell I. J. Fibrositis: symptom frequency and criteria for diagnosis. An evaluation of 291 rheumatic disease patients and 58 normal individuals. J Rheumatol. 1985 Dec;12(6):1159–1163. [PubMed] [Google Scholar]
  33. Wolfe F., Smythe H. A., Yunus M. B., Bennett R. M., Bombardier C., Goldenberg D. L., Tugwell P., Campbell S. M., Abeles M., Clark P. The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia. Report of the Multicenter Criteria Committee. Arthritis Rheum. 1990 Feb;33(2):160–172. doi: 10.1002/art.1780330203. [DOI] [PubMed] [Google Scholar]
  34. Yunus M. B., Masi A. T., Aldag J. C. A controlled study of primary fibromyalgia syndrome: clinical features and association with other functional syndromes. J Rheumatol Suppl. 1989 Nov;19:62–71. [PubMed] [Google Scholar]
  35. Yunus M., Masi A. T., Calabro J. J., Miller K. A., Feigenbaum S. L. Primary fibromyalgia (fibrositis): clinical study of 50 patients with matched normal controls. Semin Arthritis Rheum. 1981 Aug;11(1):151–171. doi: 10.1016/0049-0172(81)90096-2. [DOI] [PubMed] [Google Scholar]

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