Abstract
A national survey of 1937 members of the Canadian Celiac Association was conducted by mail questionnaire in June 1989 to study problems in diagnosing and managing celiac disease (CD) and dermatitis herpetiformis. Although 82% of the 1294 respondents were biopsied, 14% were diagnosed by their dramatic response to the gluten-free diet. Fifteen percent of biopsy-proven respondents saw five or more doctors before CD was diagnosed. Mean delays in diagnosis ranged from 5.8 (±10.9) years for those with nausea or vomiting to 13.9 (±14.5) years for those with headache or migraine.
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Selected References
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- Biemond I., Peña A. S., Groenland F., Mulder C. J., Tytgat G. N. Coeliac disease in The Netherlands: demographic data of a patient survey among the members of the Dutch Coeliac Society. Neth J Med. 1987 Dec;31(5-6):263–268. [PubMed] [Google Scholar]
- Bürgin-Wolff A., Berger R., Gaze H., Huber H., Lentze M. J., Nusslé D. IgG, IgA and IgE gliadin antibody determinations as screening test for untreated coeliac disease in children, a multicentre study. Eur J Pediatr. 1989 Apr;148(6):496–502. doi: 10.1007/BF00441541. [DOI] [PubMed] [Google Scholar]
- Calabuig M., Torregosa R., Polo P., Tuset L., Tomás C., Alvarez V., Garcia-Vila A., Brines J., Vilar P., Farré C. Serological markers and celiac disease: a new diagnostic approach? J Pediatr Gastroenterol Nutr. 1990 May;10(4):435–442. doi: 10.1097/00005176-199005000-00004. [DOI] [PubMed] [Google Scholar]
- Campbell C. B., Roberts R. K., Cowen A. E. The changing clinical presentation of coeliac disease in adults. Med J Aust. 1977 Jan 22;1(4):89–93. doi: 10.5694/j.1326-5377.1977.tb130530.x. [DOI] [PubMed] [Google Scholar]
- Carrington J. M. Coeliac disease: an analysis of Coeliac Society membership records. N Z Med J. 1986 Apr 23;99(800):279–281. [PubMed] [Google Scholar]
- GREEN P. A., WOLLAEGER E. E. The clinical behavior of sprue in the United States. Gastroenterology. 1960 Mar;38:399–418. [PubMed] [Google Scholar]
- Gregory C., Ashworth M., Eade O. E., Holdstock G., Smith C. L., Wright R. Delay in diagnosis of adult coeliac disease. Digestion. 1983;28(3):201–204. doi: 10.1159/000198987. [DOI] [PubMed] [Google Scholar]
- Guandalini S., Ventura A., Ansaldi N., Giunta A. M., Greco L., Lazzari R., Mastella G., Rubino A. Diagnosis of coeliac disease: time for a change? Arch Dis Child. 1989 Sep;64(9):1320–1325. doi: 10.1136/adc.64.9.1320. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Juby L. D., Rothwell J., Axon A. T. Cellobiose/mannitol sugar test--a sensitive tubeless test for coeliac disease: results on 1010 unselected patients. Gut. 1989 Apr;30(4):476–480. doi: 10.1136/gut.30.4.476. [DOI] [PMC free article] [PubMed] [Google Scholar]