Abstract
The purposes of this study were to test the feasibility of using a pen-based computer to capture self-reported symptom data, to evaluate the system, and to evaluate the importance of obtaining symptom data. The sample included 72 patients who were hospitalized for a variety of medical conditions. Self-reported symptom data was obtained with the automated Sign and Symptom Checklist. The feasibility of using an automated symptom checklist to capture self-reported symptom data was demonstrated. Patients' evaluations of the ease of use and the format of the system were primarily positive; mean ratings ranged from 4.58 to 4.70 on a 5-point scale. Patients indicated the importance of documenting symptoms, with a few suggesting that the use of an automated symptom checklist may increase communication between providers and patients. Study findings support the inclusion of self-reported symptom data in electronic health records and national health care databases.
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Selected References
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- Acuff R. D., Fagan L. M., Rindfleisch T. C., Carlson R. W., Tuttle M. S., Sherertz D. D. Integration of pen-based computer technology in clinical settings. Proc Annu Symp Comput Appl Med Care. 1994:1042–1042. [PMC free article] [PubMed] [Google Scholar]
- Beinlich I., Bokemeyer C., Räth U., Walter-Kirst R., Hartlapp J., Muschiol J., Fraass U., Schneider H. T. Pen-based remote data entry system. A pilot clinical trial. Arzneimittelforschung. 1993 Mar;43(3):399–404. [PubMed] [Google Scholar]
- Bell D. S., Kahn C. E., Jr Health status assessment via the World Wide Web. Proc AMIA Annu Fall Symp. 1996:338–342. [PMC free article] [PubMed] [Google Scholar]
- Brennan P. F., Strombom I. Improving health care by understanding patient preferences: the role of computer technology. J Am Med Inform Assoc. 1998 May-Jun;5(3):257–262. doi: 10.1136/jamia.1998.0050257. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Chang V. T., Thaler H. T., Polyak T. A., Kornblith A. B., Lepore J. M., Portenoy R. K. Quality of life and survival: the role of multidimensional symptom assessment. Cancer. 1998 Jul 1;83(1):173–179. doi: 10.1002/(sici)1097-0142(19980701)83:1<173::aid-cncr23>3.0.co;2-t. [DOI] [PubMed] [Google Scholar]
- Dolin R. H. Modeling the temporal complexities of symptoms. J Am Med Inform Assoc. 1995 Sep-Oct;2(5):323–331. doi: 10.1136/jamia.1995.96073835. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Holzman T. G., Griffith A., Hunter W. G., Allen T., Simpson R. J., Jr Computer-assisted trauma care prototype. Medinfo. 1995;8(Pt 2):1685–1685. [PubMed] [Google Scholar]
- Ingham J. M., Portenoy R. K. Symptom assessment. Hematol Oncol Clin North Am. 1996 Feb;10(1):21–39. doi: 10.1016/s0889-8588(05)70325-7. [DOI] [PubMed] [Google Scholar]
- Ireland R. H., James H. V., Howes M., Wilson A. J. Design of a summary screen for an ICU patient data management system. Med Biol Eng Comput. 1997 Jul;35(4):397–401. doi: 10.1007/BF02534097. [DOI] [PubMed] [Google Scholar]
- Lau L. M., Wright S. O., Garlick-Longhurst T. J., Graybill C. S., Warner H. R. Quality assessment and patient participation in care by means of a touch-screen computer. Clin Perform Qual Health Care. 1996 Jan-Mar;4(1):10–13. [PubMed] [Google Scholar]
- Le P. P., Kohane I. S., Weeks J. C. Using a pen-based computer to collect health-related quality of life and utilities information. Proc Annu Symp Comput Appl Med Care. 1995:839–843. [PMC free article] [PubMed] [Google Scholar]
- Locke S. E., Kowaloff H. B., Hoff R. G., Safran C., Popovsky M. A., Cotton D. J., Finkelstein D. M., Page P. L., Slack W. V. Computer interview for screening blood donors for risk of HIV transmission. MD Comput. 1994 Jan-Feb;11(1):26–32. [PubMed] [Google Scholar]
- Lucas R. W., Mullin P. J., Luna C. B., McInroy D. C. Psychiatrists and a computer as interrogators of patients with alcohol-related illnesses: a comparison. Br J Psychiatry. 1977 Aug;131:160–167. doi: 10.1192/bjp.131.2.160. [DOI] [PubMed] [Google Scholar]
- Osoba D. Self-rating symptom checklists: a simple method for recording and evaluating symptom control in oncology. Cancer Treat Rev. 1993;19 (Suppl A):43–51. doi: 10.1016/0305-7372(93)90056-w. [DOI] [PubMed] [Google Scholar]
- Poon A. D., Fagan L. M., Shortliffe E. H. The PEN-Ivory project: exploring user-interface design for the selection of items from large controlled vocabularies of medicine. J Am Med Inform Assoc. 1996 Mar-Apr;3(2):168–183. doi: 10.1136/jamia.1996.96236285. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Portenoy R. K., Thaler H. T., Kornblith A. B., Lepore J. M., Friedlander-Klar H., Kiyasu E., Sobel K., Coyle N., Kemeny N., Norton L. The Memorial Symptom Assessment Scale: an instrument for the evaluation of symptom prevalence, characteristics and distress. Eur J Cancer. 1994;30A(9):1326–1336. doi: 10.1016/0959-8049(94)90182-1. [DOI] [PubMed] [Google Scholar]
- Sanders G. D., Owens D. K., Padian N., Cardinalli A. B., Sullivan A. N., Nease R. F. A computer-based interview to identify HIV risk behaviors and to assess patient preferences for HIV-related health states. Proc Annu Symp Comput Appl Med Care. 1994:20–24. [PMC free article] [PubMed] [Google Scholar]
- Sanz M. F., Gómez E. J., Trueba I., Cano P., Arredondo M. T., del Pozo F. A pen-based system to support pre-operative data collection within an anaesthesia department. Proc Annu Symp Comput Appl Med Care. 1993:321–325. [PMC free article] [PubMed] [Google Scholar]
- Slack W. V., Hicks G. P., Reed C. E., Van Cura L. J. A computer-based medical-history system. N Engl J Med. 1966 Jan 27;274(4):194–198. doi: 10.1056/NEJM196601272740406. [DOI] [PubMed] [Google Scholar]
- Slack W. V., Porter D., Balkin P., Kowaloff H. B., Slack C. W. Computer-assisted soliloquy as an approach to psychotherapy. MD Comput. 1990 Jan-Feb;7(1):37-42, 58. [PubMed] [Google Scholar]
- Slack W. V., Safran C., Kowaloff H. B., Pearce J., Delbanco T. L. A computer-administered health screening interview for hospital personnel. MD Comput. 1995 Jan-Feb;12(1):25–30. [PubMed] [Google Scholar]
- Soetikno R. M., Provenzale D., Lenert L. A. Studying ulcerative colitis over the World Wide Web. Am J Gastroenterol. 1997 Mar;92(3):457–460. [PubMed] [Google Scholar]
- Van Cura L. J., Jensen N. M., Greist J. H., Lewis W. R., Frey S. R. Venereal disease. Interviewing and teaching by computer. Am J Public Health. 1975 Nov;65(11):1159–1164. doi: 10.2105/ajph.65.11.1159. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Vieweg B. W., DiFranco B. The use of automated assessment with seriously mentally ill clients. Behav Healthc Tomorrow. 1995 Jan-Feb;4(1):37–41. [PubMed] [Google Scholar]
- Von Korff M., Gruman J., Schaefer J., Curry S. J., Wagner E. H. Collaborative management of chronic illness. Ann Intern Med. 1997 Dec 15;127(12):1097–1102. doi: 10.7326/0003-4819-127-12-199712150-00008. [DOI] [PubMed] [Google Scholar]
- Wagner A. K., Ehrenberg B. L., Tran T. A., Bungay K. M., Cynn D. J., Rogers W. H. Patient-based health status measurement in clinical practice: a study of its impact on epilepsy patients' care. Qual Life Res. 1997 May;6(4):329–341. doi: 10.1023/a:1018479209369. [DOI] [PubMed] [Google Scholar]
- Zielstorff R. D. Capturing and using clinical outcome data: implications for information systems design. J Am Med Inform Assoc. 1995 May-Jun;2(3):191–196. doi: 10.1136/jamia.1995.95338872. [DOI] [PMC free article] [PubMed] [Google Scholar]
