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Proceedings of the AMIA Symposium logoLink to Proceedings of the AMIA Symposium
. 2001:329–333.

Problems and challenges in patient information retrieval: a descriptive study.

S Kogan 1, Q Zeng 1, N Ash 1, R A Greenes 1
PMCID: PMC2243602  PMID: 11825205

Abstract

Many patients now turn to the Web for health care information. However, a lack of domain knowledge and unfamiliarity with medical vocabulary and concepts restrict their ability to successfully obtain information they seek. The purpose of this descriptive study was to identify and classify the problems a patient encounters while performing information retrieval tasks on the Web, and the challenges it poses to informatics research. In this study, we observed patients performing various retrieval tasks, and measured the effectiveness of, satisfaction with, and usefulness of the results. Our study showed that patient information retrieval often failed to produce successful results due to a variety of problems. We propose a classification of patient IR problems based on our observations.

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Selected References

These references are in PubMed. This may not be the complete list of references from this article.

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