Abstract
BACKGROUND: Although interest in Consumer Health Informatics (CHI) has increased, a consensus definition of CHI does not yet exist. PURPOSE: To conduct a hypothesis-generating survey of AMIA members regarding definition and research agenda for CHI. METHODS: We solicited participation among AMIA members in an Internet-based survey focusing on issues related to a definition of CHI. RESULTS: One hundred thirty-five AMIA members responded. Participants indicated a broad spectrum of topics important to CHI including "self-help for disease management" and "patient access to their own medical records." CHI research was felt to rely heavily on public health methods such as epidemiology and outcomes research, a paradigm shift from traditional medical informatics. Responses indicated a perceived lack of funding and need for further research in CHI. CONCLUSIONS: A working definition should emphasize the multidisciplinary nature of CHI, include consumer input into CHI design, and focus on public health approaches to evaluation.
Full text
PDF
Selected References
These references are in PubMed. This may not be the complete list of references from this article.
- Bader S. A., Braude R. M. "Patient informatics": creating new partnerships in medical decision making. Acad Med. 1998 Apr;73(4):408–411. doi: 10.1097/00001888-199804000-00014. [DOI] [PubMed] [Google Scholar]
- Eysenbach G. Consumer health informatics. BMJ. 2000 Jun 24;320(7251):1713–1716. doi: 10.1136/bmj.320.7251.1713. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Ferguson T. Digital doctoring--opportunities and challenges in electronic patient-physician communication. JAMA. 1998 Oct 21;280(15):1361–1362. doi: 10.1001/jama.280.15.1361. [DOI] [PubMed] [Google Scholar]
- Kaplan B., Brennan P. F. Consumer informatics supporting patients as co-producers of quality. J Am Med Inform Assoc. 2001 Jul-Aug;8(4):309–316. doi: 10.1136/jamia.2001.0080309. [DOI] [PMC free article] [PubMed] [Google Scholar]