Abstract
The extent to which a doctor or health professional can make a valid assessment of a patient's quality of life, anxiety and depression was investigated in a series of cancer patients. Doctors and patients filled out the same forms, viz. the Karnofsky, Spitzer, Linear Analogue Self Assessment Scales and a series of simple scales designed for this study, at the same time. Correlations between the two sets of scores were poor, suggesting that the doctors could not accurately determine what the patients felt. A further study examining the reproducibility of these scales demonstrated considerable variability in results between different doctors. It is concluded that if a reliable and consistent method of measuring quality of life in cancer patients is required, it must come from the patients themselves and not from their doctors and nurses.
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Selected References
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- Aitken R. C. Measurement of feelings using visual analogue scales. Proc R Soc Med. 1969 Oct;62(10):989–993. doi: 10.1177/003591576906201005. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Calman K. C. Quality of life in cancer patients--an hypothesis. J Med Ethics. 1984 Sep;10(3):124–127. doi: 10.1136/jme.10.3.124. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Coates A., Abraham S., Kaye S. B., Sowerbutts T., Frewin C., Fox R. M., Tattersall M. H. On the receiving end--patient perception of the side-effects of cancer chemotherapy. Eur J Cancer Clin Oncol. 1983 Feb;19(2):203–208. doi: 10.1016/0277-5379(83)90418-2. [DOI] [PubMed] [Google Scholar]
- Gough I. R., Furnival C. M., Schilder L., Grove W. Assessment of the quality of life of patients with advanced cancer. Eur J Cancer Clin Oncol. 1983 Aug;19(8):1161–1165. doi: 10.1016/0277-5379(83)90042-1. [DOI] [PubMed] [Google Scholar]
- Grieco A., Long C. J. Investigation of the Karnofsky Performance Status as a measure of quality of life. Health Psychol. 1984;3(2):129–142. doi: 10.1037//0278-6133.3.2.129. [DOI] [PubMed] [Google Scholar]
- Morrow G. R., Chiarello R. J., Derogatis L. R. A new scale for assessing patients' psychosocial adjustment to medical illness. Psychol Med. 1978 Nov;8(4):605–610. doi: 10.1017/s003329170001881x. [DOI] [PubMed] [Google Scholar]
- Padilla G. V., Presant C., Grant M. M., Metter G., Lipsett J., Heide F. Quality of life index for patients with cancer. Res Nurs Health. 1983 Sep;6(3):117–126. doi: 10.1002/nur.4770060305. [DOI] [PubMed] [Google Scholar]
- Presant C. A., Klahr C., Hogan L. Evaluating quality-of-life in oncology patients: pilot observations. Oncol Nurs Forum. 1981 Summer;8(3):26–30. [PubMed] [Google Scholar]
- Priestman T. J., Baum M. Evaluation of quality of life in patients receiving treatment for advanced breast cancer. Lancet. 1976 Apr 24;1(7965):899–900. doi: 10.1016/s0140-6736(76)92112-7. [DOI] [PubMed] [Google Scholar]
- Selby P. J., Chapman J. A., Etazadi-Amoli J., Dalley D., Boyd N. F. The development of a method for assessing the quality of life of cancer patients. Br J Cancer. 1984 Jul;50(1):13–22. doi: 10.1038/bjc.1984.134. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Spitzer W. O., Dobson A. J., Hall J., Chesterman E., Levi J., Shepherd R., Battista R. N., Catchlove B. R. Measuring the quality of life of cancer patients: a concise QL-index for use by physicians. J Chronic Dis. 1981;34(12):585–597. doi: 10.1016/0021-9681(81)90058-8. [DOI] [PubMed] [Google Scholar]
- Zigmond A. S., Snaith R. P. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983 Jun;67(6):361–370. doi: 10.1111/j.1600-0447.1983.tb09716.x. [DOI] [PubMed] [Google Scholar]
- de Haes J. C., van Knippenberg F. C. The quality of life of cancer patients: a review of the literature. Soc Sci Med. 1985;20(8):809–817. doi: 10.1016/0277-9536(85)90335-1. [DOI] [PubMed] [Google Scholar]