Abstract
Patients are an important but overlooked participant in health information management. Patients serve as a source of self-monitoring data and for self-report of essential judgments such as preference for treatment and preferences for clinical outcomes. As the deliberations regarding the Computer-Based Patient Record initiative continue, decisions must be made about what patient-specific information will be entered in the record. In consideration of the mounting evidence that patient preferences represent an essential component in many health care decisions, it is timely to advocate for including patient preferences in the patient record. This represents one aspect of the patient role in health care information management.
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Selected References
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- Barry M. J., Mulley A. G., Jr, Fowler F. J., Wennberg J. W. Watchful waiting vs immediate transurethral resection for symptomatic prostatism. The importance of patients' preferences. JAMA. 1988 May 27;259(20):3010–3017. [PubMed] [Google Scholar]
- Davies A. R., Ware J. E., Jr Involving consumers in quality of care assessment. Health Aff (Millwood) 1988 Spring;7(1):33–48. doi: 10.1377/hlthaff.7.1.33. [DOI] [PubMed] [Google Scholar]
- Delbanco T. L. Enriching the doctor-patient relationship by inviting the patient's perspective. Ann Intern Med. 1992 Mar 1;116(5):414–418. doi: 10.7326/0003-4819-116-5-414. [DOI] [PubMed] [Google Scholar]
- Ellwood P. M. Shattuck lecture--outcomes management. A technology of patient experience. N Engl J Med. 1988 Jun 9;318(23):1549–1556. doi: 10.1056/NEJM198806093182327. [DOI] [PubMed] [Google Scholar]
- Essex B., Doig R., Renshaw J. Pilot study of records of shared care for people with mental illnesses. BMJ. 1990 Jun 2;300(6737):1442–1446. doi: 10.1136/bmj.300.6737.1442. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Froberg D. G., Kane R. L. Methodology for measuring health-state preferences--II: Scaling methods. J Clin Epidemiol. 1989;42(5):459–471. doi: 10.1016/0895-4356(89)90136-4. [DOI] [PubMed] [Google Scholar]
- Gilhooly M. L., McGhee S. M. Medical records: practicalities and principles of patient possession. J Med Ethics. 1991 Sep;17(3):138–143. doi: 10.1136/jme.17.3.138. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Kaplan Robert M. Health-related quality of life in patient decision making. J Soc Issues. 1991 Winter;47(4):69–90. doi: 10.1111/j.1540-4560.1991.tb01835.x. [DOI] [PubMed] [Google Scholar]
- Kasper J. F., Mulley A. G., Jr, Wennberg J. E. Developing shared decision-making programs to improve the quality of health care. QRB Qual Rev Bull. 1992 Jun;18(6):183–190. doi: 10.1016/s0097-5990(16)30531-0. [DOI] [PubMed] [Google Scholar]
- Pierce P. F. Deciding on breast cancer treatment: a description of decision behavior. Nurs Res. 1993 Jan-Feb;42(1):22–28. [PubMed] [Google Scholar]
- Sheldon M. G. Giving patients a copy of their computer medical record. J R Coll Gen Pract. 1982 Feb;32(235):80–86. [PMC free article] [PubMed] [Google Scholar]
- Smith R. C., Hoppe R. B. The patient's story: integrating the patient- and physician-centered approaches to interviewing. Ann Intern Med. 1991 Sep 15;115(6):470–477. doi: 10.7326/0003-4819-115-6-470. [DOI] [PubMed] [Google Scholar]
- Ware J. E., Jr, Sherbourne C. D. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992 Jun;30(6):473–483. [PubMed] [Google Scholar]
- Weiss S. J. Consensual norms regarding patient involvement. Soc Sci Med. 1986;22(4):489–496. doi: 10.1016/0277-9536(86)90053-5. [DOI] [PubMed] [Google Scholar]