Abstract
BACKGROUND: In 1997 a research based information leaflet designed for men considering being screened for prostate cancer was distributed to general practitioners (GPs) and consumer health information services. OBJECTIVES: To investigate consumer health information service staff opinions of the leaflet and the use they made of it. To find out whether such staff would find similar leaflets on other topics useful. DESIGN: A postal questionnaire survey sent to United Kingdom consumer health information services. RESULTS: Consumer health information service staff were enthusiastic about the content and presentation of the leaflet and gave it to many enquirers, including some who had not been given information by their GPs. Respondents were keen to be supplied with similar leaflets about different topics. Some respondents were reluctant to give the leaflet to people enquiring about screening for prostate cancer, for example, because they thought that the leaflet would cause anxiety, or because prostate cancer screening was not freely available locally. CONCLUSION: Consumer health information services can complement information provided by health professionals and make good use of research based information for consumers. However, they may withhold information from some people who might benefit from it and are not well placed to advise people about healthcare options. Strategic thinking is needed to encourage a more integrated approach to giving information and support for patients in making decisions.
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Selected References
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- Coulter A. Partnerships with patients: the pros and cons of shared clinical decision-making. J Health Serv Res Policy. 1997 Apr;2(2):112–121. doi: 10.1177/135581969700200209. [DOI] [PubMed] [Google Scholar]
- Entwistle V. A., Sheldon T. A., Sowden A. J., Watt I. S. Supporting consumer involvement in decision making: what constitutes quality in consumer health information? Int J Qual Health Care. 1996 Oct;8(5):425–437. doi: 10.1016/s1353-4505(96)00062-2. [DOI] [PubMed] [Google Scholar]
- Entwistle V. A., Watt I. S., Davis H., Dickson R., Pickard D., Rosser J. Developing information materials to present the findings of technology assessments to consumers. The experience of the NHS Centre for Reviews and Dissemination. Int J Technol Assess Health Care. 1998 Winter;14(1):47–70. doi: 10.1017/s0266462300010527. [DOI] [PubMed] [Google Scholar]
- Long A. F., Sheldon T. A. Enhancing effective and acceptable purchaser and provider decisions: overview and methods. Qual Health Care. 1992 Mar;1(1):74–76. doi: 10.1136/qshc.1.1.74. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Meredith P., Emberton M., Wood C. New directions in information for patients. BMJ. 1995 Jul 1;311(6996):4–5. doi: 10.1136/bmj.311.6996.4. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Milne R., Oliver S. Evidence-based consumer health information: developing teaching in critical appraisal skills. Int J Qual Health Care. 1996 Oct;8(5):439–445. doi: 10.1093/intqhc/8.5.439. [DOI] [PubMed] [Google Scholar]
- Oliver S., Rajan L., Turner H., Oakley A., Entwistle V., Watt I., Sheldon T. A., Rosser J. Informed choice for users of health services: views on ultrasonography leaflets of women in early pregnancy, midwives, and ultrasonographers. BMJ. 1996 Nov 16;313(7067):1251–1253. doi: 10.1136/bmj.313.7067.1251a. [DOI] [PMC free article] [PubMed] [Google Scholar]