Abstract
We have developed a system that uses the Newton MessagePad technology as part of a client-client-server paradigm to collect health-related quality of life information from breast cancer patients attending an outpatient clinic at the Dana-Farber Cancer Institute. Patients are asked to fill out an electronic questionnaire on the Newton, which then uploads the information into the institution's Oracle database. The program consists of a separate questionnaire engine and question base, facilitating questionnaire design and allowing us to give different questionnaires to different patients dynamically. The results of a preliminary trial show excellent user-acceptance of the device. Finally, we present a general framework for such systems and discuss issues that developers must consider when implementing a pen-based computer project.
Full text
PDFSelected References
These references are in PubMed. This may not be the complete list of references from this article.
- Cella D. F., Tulsky D. S., Gray G., Sarafian B., Linn E., Bonomi A., Silberman M., Yellen S. B., Winicour P., Brannon J. The Functional Assessment of Cancer Therapy scale: development and validation of the general measure. J Clin Oncol. 1993 Mar;11(3):570–579. doi: 10.1200/JCO.1993.11.3.570. [DOI] [PubMed] [Google Scholar]
- Chan L. S., Schonfeld N. How much information is lost during processing? A case study of pediatric emergency department records. Comput Biomed Res. 1993 Dec;26(6):582–591. doi: 10.1006/cbmr.1993.1041. [DOI] [PubMed] [Google Scholar]
- Locke S. E., Kowaloff H. B., Hoff R. G., Safran C., Popovsky M. A., Cotton D. J., Finkelstein D. M., Page P. L., Slack W. V. Computer-based interview for screening blood donors for risk of HIV transmission. JAMA. 1992 Sep 9;268(10):1301–1305. [PubMed] [Google Scholar]
- Sanz M. F., Gómez E. J., Trueba I., Cano P., Arredondo M. T., del Pozo F. A pen-based system to support pre-operative data collection within an anaesthesia department. Proc Annu Symp Comput Appl Med Care. 1993:321–325. [PMC free article] [PubMed] [Google Scholar]
- Slack W. V. A history of computerized medical interviews. MD Comput. 1984;1(5):52-9, 68. [PubMed] [Google Scholar]
- Spitzer W. O., Dobson A. J., Hall J., Chesterman E., Levi J., Shepherd R., Battista R. N., Catchlove B. R. Measuring the quality of life of cancer patients: a concise QL-index for use by physicians. J Chronic Dis. 1981;34(12):585–597. doi: 10.1016/0021-9681(81)90058-8. [DOI] [PubMed] [Google Scholar]