Abstract
Background
Children with intellectual or developmental disabilities (ID/DD) are more likely than typically developing children to experience behaviour problems. Parent training, such as the Incredible Years Parent Training (IYPT) series, has been a widely used intervention to support families with children with or at-risk for behaviour problems; yet to date, this programme has not been used with parents with young children with developmental delay or disabilities.
Method
This preliminary treatment group only study assessed the feasibility of implementing a modified parent training programme (IYPT-DD) with 25 families with 2-5 year old children with developmental delay. Intervention consisted of 12 weekly (2 ½ hour) sessions with topics covering developmentally appropriate play, praise, rewards, limit setting, and handling challenging behaviour.
Results
Results suggest preliminary evidence of efficacy in reducing negative parent and child behaviour and increasing parental perceptions of child positive impact.
Conclusions
This study provides evidence for the feasibility of the DD modifications applied to the IYPT. Although this approach is promising, additional evidence is needed to address the efficacy of IYPT-DD in children with developmental delay.
Keywords: Parent training, intellectual disability, autism, challenging behaviour, Incredible Years
It has been well documented that individuals with intellectual disability (ID) and other developmental disabilities are at heightened risk for developing a behaviour problem and/or mental health disorder (e.g. Dosen & Day 2001). Recent estimates suggest that more than a third of children and adolescents with ID have diagnosable psychiatric disorders (Einfeld & Tonge 1996; Emerson 2003). Dual diagnosis presents unique diagnostic (Sturmey 1995) and treatment challenges (Fletcher 2000) and leaves children at particular risk for unfavorable long-term outcomes, including, but not limited to, difficulties at home and school (McIntyre et al. 2002; McIntyre et al. 2006). For young children, serious maladaptive behaviour likely influences the adaptation to school in that student-teacher relationships and peer relationships may be disrupted (McIntyre et al. 2006; Peterson et al. 2002). The early adaptation to school, particularly in preschool and kindergarten years, is crucial because this sets the stage for later school-based experiences (Rimm-Kaufman & Pianta 2000).
Young children with developmental delay are at greater risk for developing emotional and/or behaviour problems; however, very little is known about the developmental pathways of these problems or the underlying mechanisms of risk. It is likely a combination of biological, environmental, and social factors that place children at risk (Sameroff & Fiese 2000). At a very early age, families are children’s main socializing agents. The home environment serves as the primary context for children’s development of adaptive (as well as maladaptive) strategies. This is consistent with the tenets of developmental psychopathology, emphasizing and understanding multiple pathways to adaptation.
Family processes have influenced the emergence of behaviour disorders in young children without disabilities (Baumrind 1989; Bronson 2000; Kumpfer & Alvarado 2003; Martin 1987; Russell & Russell 1996). In parsing the family risk factors, Gerald Patterson and colleagues (Patterson 1982; Patterson 1998; Patterson et al. 1989) suggest that negative, coercive parenting practices place typically developing children at risk for behavioural problems. In a study of family problem-solving with children with disabilities, Floyd et al. (2004) found that child behavior problems were associated with negative parent-child interactions. Baker and colleagues (2003) suggested a bi-directional relationship between parenting stress and child behaviour problems over time in families with young children with developmental problems. Indeed, a transactional relationship between children, their caregivers, and other environmental influences may best describe the inter-relationships among these risk factors (Sameroff & Chandler 1975; Sameroff & Fiese 2000). Proximal variables (e.g. child temperament, developmental/cognitive status, adaptive behaviour) and more distal factors (e.g. family variables, poverty) may help describe risk factors, but still do not explain direct causes of psychopathology in children. Even less is known about psychopathology in individuals with developmental delay or ID. Few studies examine young children at risk for dual diagnosis and even fewer studies examine treatment outcomes for such children.
The work of Baker and colleagues (2002, 2003) suggests that young children with developmental delay, as early as 3-years old, are already exhibiting increased behaviour problems and negatively impacting their families. Existing behaviour problems may be exacerbated by parental stress over time (e.g. Baker et al. 2003). What is unknown is whether the presence of parental stress influences the emergence of behaviour problems in young children. Regardless of underlying cause or mechanism of psychopathology, there is a strong need for earlier, preventive efforts with families. Parent training, a promising form of intervention, has been used with families who have children with intellectual disability (ID) as well as families with children with behaviour disorders.
Parent Training
Children with conduct problems
Practitioners and researchers have, for decades, utilized behavioural parent training to treat conduct disorder in children (e.g. Forehand & McMahon 1981). This approach is based on: (1) social learning theory principles, such as modeling (Bandura 1977), (2) positive and negative reinforcement to modify behaviour (Holland & Skinner 1961), and (3) a consideration of developmental psychopathology (Hinshaw 2002) that is influenced by a transactional model of parent-child interactions (Sameroff & Fiese 2000). Altering parent behaviour, that is, increasing positive parent-child interactions and reducing negative or coercive parent-child interactions, is thought to result in a reduction of child behaviour problems (Patterson 1982). Parent training programmes have been useful in reducing child behaviour problems and increasing parental competence and positive parent-child relationships (Eyberg 1992; Webster-Stratton 2000; Webster-Stratton & Hammond 1997).
Carolyn Webster-Stratton and her colleagues have developed a parent training programme, the Incredible Years Parent Training (IYPT) series, which has been demonstrated to be more effective than control treatments in six randomized trials and in five independent replication studies (Webster-Stratton 1984, 1994, 2000) in reducing children’s problem behaviour and increasing parents’ adaptive parenting skills. Webster-Stratton’s parent training series utilizes videotape modeling, role-playing, rehearsal, and weekly homework activities in small groups of 8-14 parents (see Webster-Stratton 2000 for a review). Webster-Stratton and her colleagues have also used IYPT with parents who have children at risk for adverse academic-socio-behavioural outcomes, due in part to their poverty status (Gross et al. 2003). The Incredible Years series also includes teacher training and child skill-building components, making this approach an efficacious treatment for children with conduct problems and a useful prevention technique for high-risk children and families. The Division 12 (clinical psychology) task force of the American Psychological Association deemed Webster-Stratton’s Incredible Years series as one of two well-established psychosocial treatments for childhood conduct problems (Brestan & Eyberg 1998).
Children with intellectual disability
Parent training also has a long history for use with children with ID. For example, Kaiser and colleagues have taught parents to implement milieu teaching intervention to increase the vocalizations of young children with developmental disabilities (e.g., Hemmeter & Kaiser 1994; Hester et al. 1996, Kaiser et al. 1996, Kaiser et al. 2000). Many parent training programmes (e.g. Baker 1996; Baker & Brightman 2004; Shearer & Snider 1981) have focused on both increasing children’s adaptive behaviour as well as decreasing maladaptive behaviour. Although behaviour management has been included in these programmes, maladaptive behaviour has not been the primary focus. . There are, however, programmes that primarily focus on maladaptive behaviour (e.g. Hudson et al. 2003); however, these programmes have focused on intervention with older children (e.g. Feldman & Werner 2002), children with specific diagnoses such as autism (e.g. RUPP Autism Network 2007; Tonge et al. 2006) or have only included children with pre-existing behaviour disorders (e.g. Chadwick et al. 2001). In the applied behaviour analysis literature, parent training procedures have used single case experimental methodology and have emphasized individualized parent training approaches that incorporate technology such as functional analysis (e.g. Lerman et al. 2000).
Although there are few randomized controlled trials of parent training interventions for families with young children with ID (Roberts et al. 2003), recently the Positive Parenting Programme (Triple P; Sanders 1999) has been adapted for use with parents of children with ID (Plant & Sanders 2007; Roberts et al. 2006). Stepping Stones Triple P was evaluated with 47 families who had preschool-aged children with a range of disabilities, including those with mild to severe ID using a randomized wait-list control design (Roberts et al. 2006). Parent training was individually administered to parents in 10 2-hour clinic-based sessions and included 3 to 4 home visits. Post-intervention, parents and children had reduced negative behaviours and parenting stress (Roberts et al. 2006). In a follow-up study, Plant and Sanders (2007) compared the Stepping Stones Triple P intervention with an enhanced version of Stepping Stones Triple P that emphasized enhancing parental coping skills. Both interventions resulted in significant reductions in child behaviour problems. Both interventions utilized individualized training procedures, that is a therapist worked one-on-one with each family, rather than conducting the intervention in a group-based format. Furthermore, participants in the Stepping Stones Triple P programme had a range of intellectual functioning, including severe intellectual disability. To be included in the study, children had preexisting behaviour problems, emphasizing behavioural reduction rather than preventive (or early intervention) procedures.
Although some authors have argued that group-based parent training may not be as effective or as acceptable to families (e.g. Chadwick et al. 2001), group-based approaches may be more cost-efficient than individualized sessions (e.g. Webster-Stratton 1994). Implementing group-based parent training groups may increase parents’ knowledge of behavioural principles and teaching (Clark & Baker 1983; Prieto-Bayard & Baker 1986) and has the added benefit of increasing perceived social support for participants (Intagliata & Doyle 1984). Group-based parent training to reduce negative parent-child interactions, increase positive feelings toward the child, and build positive parent-child relationships has not typically been demonstrated with families who have young children with developmental delay. The utility of parent training as an early intervention/preventive strategy for young children with delay has not been fully explored.
Study Goals and Hypotheses
The primary goals of the proposed study were: to assess the feasibility of Webster-Stratton’s Incredible Years Basic Parent Training— Early Childhood programme (IYPT) for use with families who have young children with developmental delay, and to establish preliminary evidence of efficacy in reducing children’s maladaptive behaviours and negative parent-child interactions, often associated with problem behaviour. Webster-Stratton’s Incredible Years program has not been used with families who have young children with DD; however, this is a well-established approach for families with children with behaviour disorders without DD.
Because children with mild to moderate developmental delay often experience behaviour problems similar to typical children with behaviour disorders (Einfeld & Tonge 1996; Pfeiffer & Baker 1994; e.g. noncompliance, inappropriate play, aggressive, antisocial, and withdrawn behaviours), it was hypothesized that the IYPT would require only slight modifications to be appropriate for this group (as indicated by parent-reported satisfaction, treatment acceptability, and session attendance rates). In addition, it was hypothesized that parents would engage in significantly fewer inappropriate/negative interactions with their children post-treatment when compared to pre-treatment observations. Other outcomes explored were changes in child behaviour problems, family impact, and parental depression.
Method
Participants
Parents and their preschool-aged (2-5 years) children with developmental concerns were recruited from early intervention and preschool programmes in two counties in New York State. Parents responded to recruitment flyers and after obtaining consent, were screened over the phone to assess whether their child met the following inclusionary criteria: (1) age between 2-5 years, (2) Adaptive Behaviour Composite standard score between 45-85 on the Vineland Adaptive Behaviour Scales (Sparrow et al. 1984) (3) ambulatory, and (4) living with the primary caregiver for at least six months. Children were excluded if they were deaf, blind, or had severe disabilities because individuals with sensory disorders and/or more severe disabilities are at heightened risk for different topographies of maladaptive behaviour, including pica and self-injury. Individuals with mild to moderate disabilities experience behaviour problems that are more similar to those experienced by typically developing individuals (Einfeld & Tonge 1996; Pfeiffer & Baker 1994).
Twenty-eight families met eligibility criteria and consented to participate; however one dropped out prior to beginning the intervention and two dropped out within the first two weeks of the intervention due to family or work commitments, leaving a sample of 25 families. The three families who dropped out prior to completing the study did not significantly differ from the remaining 25 families with respect to child or family demographic characteristics. Table 1 provides child and family demographics. All of the children qualified for and received special preschool or early intervention programmes for toddler and preschool-aged children. The majority of children (92%) received speech therapy and occupational therapy and approximately half (52%) received physical therapy. The sample included children between the ages of 2 and 5 years (M = 3.99, SD = .87) with mild to moderate developmental delays as evidenced by their adaptive behaviour scores on the Vineland. Not all children communicated using speech; however, the mean Communication Domain score on the Vineland was 69.81 (SD = 15.35). Mean communication subdomain raw scores were as follows: receptive communication 19.68 (SD = 3.42), expressive communication 21.26 (SD = 12.81), and written communication 0.42 (SD = 1.07). Twenty-three of the children (92.0%) were enrolled in inclusive early education programmes alongside typically developing peers. One child was in a segregated preschool setting and one child received his early education programming at home.
Table 1.
Variable | N (%) | Mean | SD |
---|---|---|---|
Child Characteristics | |||
Age (Years) | 3.99 | 0.87 | |
Sex (% Male) | 23 (92) | ||
Race (% White/Caucasian) | 24 (96) | ||
Diagnosis (% ASD) | 13 (52) | ||
VABS Adaptive Behaviour Composite | 63.672 | 9.97 | |
Communication Domain - Standard Score | 69.81 | 15.35 | |
Daily Living Skills Domain - Standard Score | 63.81 | 9.07 | |
Socialization Domain - Standard Score | 68.57 | 12.04 | |
Motor Skills Domain - Standard Score | 75.14 | 18.27 | |
CBCL Total Problems | 65.36 | 11.71 | |
CBCL (% At-Risk/T score 65+) | 13 (52) | ||
Siblings (% Siblings Present) | 19 (76) | ||
(% Learning/Behaviour Problems) | 9 (36) | ||
Primary Caregiver Characteristics | |||
Age (Years) | 33.56 | 5.34 | |
Mother (% Biological) | 23 (92) | ||
Living with Partner (%) | 23 (92) | ||
Education (% Some College) | 21 (84) | ||
Risk for Depression (% clinical CESD) | 13 (52) | ||
Work Status (% Part- or Full-Time) | 11 (44) | ||
Family Income (% <$35,000/yr) | 8 (32) | ||
Federal Aid (% Received) | 8 (32) |
Setting
The group parent training sessions were held in the evening (Monday or Tuesday 5:30-8:00 pm) at two different community early education programmes. Free childcare and dinner were provided at each session. Intervention locations were selected based on their accessibility to the majority of participants, with one located on a city bus route. If transportation presented a hardship to any participant, complimentary bus tokens were provided or taxis arranged. All assessments (with the exception of the initial phone screen) were conducted in the participating family’s home at a convenient time for the family (e.g. evening, weekend).
Procedure
The author has 13 years experience working with children with ID and their families. Prior to implementing the current study, the author received training from certified Incredible Years trainers on the implementation of the programme. Additionally, before the programme was used in the current research, the author conducted one pilot intervention group to become more familiar with the procedures and seek input from caregivers on which aspects of the programme were most appropriate for use with families with children with developmental delay or disabilities. Furthermore, input from community stakeholders (e.g. preschool teachers, early childhood specialists, therapists and parents attending support groups for intellectual disability) was solicited regarding the most applicable components of the programme for families with children with developmental delay or disabilities. Behavioural theory, specifically the contributions of applied behaviour analysis, guided the modifications. Throughout the sessions and content covered, developmentally appropriate practices were emphasized. Parents were encouraged to think about how the general topics applied to their specific children.
This research received approval from the University’s Institutional Review Board. Eligible families were mailed an informed consent form and packet of questionnaires to be completed either on their own or with the assistance of the research staff at the time of their home visit. Prior to the first parent training session, all families completed a home visit and were videotaped during a 15-minute parent-child play interaction. The home visit and packet of questionnaires were completed 1-2 weeks prior to the intervention and then 1-2 weeks following the intervention.
Measures
Family demographics
Family and child demographics were obtained at the initial home visit. Variables of interest were: maternal and paternal age, ethnic/racial background, education, employment, family income, and child educational and therapeutic services received.
Child Characteristics
Child developmental functioning
The Vineland Adaptive Behaviour Scales (VABS; Sparrow et al. 1984) was administered to parents to determine if children met the developmental functioning criterion for inclusion (Adaptive Behaviour Composite standard scores between 45-85). The VABS is a structured interview pertaining to individuals with or without disabilities to assess adaptive behaviour in four areas: (1) Communication, (2) Daily Living Skills, (3) Socialization, and (4) Motor Skills. These subscales are combined to make up the Adaptive Behaviour Composite standard score (M = 100; SD = 15).
Child behaviour problems
Parents completed the Child Behaviour Checklist for Ages 1 ½ -5 (CBCL; Achenbach 2000) pre- and post-intervention. The CBCL has 99 items that indicate child problems. The child’s parent indicates, for each item, whether it is “not true” (0), “somewhat or sometimes true” (1), or “very true or often true” (2), now or within the past two months. The CBCL yields a total problem score, broad-band externalizing and internalizing scores, and narrow-band scales. The total problems T score (M = 50; SD = 10) was used in this study. A T score of 1.5 standard deviations above the mean (⩾65) was used to indicate “risk” for developing a behavior disorder. Internal consistency reliability at the initial time point for the current sample was alpha = .92 for the total problems scale.
Family Functioning and Well-Being
Family impact of the child
The Family Impact Questionnaire (FIQ; Donenberg & Baker 1993) is a 50-item questionnaire that was administered at the pre- and post-intervention home visits. The FIQ asks about the “child’s impact on the family compared to the impact other children his/her age have on their families.” Five scales measure negative impact, on feelings about parenting (9 items), social relationships (11 items), finances (7 items), siblings (9 items) and marriage (7 items). One scale measures impact on positive feelings about parenting (7 items). The negative impact on feelings about parenting and social relationships scales were combined to create a negative impact/stress composite (current sample alpha = .89), and the positive feelings about parenting items formed the positive impact scale (current sample alpha = .80). Previous work has demonstrated the utility of the positive and negative impact composite scores for families with and without children with developmental disabilities (e.g. Baker et al. 2003; Blacher & McIntyre, 2006).
Parent depression
The Center for Epidemiologic Studies-Depression Scale (CES-D; Radloff 1977) is a 20-item self-report that was administered pre- and post-intervention to measure caregiver’s depressive symptoms of moods and feelings. Internal consistency reliability for the current sample was alpha = .91. A cut-score of 16 or higher indicates risk for depression. This scale has been used in previous studies to assess maternal depressive symptomatology in caregivers who have a child with intellectual disability (e.g. Blacher et al. 1997).
Parent-Child Interactions
Parent and Child Observed Behaviour
Parent-child interactions during unstructured activities are important indices of the quality of the dyadic relationship. Unstructured, naturally-occurring interactions between parents and their children are an important means of collecting data on dyadic exchanges. An observational system was developed in pilot testing for the current study with observation categories rationally-derived based on the Incredible Years Parent Training core content areas. This observation system (Phaneuf & McIntyre 2007) uses partial-interval coding for seven parent inappropriate behaviour categories (Inappropriate play behaviour, Intrusion on child’s independence, Attention/Rewards for child’s inappropriate behaviours, Inappropriate commands, Lack of follow through, Criticism, and Aggression) and inappropriate child behaviours (aggression, disruption, negative vocalizations). Appropriate child-directed praise is coded using event/frequency coding. Of interest to the present study were the seven categories of inappropriate parent behaviour and the combined inappropriate index of parent behaviour. Intervals were coded for the presence or absence of an inappropriate behaviour. An interval can be coded as “positive” for more than one inappropriate behaviour category. Thus, the combined inappropriate index of parent behaviours is not simply a sum of the seven inappropriate behaviours; rather it is the total number of intervals containing an inappropriate behaviour divided by 100. Parents’ use of appropriate praise was also investigated. Due to low base rates of specific child maladaptive behaviour (i.e. physical aggression, disruption, screaming), only the combined inappropriate index of children’s behaviour was used in the current study. Table 2 provides a description of each of the behavioural categories used in the present study.
Table 2.
Parent/Child | Category | Example |
---|---|---|
Parent Behaviours |
Inappropriate Play Behaviour | - Parent directed play - Competitiveness - Quiz questions - Insensitive to child’s signals/cues |
Intrusion on Child’s Independence | - Parent assists child with task when unnecessary. - Parent insists on completing a task his/her way |
|
Positive Consequences for Child’s Inappropriate Behaviours |
- Inappropriate delivery of tangible - Delivery of verbal and/or non-verbal attention after inappropriate behaviour |
|
Inappropriate Command | - Ambiguous command - No-opportunity commands - Repeated commands - Stop commands - Don’t command without options - Threatening commands |
|
Lack of Follow Through | - Withdrawing commands - Ignoring compliance to commands - Lack of praise after compliance |
|
Criticism | - Negating child’s statements - Expressing discontent with child’s performance |
|
Aggression | - Physical aggression - Verbal aggression |
|
Combined Inappropriate | - Composite of the seven inappropriate behaviours. |
|
Appropriate Praise | - Reinforcing a positive behaviour through attention, a hug, a smile, or verbal praise. |
|
Child Behaviour | Combined Inappropriate | - Physical aggression, disruptive behaviour, screaming, or other negative vocalizations |
Consumer satisfaction with intervention
An adaptation of the Consumer Satisfaction Questionnaire (CSQ; Forehand & McMahon 1981) was utilized to assess parents’ perceptions of the group leader’s effectiveness, the group dynamics, the videotape vignettes, the usefulness of content covered, and the effectiveness of the programme’s methods. This scale has 44 items assessed on a 7-point scale and five summary scales: overall program satisfaction (11 items; alpha = .74), programme usefulness (9 items; alpha = .87), leader/therapist satisfaction (5 items; alpha = .80), satisfaction with teaching tools (10 items; alpha = .76), and specific parenting strategies/techniques (9 items; alpha = .88). This adaptation of the CSQ has been used in previous evaluations of the Incredible Years Parent Training series (e.g. Reid et al. 2001).
Incredible Years Parent Training – Developmental Delay Modifications (IYPT-DD)
Based on the pilot work and input from community stakeholders, a slightly modified Incredible Years Parent Training for children with developmental delays (IYPT-DD) was developed. Webster-Stratton’s main content areas of play, praise, rewards, limit setting, and handling challenging behaviours were retained; however, the toddler programme modifications (see Webster-Stratton 2001) were followed due to the chronological and developmental age of the children. In addition to the scripted discussion questions used for each vignette (see Webster-Stratton 2001), all parents were encouraged to identify the key points that could be generalized to their children with developmental delay and were asked to identify which aspects of the vignettes did not relate. Additional modifications included: having parents identify blessings and challenges of raising a child with a delay in addition to articulating their goals for the series (session 1); excluding the content on time out, due to the age and developmental level of the children, and focusing on predicting and avoiding problem behaviour by collecting information on antecedents and consequences to their child’s problem behaviours (sessions 6-7); and, providing informational handouts to parents on disability-related support groups and advocacy organizations in the community (session 10). See Table 3 for the content areas covered and a summary of modifications.
Table 3.
Session | Topic | Modifications |
---|---|---|
1 | Introduction & Goals | Blessings and challenges of raising a child with special needs |
2 | Developmentally Appropriate Play - I |
Consider child’s developmental level, interests, and support needs. When viewing vignettes, consider which aspects apply to children with DD and which do not. |
3 | Developmentally Appropriate Play - II |
Consider child’s developmental level, interests, and support needs. When viewing vignettes, consider which aspects apply to children with DD and which do not. |
4 | Positive Strategies - Praise | Consider child’s developmental level, interests, and support needs. When viewing vignettes, consider which aspects apply to children with DD and which do not. |
5 | Positive Strategies - Rewards |
Discuss altering traditional token economy systems and sticker charts to children’s developmental levels. Discuss conducting preference assessments to identify possible reinforcers. |
6 | Handling Challenging Behaviors |
Discuss conducting functional assessment (using antecedents, behaviours, and consequences). Complete ABC chart. |
7 | Handling Challenging Behaviour |
Developing behavioural intervention plans based on results of FBAs. Discuss functionally-equivalent replacement beahviours. |
8 | Effective Limit Setting - Part I (Commands) |
Consider child’s developmental level, interests, and support needs. When viewing vignettes, consider which aspects apply to children with DD and which do not. |
9 | Effective Limit Setting - Part II (Ignoring and Redirecting) |
Consider child’s developmental level, interests, and support needs. When viewing vignettes, consider which aspects apply to children with DD and which do not. |
10 | Advocacy, Working with Professionals, and Transition to Kindergarten |
Discuss services provided through local agencies. Discuss strategies for engaging in meaningful parent- professional partnerships. Discuss special education law and issues pertaining to transition from preschool to elementary school. |
11 | Review: Challenging Behavior and Limit Setting |
Review material discussed to date, emphasizing content from sessions 6-9. |
12 | Putting it All Together/Celebration |
No modifications made. |
Note. The toddler programme modifications were followed (see Webster-Stratton, 2001) in addition to the DD modifications.
Reliability and Treatment Integrity
For videotaped parent-child interaction data, two independent observers coded data during 75% of videotaped sessions using interval-by-interval agreement. Kappa coefficients were used to calculate interobserver agreement for each of the parent behavior categories as well as the combined inappropriate behavior index for children’s maladaptive behaviour. Interrater agreement was as follows: inappropriate play behaviour (kappa = .90), intrusion on child’s independence (kappa = .88), positive consequences for child’s inappropriate behaviours (kappa = .75), inappropriate commands (kappa = .83), lack of follow through (kappa = .77), criticism (kappa = .76), aggression (not applicable; this behavior was not observed), parent appropriate praise (kappa = .86), and children’s combined inappropriate behaviour index (kappa = .83). To ensure that the parent training intervention was implemented as intended, a treatment manual was followed with treatment component checklists for each session. An independent observer collected treatment integrity data during 50% of sessions by following along with the treatment component checklist and indicating the presence or absence of each treatment step to calculate percentage of steps completed. One hundred percent of intervention components were implemented as intended.
Results
Feasibility of IYPT-DD Modifications
To assess the feasibility of the IYPT-DD modifications, parent feedback during weekly sessions was obtained and consumer satisfaction data were gathered following the last parent training session. Parent attendance data were also collected as an additional indicator of the feasibility of the intervention. Parents evaluated the content, videotape vignettes, teaching, and group discussion each week using a 4-point scale (1 = not helpful; 2 = neutral; 3 = helpful, and 4 = very helpful). Parent ratings indicated that, on average, all aspects of the sessions were helpful. The mean ratings for each of the four areas were: content 3.56 (SD = 0.28); videotape vignettes 3.01 (SD = 0.57), teaching 3.60 (SD = 0.34); and group discussion 3.60 (SD = 0.32). Following the last treatment session, parents completed a lengthy consumer satisfaction questionnaire which asked parents to rate their satisfaction with the programme using a 7-point scale (1 = very dissatisfied; 2 = dissatisfied; 3 = slightly dissatisfied; 4 = neutral; 5 = slightly satisfied; 6 = satisfied; 7 = greatly satisfied). The specific categories and mean ratings were as follows: overall programme 5.65 (SD = 0.50); programme usefulness 5.86 (SD = 0.61); leader/therapist 6.72 (SD = 0.41); teaching tools 5.47 (SD = 0.87); and specific parenting strategies/techniques 5.12 (SD = 1.01). The average score across all 44 items was 5.71 (SD = 0.49), indicating slightly satisfied to satisfied. Another indicator of satisfaction and feasibility was participant attendance. The attendance rate was high, with the majority of parents (n = 21; 84%) completing 80% or more of all treatment sessions (range 58 – 100%).
Preliminary Evidence of Efficacy
Although the main goal of this study was to demonstrate the feasibility of implementing the Incredible Years series with minor modifications for parents of young children with developmental delay (IYPT-DD), preliminary evidence of efficacy was also explored. Table 4 displays pre- and post-intervention data for observed parent and child behaviour during parent-child interactions, child behaviour problems (CBCL), child positive and negative impact on the family (FIQ), and maternal depression (CES-D). Paired comparison t tests are presented using participants scores pre- and post-intervention. Given the hypothesized direction of effects, all t tests used one-tailed tests of significance. Cohen’s d or partial eta-square effect sizes are included as estimates of the magnitude of intervention effects.
Table 4.
Measure |
Pre-intervention Mean (SD) |
Post-intervention Mean (SD) |
t or F |
d or Partial η2 |
---|---|---|---|---|
Parent-Child Interactions | ||||
Observed Parent Behaviour | ||||
Negative/Inappropriate | ||||
Combined Inappropriate | 62.75 (19.90) | 24.27 (21.69) | 7.12*** | 1.83 |
Inappropriate Play | 33.49 (17.09) | 9.83 (11.51) | 5.30*** | 1.62 |
Intrusion | 7.06 (10.12) | 1.80 (4.02) | 2.22* | 0.68 |
Positive Consequences following Child Problem Behavior |
2.51 (4.05) | 1.33 (2.88) | 1.06 | 0.34 |
Inappropriate Commands | 21.14 (9.50) | 8.38 (6.93) | 6.88** | 1.53 |
Lack of Follow Through | 11.44 (8.98) | 4.70 (6.59) | 2.81* | 0.86 |
Criticism | 2.32 (7.82) | 0.20 (0.97) | 1.31† | 0.38 |
Aggression | 0.00 (0.00) | 0.00 (0.00) | -- | -- |
Positive/Appropriate Behavior | ||||
Praise (Rate per Minute) | 0.43 (0.37) | 0.50 (0.51) | -1.36† | -0.18 |
Observed Child Behaviour | ||||
Combined Inappropriate | 10.12 (13.36) | 6.18 (9.73) | 1.70* | 0.34 |
Child Behaviour Problems | ||||
CBCL Total Problems T score | 65.21 (11.94) | 64.83 (12.12) | 0.33 | 0.03 |
Child Impact on Family | ||||
Negative Impact - FIQ | 32.13 (12.56) | 30.92 (12.19) | 0.71 | 0.10 |
Positive Impact - FIQ | 8.58 (4.28) | 9.88 (4.21) | -1.97* | -0.31 |
Maternal Depression | ||||
CES-D Total Scorea | 16.33 (11.60) | 17.50 (14.07) | F = 1.94 | Partial η2 = 0.08 |
Note
p = .10,
p < .05,
p <.001
Child diagnosis (ASD vs. DD) served as a covariate in this analysis.
Parent behaviour
The presence of seven inappropriate parent behaviours during home-based parent-child interactions were tallied using partial interval coding. Table 4 displays the combined inappropriate behaviour index followed by each of the seven inappropriate behaviour categories. Prior to participating in the 12-week IYPT-DD sessions, mothers averaged 62.75% of intervals containing inappropriate behaviours (combined inappropriate behaviour index). Post-intervention, the mean percentage of intervals containing inappropriate behaviour was reduced to 24.27 (t(24) = 7.12, p = .000, d = 1.83). Pre-intervention, the most common inappropriate behaviours were inappropriate play (M = 33.49; SD = 17.09), inappropriate commands (M = 21.14; SD = 9.50) and lack of follow through (M = 11.44; SD = 8.98). Post-intervention, there were significant reductions in inappropriate play (t(24) = 5.30, p = .000, d = 1.62), intrusion on child’s independence (t(24) = 2.22, p = .018, d = .68), inappropriate commands (t(24) = 6.88, p = .000, d = 1.53), and lack of follow through (t(24) = 2.81, p = .005, d = .86), with a trend approaching a significant reduction in criticism (t(24) = 1.31, p = .10, d = .38). Frequency of appropriate praise was collected and converted to a rate per minute. Praise increased from pre-intervention (M = .43, SD = .37) to post-intervention (M = .50, SD = .41), approaching statistical significance (t(24) = -1.36, p = .093); however, this was a small effect (d = -.18).
Child behaviour
Children’s inappropriate behaviour was observed during parent-child interactions. On average, children engaged in maladaptive behaviour during 10.12% of intervals (SD = 13.36) pre-intervention. Post-intervention, children’s observed maladaptive behaviour significantly reduced to 6.18% of intervals (SD = 9.73) (t(24) = 1.70, p = .052, d = .34). Reports of child behaviour problems, as measured by the CBCL total problems T scores, did not significantly differ pre- to post-intervention (see Table 4).
Family well-being
In terms of the child impact on family (FIQ), parents reported more child positive impact post-intervention than pre-intervention (t(24) = -1.97, p = .030, d = -.31); however, there was no statistically significant reduction in negative impact post-intervention. Because parents who had children with autism spectrum disorder (ASD) reported less depression (M = 10.77, SD = 6.29) pre-intervention than parents who children with other developmental delays or disabilities (DD) (M = 22.75, SD = 12.61), child diagnosis served as a covariate in the analysis examining change in CES-D from pre- to post-intervention. There was no change in maternal depression post-intervention (see Table 4). Percentage of mothers exceeding the clinical cut-score indicating risk for depression (CES-D score of ≥16) was examined pre- and post-intervention for mothers of children with ASD and DD. Pre-intervention, 31% of mothers with a child with ASD were considered at risk for depression in comparison with 75% of mothers with a child with DD χ2 (1, N = 25) = 4.89, p = .047). Post-intervention, there were no differences between mothers with children with ASD (31%) and mothers with children with DD (58%) in risk for depression using cut-scores on the CES-D (χ2 (1, N = 25) = 1.51, p = .414).
Clinical significance
The Reliable Change Index (RCI; Jacobson & Truax 1991) was used to assess clinical significance of change from pre- to post-intervention and was calculated using the following formula: RCI = X1 – X2 / Sdiff. Jacobson and Truax (1991) suggest that if the calculated reliable change index score is greater than 1.96 (p < .05), the change is deemed large enough to be reliable and clinically significant. To calculate RCI, the mean post-score (X2) was substracted from the mean pre-test score (X1), and divided by the spread of distribution of change scores that would be expected if no actual change had occurred (S diff). According to Jacobson and Truax, Sdiff can be computed directly from the standard error of measurement using the following equation: Sdiff= √(SE)2. Standard error of measurement (SE) estimates can be calculated various ways depending on which reliability estimate (e.g., test-retest, internal consistency, kappa) and standard deviation estimate is used (e.g., Feldt et al. 1985; Gardner 1970). For this analysis, cronbach alphas were used to estimate reliability of paper-pencil measures (e.g., CBCL, CESD) and kappa coefficients were used for observational measures of parent-child interactions. The standard deviation of baseline measures was used given the range of scores obtained pre-treatment. Table 5 displays the frequency and percentage of child and parent participants demonstrating clinically significant change in behaviour and well-being variables from pre- to post-intervention. The majority of parents (68%) demonstrated clinically significant change on observed inappropriate behaviour during parent-child interactions, with more than half increasing their use of positive/praise behavior (56%). Less than one fifth children (16%) showed clinically significant reductions in observed inappropriate behaviour. Using this index of change, 12% of parents reported increases in child positive impact and decreases in child negative impact on the family (see Table 5).
Table 5.
Measure | N | % |
---|---|---|
Parent-Child Interactions | ||
Observed Parent Behaviour | ||
Negative/Inappropriate | ||
Combined Inappropriate | 17 | 68 |
Inappropriate Play | 15 | 60 |
Intrusion | 5 | 20 |
Positive Consequences following Child Problem Behavior |
5 | 20 |
Inappropriate Commands | 17 | 68 |
Lack of Follow Through | 6 | 24 |
Criticism | 1 | 4 |
Aggression | -- | -- |
Positive/Appropriate Behavior | ||
Praise (Rate per Minute) | 14 | 56 |
Observed Child Behaviour | ||
Combined Inappropriate | 4 | 16 |
Child Behaviour Problems | ||
CBCL Total Problems T score | 3 | 12 |
Child Impact on Family | ||
Negative Impact - FIQ | 3 | 12 |
Positive Impact - FIQ | 3 | 12 |
Maternal Depression | ||
CES-D Total Score | 4 | 16 |
Correlates of change
Demographic variables and baseline scores on dependent measures were correlated with change scores for dependent measures to determine if there were variables related to change from pre- to post-intervention. Children’s adaptive behaviour (Vineland) was significantly correlated with change in CBCL scores (r = -.48, p = .032), observed parental inappropriate behaviour (r = -.58, p = .007), and observed parental appropriate praise (r = .59, p = .006). In all cases, change in dependent measures (in the desired direction) was associated with lower adaptive behaviour scores at baseline. The presence of siblings was significantly correlated with decreased maternal depression (r = .43, p = .036). Higher maternal education was significantly correlated to increases in positive impact (r = .50, p = .014). Maternal employment status was significantly correlated with changes in observed parental inappropriate behaviour (r = .42, p = 040), as was baseline levels of observed parental inappropriate behaviour. Employment outside of the home was related to a reduction in observed parental inappropriate behaviour, as was having higher pre-intervention levels of inappropriate behaviour. Child sex and baseline levels of child inappropriate behaviour were significantly correlated with decreases in observed child inappropriate behaviour (r = .62, p = .003 and r = .69, p = .001, respectively). That is, there was a significant relationship between child female sex with reduction in child observed inappropriate behaviour. Higher baseline levels of inappropriate behaviour was related to reduction in observed child inappropriate behaviour.
Discussion
This study explored the use of an empirically supported treatment, Webster-Stratton’s Incredible Years parent training (IYPT) series, with a novel population, parents of young children with developmental delay. The literature is replete with studies demonstrating that children with developmental delay and/or intellectual disability are at heightened risk for behaviour problems (e.g. Baker et al. 2003; Emerson 2003; McIntyre et al. 2006). This study explored whether an adapted version of the Incredible Years (IYPT-DD) was feasible for use with families with young children with developmental delay. Because negative parent-child interactions may lead to the emergence and maintenance of child behaviour problems (Patterson 1982), this study investigated whether negative and inappropriate parenting behaviours could be reduced following the intervention. Child maladaptive behaviour and indices of family well-being were also explored.
Evidence suggests that individuals with mild to moderate intellectual disability display behaviour problems similar to those seen in persons who are typically developing (Einfeld & Tonge 1996). Indeed, results of this investigation suggest that the adaptations of the IYPT are feasible for parents with children with mild to moderate delays. Parents rated the sessions as helpful and the majority (84%) maintained high levels of attendance. Attendance rates and consumer satisfaction data are important in establishing feasibility, as well as evaluating the impact of community-based interventions. Furthermore, significant reductions in inappropriate parental behaviours were observed during naturalistic play sessions pre- to post-intervention and there was a significant increase in perceived positive impact of the child. Parents’ reports of negative impact (stress) as well as child behaviour problems on the CBCL did not significantly reduce post-intervention; however, children’s observed maladaptive behaviour decreased post-intervention. Because children with more severe disabilities were excluded from this investigation, the results may not generalize to parents and children with severe intellectual disability.
Recent studies suggest that mothers of children with developmental disabilities experience higher rates of stress and depression (e.g. Blacher & McIntyre 2006; Blacher et al. 2005; Singer 2006). In the current sample, 52% of mothers at baseline reported symptoms on the CES-D that met the clinical risk cut score of ≥ 16. Parents of children with DD may likely need additional intervention to address stress and depression, not included in the IYPT-DD programme. A recent meta-analysis of group-based interventions for parents with children with developmental disabilities found small effects for behavioural parent training programs in reducing parental distress and depressed symptomatology, with moderate to large effects for multicomponent interventions or interventions using cognitive behavioural therapy with parents (Singer, Ethridge & Aldana 2007). In the present study, only 20% of mothers had clinically significant reductions in depressed symptomatology based on the Reliable Change Index calculations. What is more concerning is that six mothers (24%) had clinically significant increases in their depressed symptomatology. It is plausible that weekly ongoing discussion surrounding children’s behavioural difficulties could have brought more attention and awareness to their child and family situation, exacerbating depressive symptomatology in some mothers. Conversely, it is conceivable that some mothers were depressed but not symptomatic when initially assessed. Furthermore, factors unrelated to the parent training intervention may have been related to changes in CES-D scores. For example, marital discord (Gordon et al. 2005), physical health (Simmons et al. 2007), and financial hardship (Groh 2007) have all been shown to relate to depression. Regardless of causal mechanism, additional intervention targeting family well-being may be a crucial treatment component for families experiencing heightened rates of stress and depression.
The IYPT-DD primarily emphasizes altering parent-child interactions. Given this focus, it is not surprising that a global measure of children’s behaviour problems (CBCL) did not change pre- to post-intervention. It should be noted that there were relatively low levels of maladaptive behaviour at baseline assessments pre-intervention. Negative parent-child interactions during naturalistic play did significantly reduce, as did observed child inappropriate behaviour. Direct observations of parent and child behaviour are much more sensitive to change and may represent a more ecologically valid form of assessment for children and parents (Robinson & Eyberg 1981). The previous work of Webster-Stratton suggests that on average, 30-50% of children with or at-risk for externalizing behaviour disorders are still in the clinical range for behaviour problems post-intervention on standardized global behaviour assessments, such as the CBCL and Eyberg Child Behavior Inventory (Webster-Stratton 1994; Webster-Stratton & Hammond 1997).
The intervention in the current study employed group-based parent training rather than individually administered intervention commonly implemented in parent training programs for children with disabilities (e.g., Plant & Sanders 2007; Roberts et al. 2006). Very few studies have compared the same intervention delivered in different formats (e.g., individual, group, self-help). Chadwick and colleagues (2001) randomly assigned parents of children with severe disabilities and behaviour problems to either individually-based intervention or group-intervention. Results indicated that parents were more likely to accept and participate in individually-based intervention than group intervention and that individual interventions resulted in more reported behavioural improvement (Chadwick et al. 2001). The current study sought to maximize efficiency by employing a group-based intervention to prevent or intervene early, before severe behaviour disorders emerged. Thus, future research could examine the costs and benefits associated with conducting early intervention in group-based formats versus conducting early intervention in individually-administered sessions for parents who have young children with delays who may be at risk for developing behavioural problems in the future.
Webster-Stratton and colleagues have recognized that parents with multiple risk families (including depression) may not have the same child and family intervention outcomes as parents with fewer risk factors (Webster-Stratton & Hammond 1990). To address this issue, Webster-Stratton created the ADVANCE series to supplement the basic training programme. The ADVANCE series targets parental risk factors, including stress, depression, anger problems, and marital discord by targeting effective coping and communication strategies (Webster-Stratton 2000). Given their mental health risk factors, perhaps parents with children with developmental disabilities may also benefit from the ADVANCE components targeting. Future research could incorporate additional treatment components to directly address coping with stress and depression in families with children with developmental disabilities.
These preliminary results are promising; however, this study is not without limitations. Although families reported satisfaction with the intervention, previous research has suggested that there is a positive bias with early intervention programming in general (e.g. McWilliam et al. 1995). Furthermore, it has been suggested that parents who are more involved in their children’s early childhood intervention programs report more satisfaction with services (Hamblin-Wilson & Thurman 1990). Thus, parents who participated in this intervention may represent a motivated and involved group of parents who report high levels of satisfaction. The extent to which these findings generalize to other families may be limited.
This investigation provides some evidence for feasibility and preliminary evidence of efficacy; however, the single group pre-post test design limits the conclusions that can made due to threats to internal validity (Campbell & Stanley 1963). Future work could incorporate a control group (e.g. wait-list control) or other comparison group. Although promising outcome data in the areas of observed parent and child behaviour and child positive impact were identified, future research could employ a larger sample size with more sophisticated methodology to evaluate moderators and mediators of intervention effects.
Implications for Practice
Practitioners who work with young children with developmental delay and their families are aware of the importance of early intervention to address child, family, and environmental risk factors (e.g. Ramey & Ramey 1999). Intervention approaches that build on family strengths, are developmentally appropriate, and emphasize strengthening parent-professional collaboration are considered best practices (Bryant & Graham 1993; Erickson & Kurz-Riemer 1999; Sandall et al. 2005). When deciding on which interventions to implement with children and families, practitioners and researchers alike can evaluate the extant evidence supporting the intervention effectiveness. Such evidence-based practices are often valued in educational and clinical arenas because there is published data supporting the utility of those practices (Bates 2005; Carlson & Christenson 2005). Webster-Stratton’s parent training programmes have a history of empirical support (Brestan & Eyberg 1998) and employ strategies that are developmentally based and build on family and child strengths. Although further investigation is needed, results of this study provide a springboard for incorporating other best practices and evidence based treatments into our early childhood intervention repertoire.
Acknowledgments
This paper was supported in part, by grant R03HD047711 from the National Institute of Child Health and Human Development awarded to the author. Special thanks to Lauren A. Arbolino, Florence D. DiGennaro, and Leah Phaneuf for assisting with data collection. Address all correspondence to Dr. Laura Lee McIntyre, Department of Psychology, 430 Huntington Hall, Syracuse University, Syracuse, NY 13244; 1-315-443-2705 (telephone); 1-315-443-4085 (fax);llmcinty@syr.edu (email).
References
- Achenbach TM. Manual for the Child Behavior Checklist 1 ½ - 5. University of Vermont, Department of Psychiatry; Burlington, VT: 2000. [Google Scholar]
- Baker BL. Parent training. In: Jacobson JW, Mulick JA, editors. Manual of Diagnosis and Professional Practice in Mental Retardation. American Psychological Association; Washington, DC: 1996. pp. 289–300. [Google Scholar]
- Baker BL, Blacher J, Crnic KA, Edelbrock C. Behavior problems and parenting stress in families of three-year old children with and without developmental delays. American Journal on Mental Retardation. 2002;107:433–444. doi: 10.1352/0895-8017(2002)107<0433:BPAPSI>2.0.CO;2. [DOI] [PubMed] [Google Scholar]
- Baker BL, Brightman AJ. Steps to Independence: Teaching Everyday Skills to Children with Special Needs. 4th Brookes Publishing; Baltimore, MD: 2004. [Google Scholar]
- Baker BL, McIntyre LL, Blacher J, Crnic KA, Edelbrock C, Low C. Preschool children with and without developmental delay: behaviour problems and parenting stress over time. Journal of Intellectual Disability Research. 2003;47:217–230. doi: 10.1046/j.1365-2788.2003.00484.x. [DOI] [PubMed] [Google Scholar]
- Bandura A. Social Learning Theory. Prentice Hall; Oxford: 1977. [Google Scholar]
- Baumrind D. Rearing competent children. In: Damon W, editor. Child Development Today and Tomorrow. Jossey-Bass; San Francisco, CA: 1989. pp. 349–378. [Google Scholar]
- Bates SL. Evidence-based family-school interventions with preschool children. School Psychology Quarterly. 2005;20:352–370. [Google Scholar]
- Blacher J, McIntyre LL. Syndrome specificity and behavioural disorders in young adults with intellectual disability: culture differences in family impact. Journal of Intellectual Disability Research. 2006;50:184–198. doi: 10.1111/j.1365-2788.2005.00768.x. [DOI] [PubMed] [Google Scholar]
- Blacher J, Neece CL, Paczkowski E. Families and intellectual disability. Current Opinion in Psychiatry. 2005;18:507–513. doi: 10.1097/01.yco.0000179488.92885.e8. [DOI] [PubMed] [Google Scholar]
- Blacher J, Shapiro J, Lopez S, Diaz L. Depression in Latina mothers with children with mental retardation: a neglected concern. American Journal on Mental Retardation. 1997;101:483–496. [PubMed] [Google Scholar]
- Brestan EV, Eyberg SM. Effective psychosocial treatments of conduct-disordered children and adolescents: 29 years, 82 studies, and 5,272 kids. Journal of Clinical Child Psychology. 1998;27:180–189. doi: 10.1207/s15374424jccp2702_5. [DOI] [PubMed] [Google Scholar]
- Bronson MB. Self-regulation in Early Childhood: Nature and Nurture. Guilford Press; New York: 2000. [Google Scholar]
- Bryant DM, Graham MA. Implementing Early Intervention: From Research to Effective Practice. Guilford Press; New York: 1993. [Google Scholar]
- Campbell DT, Stanley JC. Experimental and Quasi-experimental Designs for Research. Houghton Mifflin; Boston: 1963. [Google Scholar]
- Carlson C, Christenson SL. Evidence-based parent and family interventions in school psychology: overview and procedures. School Psychology Quarterly. 2005;20:345–351. [Google Scholar]
- Chadwick O, Momcilovic N, Rossiter R, Stumbles E, Taylor E. A randomized trial of brief individual versus group parent training for behaviour problems in children with severe learning disabilities. Behavioural and Cognitive Psychotherapy. 2001;29:151–167. [Google Scholar]
- Clark DB, Baker BL. Predicting outcome in parent training. Journal of Consulting and Clinical Psychology. 1993;51:309–311. doi: 10.1037//0022-006x.51.2.309. [DOI] [PubMed] [Google Scholar]
- Donenberg G, Baker BL. The impact of young children with externalizing behaviors on their families. Journal of Abnormal Child Psychology. 1993;21:179–198. doi: 10.1007/BF00911315. [DOI] [PubMed] [Google Scholar]
- Dosen A, Day K. Epidemiology, etiology, and presentation of mental illness and behavior disorders in persons with mental retardation. In: Dosen A, Day K, editors. Treating Mental Illness and Behavior Disorders in Children and Adults with Mental Retardation. American Psychiatric Association; Washington, DC: 2001. pp. 3–24. [Google Scholar]
- Einfeld SL, Tonge BJ. Population prevalence of psychopathology in children and adolescents with intellectual disability: II. Epidemiological findings. Journal of Intellectual Disability Research. 1996;40:99–109. doi: 10.1046/j.1365-2788.1996.768768.x. [DOI] [PubMed] [Google Scholar]
- Emerson E. Prevalence of psychiatric disorders in children and adolescents with and without intellectual disability. Journal of Intellectual Disability Research. 2003;47:51–58. doi: 10.1046/j.1365-2788.2003.00464.x. [DOI] [PubMed] [Google Scholar]
- Erickson MF, Kurz-Riemer K. Infants, Toddlers, and Families: A Framework for Support and Intervention. Guilford Press; New York: 1999. [Google Scholar]
- Eyberg N. Assessing therapy outcome with preschool children: progress and problems. Journal of Clinical Child Psychology. 1992;21:306–311. [Google Scholar]
- Feldman MA, Werner SE. Collateral effects of behavioral parent training on families of children with developmental disabilities and behavior disorders. Behavioral Interventions. 2002;17:75–83. [Google Scholar]
- Feldt LS, Steffen M, Gupta NC. A comparison of five methods for estimating the standard error of measurement at specific score levels. Applied Psychological Measurement. 1985;9:351–361. [Google Scholar]
- Fletcher RJ. Therapy Approaches for Persons with Mental Retardation. NADD Press; Kingston, NY: 2000. [Google Scholar]
- Floyd FJ, Harter KSM, Costigan CL. Family problem-solving with children who have mental retardation. American Journal on Mental Retardation. 2004;109:507–524. doi: 10.1352/0895-8017(2004)109<507:FPWCWH>2.0.CO;2. [DOI] [PubMed] [Google Scholar]
- Forehand RL, McMahon RJ. Helping the Noncompliant Child: A Clinician’s Guide to Parent Training. Guilford Press; New York: 1981. [Google Scholar]
- Gardner PL. Test length and the standard error of measurement. Journal of Educational Measurement. 1970;7:271–273. [Google Scholar]
- Gordon KC, Friedman MA, Miller IW, Gaertner L. Marital attributions as moderators of the marital discord-depression link. Journal of Consulting & Clinical Psychology. 2005;24:876–893. [Google Scholar]
- Groh CJ. Poverty, mental health, and women: Implications for psychiatric nurses in primary care settings. Journal of the American Psychiatric Nurses Association. 2007;13:267–274. [Google Scholar]
- Gross D, Fogg L, Webster-Stratton C, Garvey C, Julion W, Grady J. Parent training of toddlers in day care in low-income urban communities. Journal of Consulting & Clinical Psychology. 2003;71:261–278. doi: 10.1037/0022-006x.71.2.261. [DOI] [PubMed] [Google Scholar]
- Hamblin-Wilson C, Thurman SK. The transition from early intervention to kindergarten: parental satisfaction and involvement. Journal of Early Intervention. 1990;14:55–61. [Google Scholar]
- Hemmeter ML, Kaiser AP. Enhanced milieu teaching: Effects of parent-implemented language intervention. Journal of Early Intervention. 1994;18:269–289. [Google Scholar]
- Hester PP, Kaiser AP, Alpert CL, Whiteman B. The generalized effects of training trainers to teach parents to implement milieu teaching. Journal of Early Intervention. 1996;20:30–51. [Google Scholar]
- Hinshaw SP. Process, mechanism, and explanation related to externalizing behavior in developmental psychopathology. Journal of Abnormal Child Psychology. 2002;30:431–446. doi: 10.1023/a:1019808712868. [DOI] [PubMed] [Google Scholar]
- Holland JG, Skinner BF. The Analysis of Behavior. McGraw-Hill; New York: 1961. [Google Scholar]
- Hudson AM, Matthews JM, Gavidia-Payne ST, Cameron CA, Mildon RL, Radler GA, Nankervis KL. Evaluation of an intervention system for parents of children with intellectual disability and challenging behaviour. Journal of Intellectual Disability Research. 2003;47:238–249. doi: 10.1046/j.1365-2788.2003.00486.x. [DOI] [PubMed] [Google Scholar]
- Intagliata J, Doyle N. Enhancing social support for parents of developmentally disabled children: training in interpersonal problem solving skills. Mental Retardation. 1984;22:4–11. [PubMed] [Google Scholar]
- Jacobson NS, Truax P. Clinical significance: a statistical approach to defining meaningful change in psychotherapy research. Journal of Consulting and Clinical Psychology. 1991;59:12–19. doi: 10.1037//0022-006x.59.1.12. [DOI] [PubMed] [Google Scholar]
- Kaiser AP, Hancock TB, Nietfeld JP. The effects of parent-implemented enhanced milieu teaching on the social communication of children who have autism. Journal of Early Education and Development. 2000;4:423–446. [Google Scholar]
- Kaiser AP, Hemmeter ML, Ostrosky MM, Fischer R, Yoder P, Keefer M. The effects of teaching parents to use responsive interaction strategies. Topics in Early Childhood Special Education. 1996;16:375–406. [Google Scholar]
- Kumpfer KL, Alvarado R. Family-strengthening approaches for the prevention of youth problem behaviors. American Psychologist. 2003;58:457–465. doi: 10.1037/0003-066X.58.6-7.457. [DOI] [PubMed] [Google Scholar]
- Lerman DC, Swiezy N, Perkins-Parks S, Roane HS. Skill acquisition in parents of children with developmental disabilities: interaction between skill type and instructional format. Research in Developmental Disabilities. 2000;21:183–196. doi: 10.1016/s0891-4222(00)00033-0. [DOI] [PubMed] [Google Scholar]
- Martin B. Developmental perspectives on family theory and psychopathology. In: Jacobs T, editor. Family Interaction and Psychopathology: Theories, Methods, and Findings. Plenum Press; New York: 1987. pp. 163–202. [Google Scholar]
- McIntyre LL, Blacher J, Baker BL. Behaviour/mental health problems in young adults with intellectual disability: the impact on families. Journal of Intellectual Disability Research. 2002;46:239–249. doi: 10.1046/j.1365-2788.2002.00371.x. [DOI] [PubMed] [Google Scholar]
- McIntyre LL, Blacher J, Baker BL. The transition to school: adaptation in young children with and without developmental delays. Journal of Intellectual Disability Research. 2006;50:349–361. doi: 10.1111/j.1365-2788.2006.00783.x. [DOI] [PubMed] [Google Scholar]
- McWilliam RA, Lang L, Vandiviere P. Satisfaction and struggles: family perceptions of early intervention services. Journal of Early Intervention. 1995;19:43–60. [Google Scholar]
- Patterson GR. Coercive Family Process: A Social Learning Approach. Vol. 3. Castalia Press; Eugene, OR: 1982. [Google Scholar]
- Patterson GR. Continuities—A search for causal mechanisms: comment on the special section. Developmental Psychology. 1998;34:1263–1268. doi: 10.1037//0012-1649.34.6.1263. [DOI] [PubMed] [Google Scholar]
- Patterson GR, DeBaryshe BD, Ramsey E. A developmental perspective on antisocial behavior. American Psychologist. 1989;44:329–335. doi: 10.1037//0003-066x.44.2.329. [DOI] [PubMed] [Google Scholar]
- Peterson SMP, Derby KM, Harding JW, Weddle T. Behavioral support for school-age children with developmental disabilities and problem behavior. In: Lucyshyn JM, Dunlap G, Albin RW, editors. Families and Positive Behavior Support: Addressing Problem Behavior in Family Contexts. Brookes Publishing; Baltimore, MD: 2002. pp. 287–304. [Google Scholar]
- Pfeiffer SI, Baker BL. Residential treatment for children with dual diagnoses of mental retardation and mental disorder. In: Blacher J, editor. When There’s No Place Like Home: Options for Children Living Apart from Their Natural Families. Brookes Publishing; Baltimore, MD: 1994. pp. 273–298. [Google Scholar]
- Phaneuf L, McIntyre LL. Effects of individualized video feedback combined with group parent training on maternal inappropriate behavior. Journal of Applied Behavior Analysis. 2007;40:737–741. doi: 10.1901/jaba.2007.737-741. [DOI] [PMC free article] [PubMed] [Google Scholar]
- Plant KM, Sanders MR. Reducing problem behavior during care-giving in families of preschool-aged children with developmental disabilities. Research in Developmental Disabilities. 2007;28:362–385. doi: 10.1016/j.ridd.2006.02.009. [DOI] [PubMed] [Google Scholar]
- Prieto-Bayard M, Baker BL. Parent training for Spanish-speaking families with a retarded child. Journal of Community Psychology. 1986;14:134–143. [Google Scholar]
- Radloff LS. The CES-D Scale: a self-report depression scale for research in the general population. Applied Psychological Measurement. 1977;1:385–401. [Google Scholar]
- Ramey SL, Ramey CT. Early experience and early intervention for children “at risk” for developmental delay and mental retardation. Mental Retardation and Developmental Disabilities Research Reviews. 1999;5:1–10. [Google Scholar]
- Reid MJ, Webster-Stratton C, Beauchaine TP. Parent training in Head Start: a comparison of program response among African American, Asian American, Caucasian, and Hispanic mothers. Prevention Science. 2001;2:209–227. doi: 10.1023/a:1013618309070. [DOI] [PubMed] [Google Scholar]
- Research Units on Pediatric Psychopharmacology [RUPP] Autism Network Parent training for children with pervasive developmental disorders: a multi-site feasibility trial. Behavioral Interventions. 2007;22:179–199. [Google Scholar]
- Rimm-Kaufman SE, Pianta RC. An ecological perspective on the transition to kindergarten: a theoretical framework to guide empirical research. Journal of Applied Developmental Psychology. 2000;21:491–511. [Google Scholar]
- Roberts C, Mazzucchelli T, Studman L, Sanders MR. Behavioral family interventions for children with developmental disabilities and behavioral problems. Journal of Clinical Child and Adolescent Psychology. 2006;35:180–193. doi: 10.1207/s15374424jccp3502_2. [DOI] [PubMed] [Google Scholar]
- Roberts C, Mazzucchelli T, Taylor K, Reid R. Early intervention for behaviour problems in young children with developmental disabilities. International Journal of Disability, Development and Education. 2003;50:275–292. [Google Scholar]
- Robinson EA, Eyberg SM. The dyadic parent-child interaction coding system: standardization and validation. Journal of Consulting and Clinical Psychology. 1981;49:245–250. doi: 10.1037//0022-006x.49.2.245. [DOI] [PubMed] [Google Scholar]
- Russell A, Russell G. Positive parenting and boys’ and girls’ misbehavior during a home observation. International Journal of Behavioral Development. 1996;19:291–307. [Google Scholar]
- Sameroff A, Chandler M. Reproductive risk and the continuum of caretaking casuality. In: Horowitz F, editor. Review of Child Development Research. Vol. 4. University of Chicago Press; Chicago, IL: 1975. pp. 187–243. [Google Scholar]
- Sameroff A, Fiese BH. Transactional regulation: The developmental ecology of early intervention. In: Shonkoff JP, Meisels SJ, editors. Handbook of Early Childhood Intervention. 2nd Cambridge University Press; New York: 2000. pp. 135–159. [Google Scholar]
- Sandall S, Hemmeter ML, Smith B, McLean ME. DEC Recommended Practices: A Comprehensive Guide for Practical Application in Early Intervention/Early Childhood Special Education. Longmont, CO; Sopris West: 2005. [Google Scholar]
- Sanders MR. The Triple P-positive parenting program: towards an empirically validated multilevel parenting and family support strategy for the prevention of behavior and emotional problems in children. Clinical Child and Family Psychology Review. 1999;2:71–90. doi: 10.1023/a:1021843613840. [DOI] [PubMed] [Google Scholar]
- Shearer DE, Snider RS. On providing a practical approach to the early education of children. Child Behavior Therapy. 1981;3:78–80. [Google Scholar]
- Simmons LA, Huddleston-Casas C, Berry AA. Low income rural women and depression: Factors associated with self-reporting. American Journal of Health Behavior. 2007;31:657–666. doi: 10.5555/ajhb.2007.31.6.657. [DOI] [PubMed] [Google Scholar]
- Singer GHS. Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation. 2006;111:155–169. doi: 10.1352/0895-8017(2006)111[155:MOCSOD]2.0.CO;2. [DOI] [PubMed] [Google Scholar]
- Singer GHS, Ethridge BL, Aldana SI. Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: a meta-analysis. Mental Retardation and Developmental Disabilities Research Reviews. 2007;13:357–369. doi: 10.1002/mrdd.20175. [DOI] [PubMed] [Google Scholar]
- Sparrow SS, Balla DA, Cicchetti DV. Vineland Adaptive Behavior Scales. American Guidance Service; Circle Pines, MN: 1984. [Google Scholar]
- Sturmey P. DSM-III-R and persons with dual diagnoses: conceptual issues and strategies for future research. Journal of Intellectual Disability Research. 1995;39:357–364. doi: 10.1111/j.1365-2788.1995.tb00539.x. [DOI] [PubMed] [Google Scholar]
- Tonge B, Brereton A, Komall J, Mackinnon A, King N, Rinehart N. Effects on parental mental health of an education and skills training program for parents of young children with autism: a randomized controlled trial. Journal of the American Academy of Child and Adolescent Psychiatry. 2006;45:561–569. doi: 10.1097/01.chi.0000205701.48324.26. [DOI] [PubMed] [Google Scholar]
- Webster-Stratton C. A randomized trial of two parent training programs for families with conduct-disordered children. Journal of Consulting and Clinical Psychology. 1984;52:666–678. doi: 10.1037//0022-006x.52.4.666. [DOI] [PubMed] [Google Scholar]
- Webster-Stratton C. Advancing videotape parent training: a comparison study. Journal of Consulting and Clinical Psychology. 1994;62:583–593. doi: 10.1037//0022-006x.62.3.583. [DOI] [PubMed] [Google Scholar]
- Webster-Stratton C. The Incredible Years Training series. Office of Juvenile Justice and Delinquency Prevention Bulletin Review. 2000;(June):1–24. [Google Scholar]
- Webster-Stratton C. The Incredible Years: Parents, Teachers, and Children Training Series. Leader’s Guide. Seattle, WA: 2001. [Google Scholar]
- Webster-Stratton C, Hammond M. Predictors of treatment outcome in parent training for families with conduct problem children. Behavior Therapy. 1990;21:319–337. [Google Scholar]
- Webster-Stratton C, Hammond M. Treating children with early-onset conduct problems: a comparison of child and parent training interventions. Journal of Consulting and Clinical Psychology. 1997;65:93–109. doi: 10.1037//0022-006x.65.1.93. [DOI] [PubMed] [Google Scholar]