Skip to main content
Annals of Family Medicine logoLink to Annals of Family Medicine
. 2011 Sep;9(5):439–446. doi: 10.1370/afm.1277

Suffering in Silence: Reasons for Not Disclosing Depression in Primary Care

Robert A Bell 1,, Peter Franks 1, Paul R Duberstein 1, Ronald M Epstein 1, Mitchell D Feldman 1, Erik Fernandez y Garcia 1, Richard L Kravitz 1
PMCID: PMC3185469  PMID: 21911763

Abstract

PURPOSE

Depression symptoms are underreported by patients. We thus assessed individuals’ reasons for not disclosing depression to their primary care physician.

METHODS

We conducted a follow-up telephone survey of 1,054 adults who had participated in the California Behavioral Risk Factor Survey System. Respondents were asked about reasons for nondisclosure of depressive symptoms to their primary care physician, depression-related beliefs, and demographic characteristics. Descriptive and inferential statistical procedures were used to characterize perceived obstacles to disclosure.

RESULTS

Of the respondents, 43% reported 1 or more reasons for nondisclosure. The most frequent reason was the concern that the physician would recommend antidepressants (22.9%; 95% confidence interval, 18.8%–27.5%). Reported reasons for nondisclosure of depression varied based on whether the respondent had a history of depression. For example, respondents with no depression history were more likely to believe that depression falls outside the purview of primary care (P=.040) and more likely to fret about being referred to a psychiatrist (P=.036). Respondents with clinically significant depressive symptoms rated 10 of 11 barriers to disclosure as more personally applicable than did those without symptoms (all P values =.014). Number of reported disclosure barriers was predicted by demographic characteristics (being female, Hispanic, of low socioeconomic status), depression beliefs (depression is stigmatizing and should be under one’s control), symptom severity, and absence of a family history of depression.

CONCLUSIONS

Many adults subscribe to beliefs likely to inhibit explicit requests for help from their primary care physician during a depressive episode. Interventions should be developed to encourage patients to disclose their depression symptoms and physicians to ask about depression.

Keywords: Depression, primary health care, disclosure, treatment, communication barriers, social stigma

INTRODUCTION

Lifetime and 12-month prevalence of major depressive disorder (MDD) in the United States has been estimated to be 16.2% and 6.6%, respectively.1 In one-fourth of primary care patients with MDD, the condition is not diagnosed,1 and a majority who seek help from a primary care physician do not receive appropriate treatment.2,3 Because patients are often treated in primary care,3 efforts have been made to improve recognition, treatment, and follow-up for patients with depression in general practice.4 Suboptimal levels of recognition and treatment are due to a variety of physician, health system, and patient factors.47

The present study is part of the formative research of a larger project that will develop and evaluate office-based interventions to encourage seeking care for depression. This research is grounded in a model that assumes self-disclosure of depression is a key step on the road to appropriate diagnosis and therapy. Physicians are more likely to initiate treatment when the patient provides recognizable clues to depression,8 discloses symptoms of depression, or directly requests help.9,10 Encouraging disclosure requires that patients’ barriers to the initiation of conversations about depression be understood. Our initial studies have identified potential barriers to disclosure and potential intervention strategies.1114 The present research builds upon prior studies by examining the prevalence of perceived barriers in a general population survey.

Reasons why adults might not talk with their primary care physicians about their depression symptoms are numerous15 and include the belief that a primary care physician is an inappropriate source of care for emotional problems12,14; uncertainty about how to raise the topic of depression12; concerns about distracting the doctor from other, more medically salient health issues16; aversion to antidepressant medications17 and psychotherapy18; stigma stemming from either a diagnosis of depression or psychiatric treatment12,14,16; loss of emotional control19; and reluctance to discuss personal issues.19

Perceived barriers to disclosure might differ by personal experience with depression treatment and symptom severity. Individuals who have undergone treatment should have concerns about available depression treatments different from those of individuals who have not. Furthermore, those who have received medical treatment for depression would presumably have more positive outcome expectations than those who have not. We also anticipated that severity of current depressive symptoms would be associated with more perceived barriers to talking with one’s doctor about depression symptoms. Such an expectation is suggested by social cognitive theory (SCT), which posits that a depressed mood lowers self-efficacy for performing challenging behaviors.20 Initiating a conversation about depression could be challenging for many patients.19,21 Finally, one might anticipate several other correlates of perceived barriers to disclosure, including standard demographic variables, health history and perceptions, beliefs about the nature and causes of depression, and insurance status. Prior studies have examined these and other predictors in relation to treatment preferences22 but not in relation to disclosure barriers.

We addressed 4 research questions: (1) What is the prevalence of perceived barriers to disclosure of depression to primary care physicians in the general population? (2) Do perceptions of barriers to disclosure differ between individuals with and without a history of depression? (3) Does severity of depression symptoms affect perceptions of these barriers? (4) What are the demographic and attitudinal predictors of perceived barriers to disclosure? The unique contribution of this study is that its results are based on a large, population-based survey sample that included adults with and without a history of depression.

METHODS

Sampling Procedure

The Institutional Review Board at the University of California, Davis, approved all procedures. A total of 1,054 respondents were interviewed by telephone from July through December 2008 in a follow-up survey. Specifically, respondents were randomly sampled from the group of individuals who had earlier participated in the 2008 California Behavioral Risk Factor Survey System (BRFSS), a cross-sectional random digit dial telephone survey. BRFSS respondents had been selected at random, were initially interviewed from January through June 2008, and had given permission to be contacted again. Because an equal probability sampling of BRFSS participants would have resulted in too few respondents with a history of depression treatment, respondents who reported a history of depression in the BRFSS survey were oversampled by a factor of 3. This strategy allowed us to detect with 90% power a small difference (0.2 standard deviations) between those with (n = 475) and without (n = 579) a history of depression on any of our measures. When making population estimates, this overrepresentation of individuals with a history of depression was corrected via weighting.

Survey Administration

This survey was administered by a survey research organization based in Sacramento, California. Up to 15 attempts were made to contact each sampled respondent. Interviews took approximately 20 minutes. English- and Spanish-speaking interviewers were available; 52 interviews (4.9%) were completed in Spanish. A response rate of 49% was obtained after excluding households of unknown eligibility.

Measures

We examined 5 sets of measures included in either the original BRFSS survey or the depression follow-up survey: demographic variables, perceived barriers to care seeking for depressive symptoms, health status measures, beliefs about depression, and anticipated reaction to a future diagnosis of depression. To measure perceived barriers to care seeking, respondents were presented with 11 reasons (described below) why one might not talk to their primary care physician about depression and asked to rate the personal applicability of each (applies a lot to you, applies a little to you, or does not apply at all to you). In most analyses, the individual items were analyzed. For one analysis we constructed a Perceived Barriers Index by counting across the 11 reasons (theoretical range: 0–11) the number of applies-a-lot responses (Cronbach’s α = .83); an exploratory factor analysis showed these items to be unifactorial.

With regard to health status, respondents completed single-item measures in which they were asked whether they were being treated for depression, had ever been treated for depression by a health care professional, or had a family member who was ever treated for depression (coded 1 for affirmative responses and 0 otherwise). They also rated their general health perception on a 5-point scale (1 = excellent to 5 = poor)23 and reported whether they had a regular source of care and health insurance (1 if yes, 0 otherwise). Current depression symptoms were assessed with the 9-item Patient Health Questionnaire (PHQ-9), which has been found to be a valid measure of depression symptomatology in primary care and population survey settings24,25; higher scores indicate great depression symptoms.

Several depression-related beliefs were assessed. Stigma was measured with 3, 5-point Likert items taken from the work of Fogel and Ford (α=.54).26 The questionnaire also included items adapted from measures used in previous studies of illness representations in depression.27,28 On the basis of a factor analysis (results not reported in tabular form), scales were constructed to assess the beliefs that depression has biomedical causes, is rooted in psychosocial issues, and is under a person’s control. The biomedical causes measure consisted of 4 items (eg, “Chemical imbalances in the brain cause depression.”) (α = .70). The psychosocial causes measure was composed of 2 items (eg, “Depression is the result of problems in living, such as job stress, money problems, or conflicts with family.”) (α=.68). The personal control measure consisted of 2 items (eg, “People with depression should be able to pull themselves out of it without professional help.”) (α=.58). A single item was included to assess respondents’ perceptions of the usual time course of depression (ie, its perceived chronicity). These 5 measures were scored so that higher values indicated higher levels of stigma, stronger belief in the biomedical underpinnings of depression, stronger endorsement of the psychosocial model, greater feelings of personal control, and a stronger belief that depression is typically chronic.

Statistical Analysis

Analysis was carried out using Stata 11.0 (StataCorp, College Station, Texas). Scale development was aided by principal components factor analysis. Stata’s survey commands were used to yield appropriate standard errors and population parameter estimates. Adults were sampled from 2 strata: those with and those without a self-reported depression history. BRFSS survey weights were used when estimating population parameters, but they were modified to adjust for our oversampling of individuals with a depression history and to reflect the inverse of the probability of selection. Descriptive statistics were used to profile the sample and characterize respondents’ reports of barriers to depression disclosure. Associations between categorical variables were assessed with the χ2 test of significance. An index of number of barriers to disclosure was regressed on demographic and health measures to identify significant predictors in a multiple linear regression. In one analysis, respondents were classified as having no/mild depressive symptoms if they had a PHQ-9 score of 0 to 9. A classification of moderate/severe depressive symptoms was made for respondents with a PHQ-9 score of 10 to 27. A cutoff score of 10 reflects current practices and research findings.24

RESULTS

Sample Characteristics

In an unweighted descriptive analysis of the 1,054 respondents, the sample overrepresented women, older individuals, white race, and individuals of higher socioeconomic status relative to the California population as a whole (Table 1). The unweighted sample mean on the PHQ-9 was 4.34 (SD = 5.01, theoretical range = 0–27); the estimated population mean was 3.77 (95% confidence interval [CI], 3.34–4.19) (data not shown in tabular form).

Table 1.

Demographic and Health Characteristics of the Sample (N = 1,054)

Unweighted Weighted

Respondent Characteristic % n Population Estimate (%)
Demographic
Female 67.7 714 58.5
Age, y
 18–29 4.5 47 15.1
 30–39 9.2 97 14.3
 40–49 19.6 207 24.2
 50–59 22.9 241 17.8
 >60 43.8 461 28.6
White race 90.5 954 85.3
Culturally or ethnically Hispanic 12.7 134 24.5
Education
 High school or less 18.1 191 25.1
 Some college/technical school 29.6 312 27.6
 College graduate 52.2 550 47.3
Household income
 <$20,000 15.6 164 12.7
 $20,000–$34,999 13.9 146 12.6
 $35,000–$49,999 12.3 130 10.7
 $50,000–$74,999 16.2 171 17.9
 $75,000–$100,000 17.3 182 18.1
 >$100,000 22.1 233 26.1
 Unsure/declined to answer 2.7 28 1.9
Employment status
 Employed for wages 35.9 378 45.6
 Self-employed 11.6 122 11.2
 Out of work 5.8 61 5.7
 Homemaker 8.6 91 9.7
 Student 2.1 22 4.8
 Retired 27.9 294 18.8
 Unable to work 8.2 86 4.3
Relational status
 Married 50.0 527 60.7
 Not married but partnered 4.8 51 6.9
 Separated or divorced 21.4 226 11.8
 Widow/widower 11.8 124 6.4
 Never married 12.0 126 14.2
Health situation
Ever been treated for depression 45.1 475 29.5
Currently under treatment for depression 21.6 228 16.3
Family history of depression 52.7 555 43.0
General health perception
 Excellent 17.9 189 17.9
 Very good 38.5 406 37.1
 Good 27.0 285 29.5
 Fair 12.0 126 12.2
 Poor 4.6 48 3.4
Have regular source of care 88.0 928 81.3
Have health insurance 93.7 988 91.2

Perceived Barriers to Care Seeking

Approximately 57% of respondents reported that none of the perceived barriers to talking with their primary care physician about depression applied a lot to them, 17% reported that 1 reason applied, and 26% indicated that 2 or more reasons applied. Thus, 43% reported at least 1 barrier to disclosure. The unweighted sample mean on the Perceived Barriers Index was 1.13 (SD = 1.90); the weighted population estimate was 1.25 (95% CI, 1.04–1.45). Table 2 reports the unweighted and weighted percentage of respondents indicating that each reason for not seeking help did not apply to them, applied a little, or applied a lot. The most common barriers (based on respondents’ reporting that each reason applied a lot) included the possibility of being placed on medication (23%), the belief that it is not the primary care physician’s job to deal with emotional issues (16%), and concerns about medical record confidentiality (15%). Other concerns reported by at least 10% of respondents included fear of referral to a counselor or psychiatrist, and being labeled a psychiatric patient.

Table 2.

Unweighted and Weighted Distribution of Reasons for Not Seeking Help

Reason for Nondisclosure (Item Label) Response Unweighted Analysis Weighted Estimates

% n % 95% CI
The doctor might put me on medicines that I’d rather not take (medication aversion) Does not apply 57.3 602 54.6 49.9–59.2
Applies a little 23.4 246 22.5 19.1–26.3
Applies a lot 19.2 202 22.9 18.8–27.5
I do not feel it is my doctor’s job to deal with emotional problems (not doctor’s job) Does not apply 73.3 773 71.0 66.4–75.2
Applies a little 14.1 149 13.4 10.9–16.5
Applies a lot 12.5 132 15.6 12.0–20.0
My medical records might be seen by others such as an employer (medical records) Does not apply 71.5 753 70.3 66.1–74.3
Applies a little 13.2 139 14.3 11.4–17.7
Applies a lot 15.3 161 15.4 12.5–18.9
The doctor might send me to a counselor, psychologist or social worker (counseling) Does not apply 75.8 797 74.0 69.6–78.0
Applies a little 11.8 124 12.3 9.8–15.4
Applies a lot 12.4 130 13.7 10.4–17.7
The doctor might send me to a psychiatrist (psychiatrist) Does not apply 76.0 800 73.9 69.4–78.0
Applies a little 12.1 127 12.7 10.0–15.9
Applies a lot 11.9 125 13.4 10.1–17.5
I would not want to be considered a ‘psychiatric patient’ (psychiatric patient) Does not apply 69.8 734 70.5 66.1–74.6
Applies a little 17.4 183 17.7 14.4–21.6
Applies a lot 12.8 135 11.8 9.2–15.0
I would not want to tell private information to my doctor (private information) Does not apply 84.3 888 80.2 75.7–84.0
Applies a little 9.8 103 10.7 8.0–14.2
Applies a lot 6.0 63 9.1 6.3–12.9
I might cry or become too emotional during the visit (emotional control) Does not apply 77.3 814 78.0 73.8–81.6
Applies a little 15.5 163 14.4 11.3–18.2
Applies a lot 7.2 76 7.6 5.6–10.4
I would not know how to bring up the topic of depression to my doctor (topic introduction) Does not apply 82.7 870 80.5 76.3–84.1
Applies a little 11.5 121 13.1 10.2–16.7
Applies a lot 5.8 61 6.4 4.2–9.6
I would not want to distract the doctor from taking care of my physical health problems (distraction of doctor) Does not apply 86.7 914 86.7 83.2–89.7
Applies a little 7.3 77 8.0 5.6–11.3
Applies a lot 6.0 63 5.3 3.8–7.3
The doctor might think less of me if I brought up my depression symptoms (loss of esteem) Does not apply 86.7 914 87.2 83.7–90.0
Applies a little 9.3 98 9.3 6.8–12.6
Applies a lot 4.0 42 3.6 2.3–5.4

CI=confidence interval.

Note: Reasons have been sorted by percentage of the population estimated to believe the reason applies a lot to them.

Depression History

In considering reasons for possible nondisclosure, respondents who reported having a history of depression were more likely than those with no history to be concerned about medical record confidentiality (P = .041) and losing emotional control (P = .007) (Table 3). In contrast, respondents with no history of depression were more concerned about being treated with medication (P = .009), more likely to believe that it is not the primary care physician’s job to treat depression (P = .040), and more worried about being referred to a psychiatrist if they talked to their doctor about their depression (P = .036). Overall, on the Perceived Barriers Index, respondents with a history of depression did not report more reasons as applying a lot to them (mean = 1.09, SD = 1.81) than respondents with no such history (mean = 1.16, SD = 1.96; P = .50).

Table 3.

Unweighted Percentage of Respondents With vs Without a History of Depression Treatment Who Reported That a Reason for Not Seeking Depression Care Applies a Lot

Reason for Nondisclosurea History of Treatmentb (n=475) No History of Treatmentb (n=579) P Valuec

% n % n
Medication aversion 15.6 74 22.2 128 .009
Not doctor’s job 10.1 48 14.5 84 .040
Medical records 17.9 85 13.1 76 .041
Counseling referral 11.4 54 13.1 76 .423
Psychiatrist referral 9.5 45 13.9 80 .036
Psychiatric patient 13.7 65 12.1 70 .511
Private information 4.4 21 7.3 42 .072
Emotional control 9.7 46 5.2 30 .007
Topic introduction 5.7 27 5.9 34 1.00
Distract of doctor 5.9 28 6.0 35 1.00
Loss of esteem 4.8 23 3.3 19 .258

Note: Because of nonresponse, the number for analysis for each reason ranges from 1,050 to 1,054.

a

Refer to Table 2 for item wording.

b

Respondents were classified into the history (n = 475) or no history (n = 579) groups based on their answer to the question, “Have you, personally, ever been treated for depression by a health care provider? A health care provider could be a medical doctor or a mental health professional, such as a psychiatrist, psychologist, social worker, or counselor.”

c

Probability values are based on the χ2 test with continuity correction.

Current Symptoms

For 10 of 11 barriers, respondents with moderate to severe symptoms (n = 153) were significantly more likely than respondents without such symptoms (n = 899) to report that the reason applied a lot to them (Table 4).

Table 4.

Unweighted Percentage of Respondents Without vs With Moderate or Severe Depressive Symptoms Who Reported That a Reason for Not Seeking Depression Care Applies a Lot

Reason for Nondisclosurea No or Mild Symptomsb (n=899) Moderate or Severe Symptomsb (n=153) P Valueb,c

% n % n
Medication aversion 17.7 159 27.8 42 .004
Not doctor’s job 11.8 106 17.0 26 .073
Medical records 13.6 122 25.5 39 .001
Counseling referral 11.3 101 18.3 28 .014
Psychiatrist referral 10.8 97 18.3 28 .008
Psychiatric patient 11.6 104 20.3 31 .003
Private information 4.8 43 12.4 19 .001
Emotional control 4.9 44 20.9 32 .001
Topic introduction 4.0 36 16.5 25 .001
Distract of doctor 4.5 40 14.4 22 .001
Loss of esteem 2.6 23 12.4 19 .001

PHQ- 9 = 9-item Patient Health Questionnaire.

Note: Because of nonresponse, the number for analysis for each reason ranges from 1,048 to 1,052.

a

Refer to Table 2 for item wording.

b

Respondents with a PHQ-9 score of 0–9 were assigned to the no or mild depressive symptoms group; respondents with a PHQ-9 score of 10–27 were assigned to the moderate/severe depressive symptoms group.

c

Probability values are based on the χ2 test with continuity correction.

Predictors of Perceived Barriers to Disclosure of Depression

Predictors of perceived barriers to disclosure were examined via survey-weighted linear regression analysis in which the Perceived Barriers Index served as the dependent variable (Table 5). Endorsing a larger number of potential barriers to depression disclosure was associated with 4 demographic variables: being female, being Hispanic, having less education, and having less income. Four depression-related variables were predictive of reporting more perceived barriers to disclosure: severity of depression symptoms at the time of the survey, having no family history of depression, believing that depression is a stigmatizing condition, and believing that one should be able to control one’s depressive state (adjusted R2 = .31, P <.001).

Table 5.

Weighted Multiple Regression Analyses Predicting Perceived Barriers to Disclosing Depression to One’s Primary Care Physician

Predictors Coefficient 95% CI
Demographic variables
Age (in years) .001 −.001 to .003
Female .080a .014 to .146
Married or partnered −.003 −.072 to .065
Nonwhite race .025 −.081 to .130
Hispanic .129b .033 to .244
Education
 High school or less
 Some college/technical −.120a −.223 to −.016
 College graduate −.058 −.163 to .047
Income
 $0–$34,999
 $35,000–$75,000 −.173c −.276 to −.069
 >$75,000 −.120a −.230 to −.010
Health/depression variables
General health perception .017 −.021 to .055
Depression symptoms (PHQ-9) .019c .009 to .029
Past diagnosis .035 −.035 to 1.05
Family history −.078a −.140 to −.015
Stigma .136c .092 to .181
Biomedical causes −.005 −.071 to .061
Psychosocial causes −.011 −.057 to .035
Controllable .074b .024 to .123
Timeline (usually >1 y) .040 −.026 to .105
Health insurance −.093 −.266 to .079
Regular source of care −.024 −.134 to .086

PHQ-9 = 9-item Patient Health Questionnaire.

Note: Because of nonresponse, n = 982 for this analysis.

a

P <.05.

b

P <.01.

c

P <.0013.

DISCUSSION

Encouraging patients to disclose their symptoms to physicians is among the most direct strategies for increasing the recognition and treatment of depression in primary care.9,10,29 More than two-fifths of respondents in this population-based survey subscribed to beliefs that may inhibit such disclosure. Concern that the physician would prescribe antidepressants was the leading reason for nondisclosure of depression, far surpassing concerns about referral for psychotherapy. These findings parallel results from other studies, which have documented a preference for psychotherapy over antidepressants,18 but they also suggest that patients lack confidence in their ability to negotiate an acceptable plan of care that reflects their treatment preferences.

Having a history of depression treatment was associated with the type of reasons for nondisclosure but not the number of reasons. Individuals with a history of depression treatment were actually less concerned about treatment issues (eg, the possibility that requests for help would lead to a prescription or mental health referral) but more concerned about privacy and loss of emotional control. Disclosing distress to the physician arouses strong emotions, which persons who have disclosed in the past might better anticipate. Furthermore, persons with a history of depression treatment may think of themselves as more emotionally labile than those without such a history. It is also possible that a prior attempt at disclosure resulted in some of the barriers respondents endorsed. Future research should clarify the mechanisms in the formation of barrier perceptions and persons’ reactions to these perceptions.

Ironically, those who most subscribed to potential reasons for not talking to a primary care physician about their depression tended to be those who had the greatest potential to benefit from such conversations—individuals with moderate to severe depressive symptoms. A despondent mood state can diminish self-efficacy20 and may make individuals question their ability to accomplish even simple tasks, such as making arrangements to see a doctor. It is also possible that depression leads individuals to perceive their circumstances and competencies more negatively. Longitudinal research is needed to clarify the causal relationship between symptom severity and perceived barriers to disclosure.

The significant predictors of perceived barriers to care seeking identified in this study are generally consistent with prior research. Hispanics, for example, endorsed more reasons for not talking with their doctor. Hispanics make less-frequent use of mental health services compared with non-Hispanic whites30,31 and may prefer informal sources of care and support.32,33 Not surprisingly, holding self-blaming attributions about depression and believing that one should be able to control one’s own symptoms of depression are associated with unwillingness to discuss depressive symptoms with physicians.13 Interestingly, having a family member or friend who had gone through depression was associated with fewer perceived obstacles to care, but having a personal history of depression was not.34 Future studies should consider how vicarious and personal experiences foster different expectations about the process and outcomes of depression care. The paradoxical finding that women identify with more barriers to care seeking while simultaneously being more likely to seek treatment deserves future research attention.35 This effect should be interpreted with caution, because it emerges only in the adjusted analysis. It may be that this ambivalence and doubt are motivating some women to seek and accept treatment. Alternatively, the finding may reflect women’s greater willingness to communicate honestly about depression.

There is good news in these findings—7 of 8 respondents believed that the primary care physician is an appropriate source of depression care. Furthermore, few respondents reported that they would decline to talk with their doctor about depression because of embarrassment, privacy concerns, or loss of face. Surprisingly, only about 6% of respondents doubted their ability to initiate a conversation about depression with their doctor. Future research should assess whether such reticence is truly this low or whether this finding reflects an externalization of depression stigma.

This study has limitations. First, the survey response rate is lower than what one might hope for, albeit similar to the responses rates reported in other BRFSS surveys.36 This response rate, when weighted, may introduce unknown bias to the results. Second, the sample was limited to California adults. Third, our reliance on data collection via a telephone survey necessitated use of brief measures, which lowers reliability and precision of measurement. Fourth, we examined only those patient barriers to care seeking that have the potential to be addressed in an office-based educational intervention. Fifth, we did not address the needs of those who may have been willing to request help but failed to recognize that their symptoms could be indicative of depression.13

In this survey from California, 43% of patients strongly endorsed one or more reasons for not disclosing depression to their primary care physician. This finding underscores the need to develop and test office-based interventions that address these patient concerns and motivate disclosure of depression. Toward this end we are currently evaluating 2 office-based approaches encouraging patients with depression symptoms to begin a conversation with their doctors. The effectiveness of multimedia approaches, standardized questionnaires, and explicit inquiry by the physician about depressive symptoms in facilitating disclosure of depression may vary by patient. Even so, it is clear that left to their own devices, many patients will not report important symptoms spontaneously.

Acknowledgements

The authors gratefully acknowledge the assistance of Christina Slee.

Footnotes

Conflicts of interest: Dr Epstein has given 2 talks on patient-physician communication sponsored by Merck, in which they had no role in content, and no products were discussed. Dr Kravitz has received research grant funding from Pfizer (ending in 2008) unrelated to depression care. The remaining authors have no potential conflicts of interest to disclose.

Disclaimer: The sponsor was not involved in data collection, analysis, interpretation, writing of the report, or decision to submit the paper for publication.

Funding support: This project was supported by a grant from the National Institute of Mental Health (1R01MH079387-01 and 1R01MH079387-01-DS).

References

  • 1.Barbui C, Tansella M. Identification and management of depression in primary care settings. A meta-review of evidence. Epidemiol Psychiatr Soc. 2006;15(4):276–283 [PubMed] [Google Scholar]
  • 2.Young AS, Klap R, Sherbourne CD, Wells KB. The quality of care for depressive and anxiety disorders in the United States. Arch Gen Psychiatry. 2001;58(1):55–61 [DOI] [PubMed] [Google Scholar]
  • 3.Kessler RC, Demler O, Frank RG, et al. Prevalence and treatment of mental disorders, 1990 to 2003. N Engl J Med. 2005;352(24): 2515–2523 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 4.Cepoiu M, McCusker J, Cole MG, Sewitch M, Belzile E, Ciampi A. Recognition of depression by non-psychiatric physicians—a systematic literature review and meta-analysis. J Gen Intern Med. 2008;23(1):25–36 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 5.Baik SY, Bowers BJ, Oakley LD, Susman JL. The recognition of depression: the primary care clinician’s perspective. Ann Fam Med. 2005;3(1):31–37 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 6.Collins KA, Westra HA, Dozois DJ, Burns DD. Gaps in accessing treatment for anxiety and depression: challenges for the delivery of care. Clin Psychol Rev. 2004;24(5):583–616 [DOI] [PubMed] [Google Scholar]
  • 7.Saver BG, Van-Nguyen V, Keppel G, Doescher MP. A qualitative study of depression in primary care: missed opportunities for diagnosis and education. J Am Board Fam Med. 2007;20(1):28–35 [DOI] [PubMed] [Google Scholar]
  • 8.Levinson W, Gorawara-Bhat R, Lamb J. A study of patient clues and physician responses in primary care and surgical settings. JAMA. 2000;284(8):1021–1027 [DOI] [PubMed] [Google Scholar]
  • 9.Kravitz RL, Epstein RM, Feldman MD, et al. Influence of patients’ requests for direct-to-consumer advertised antidepressants: a randomized controlled trial. JAMA. 2005;293(16):1995–2002 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 10.Tylee A, Freeling P, Kerry S, Burns T. How does the content of consultations affect the recognition by general practitioners of major depression in women? Br J Gen Pract. 1995;45(400):575–578 [PMC free article] [PubMed] [Google Scholar]
  • 11.Rochlen AB, Paterniti DA, Epstein RM, Duberstein P, Willeford L, Kravitz RL. Barriers in diagnosing and treating men with depression: a focus group report. Am J Mens Health. 2010;4(2):167–175 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 12.Bell RA, Paterniti DA, Azari R, et al. Encouraging patients with depressive symptoms to seek care: a mixed methods approach to message development. Patient Educ Couns. 2010;78(2):198–205 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 13.Epstein RM, Duberstein PR, Feldman MD, et al. “I didn’t know what was wrong:” how people with undiagnosed depression recognize, name and explain their distress. J Gen Intern Med”. 2010;25(9):954–961 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 14.Kravitz RL, Paterniti DA, Epstein RM, et al. Relational barriers to depression help-seeking in primary care. Patient Educ Couns. 2011; 82(2):207–213 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 15.Cape J, McCulloch Y. Patients’ reasons for not presenting emotional problems in general practice consultations. Br J Gen Pract. 1999;49(448):875–879 [PMC free article] [PubMed] [Google Scholar]
  • 16.Kadam UT, Croft P, McLeod J, Hutchinson M. A qualitative study of patients’ views on anxiety and depression. Br J Gen Pract. 2001; 51(466):375–380 [PMC free article] [PubMed] [Google Scholar]
  • 17.Dwight-Johnson M, Sherbourne CD, Liao D, Wells KB. Treatment preferences among depressed primary care patients. J Gen Intern Med. 2000;15(8):527–534 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 18.Backenstrass M, Joest K, Frank A, Hingmann S, Mundt C, Kronmüller KT. Preferences for treatment in primary care: a comparison of nondepressive, subsyndromal and major depressive patients. Gen Hosp Psychiatry. 2006;28(2):178–180 [DOI] [PubMed] [Google Scholar]
  • 19.Mohr DC, Hart SL, Howard I, et al. Barriers to psychotherapy among depressed and nondepressed primary care patients. Ann Behav Med. 2006;32(3):254–258 [DOI] [PubMed] [Google Scholar]
  • 20.Bandura A. Self efficacy. In: Friedman H, ed. Encyclopedia of Mental Health. San Diego, CA: Academic Press; 1998 [Google Scholar]
  • 21.Giel R, Koeter MW, Ormel J. Detection and referral of primary-care patients with mental health problems: the second and third filter. In: Goldberg D, Tantum D, eds. The Public Health Impact of Mental Disorder. Toronto: Hogrefe and Huber; 1990:25–34 [Google Scholar]
  • 22.Karasz A, Sacajiu G, Garcia N. Conceptual models of psychological distress among low-income patients in an inner-city primary care clinic. J Gen Intern Med. 2003;18(6):475–477 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 23.Bergner M, Rothman ML. Health status measures: an overview and guide for selection. Annu Rev Public Health. 1987;8:191–210 [DOI] [PubMed] [Google Scholar]
  • 24.Kroenke K, Spitzer RL, Williams JB, Löwe B. The Patient Health Questionnaire Somatic, Anxiety, and Depressive Symptom Scales: a systematic review. Gen Hosp Psychiatry. 2010;32(4):345–359 [DOI] [PubMed] [Google Scholar]
  • 25.Spitzer RL, Kroenke K, Williams JB. Validation and utility of a self-report version of PRIME-MD: the PHQ primary care study. Primary Care Evaluation of Mental Disorders. Patient Health Questionnaire. JAMA. 1999;282(18):1737–1744 [DOI] [PubMed] [Google Scholar]
  • 26.Fogel J, Ford DE. Stigma beliefs of Asian Americans with depression in an internet sample. Can J Psychiatry. 2005;50(8):470–478 [DOI] [PubMed] [Google Scholar]
  • 27.Fortune G, Barrowclough C, Lobban F. Illness representations in depression. Br J Clin Psychol. 2004;43(Pt 4):347–364 [DOI] [PubMed] [Google Scholar]
  • 28.Brown C, Battista DR, Sereika SM, Bruehlman RD, Dunbar-Jacob J, Thase ME. Primary care patients’ personal illness models for depression: relationship to coping behavior and functional disability. Gen Hosp Psychiatry. 2007;29(6):492–500 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 29.Carney PA, Eliassen MS, Wolford GL, Owen M, Badger LW, Dietrich AJ. How physician communication influences recognition of depression in primary care. J Fam Pract. 1999;48(12):958–964 [PubMed] [Google Scholar]
  • 30.Peifer KL, Hu T, Vega W. Help seeking by persons of Mexican origin with functional impairments. Psychiatr Serv. 2000;51(10): 1293–1298 [DOI] [PubMed] [Google Scholar]
  • 31.Wang PS, Lane M, Olfson M, Pincus HA, Wells KB, Kessler RC. Twelve-month use of mental health services in the United States: results from the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005;62(6):629–640 [DOI] [PubMed] [Google Scholar]
  • 32.Cooper LA, Gonzales JJ, Gallo JJ, et al. The acceptability of treatment for depression among African-American, Hispanic, and white primary care patients. Med Care. 2003;41(4):479–489 [DOI] [PubMed] [Google Scholar]
  • 33.Cabassa LJ, Zayas LH. Latino immigrants’ intentions to seek depression care. Am J Orthopsychiatry. 2007;77(2):231–242 [DOI] [PMC free article] [PubMed] [Google Scholar]
  • 34.Schomerus G, Matschinger H, Angermeyer MC. The stigma of psychiatric treatment and help-seeking intentions for depression. Eur Arch Psychiatry Clin Neurosci. 2009;259(5):298–306 [DOI] [PubMed] [Google Scholar]
  • 35.Carragher N, Adamson G, Bunting B, McCann S. Treatment-seeking behaviours for depression in the general population: results from the National Epidemiologic Survey on Alcohol and Related Conditions. J Affect Disord. 2010;121(1–2):59–67 [DOI] [PubMed] [Google Scholar]
  • 36.Groves RM, Fowler FJ, Couper MP, Lepkowski JM, Singer E, Tourangeau R. Survey Methodology. 2nd ed Hoboken, NJ: Wiley; 2009 [Google Scholar]

Articles from Annals of Family Medicine are provided here courtesy of Annals of Family Medicine, Inc.

RESOURCES