Public health service options for affordable and accessible noncommunicable disease and related chronic disease prevention and management

Abstract

Globally, nations are confronted with the challenge of providing affordable health services to populations with increasing levels of noncommunicable and chronic disease. Paradoxically, many nations can both celebrate increases in life expectancy and bemoan parallel increases in chronic disease prevalence. Simply put, despite living longer, not all of that time is spent in good health. Combined with factors such as rising levels of obesity and related noncommunicable disease, the demand for health services is requiring nations to consider new models of affordable health care. Given the level of disease burden, all staff, not just doctors, need to be part of the solution and encouraged to innovate and deliver better and more affordable health care, particularly preventative primary health care services. This paper draws attention to a range of exemplars to encourage and stimulate readers to think beyond traditional models of primary health service delivery. Examples include nurse-led, allied health-led, and student-led clinics; student-assisted services; and community empowerment models. These are reported for the interest of policy makers and health service managers involved in preventative and primary health service redesign initiatives.

Introduction

What is known about the topic?

• Despite acknowledgement of the global burden of noncommunicable and related chronic disease, there is sluggishness in workforce reform and service redesign among nations aspiring to provide affordable, accessible, and effective health prevention and management services.

What does this paper add?

• This paper showcases examples of nonmedical-led primary health care innovations focused on prevention and management of noncommunicable and chronic disease. The target audience is policy makers and health service managers responsible for primary health service redesign initiatives.

The provision of accessible, affordable, and effective health services to populations with increasing levels of noncommunicable and chronic disease is a major global challenge.^1–4 Paradoxically, many nations can both celebrate increases in life expectancy rates and bemoan parallel increases in chronic disease prevalence. While innovations in medical science and improved socioeconomic conditions have increased life expectancy, not all of that time is spent in good health. New Zealand statistics report that on average, a male can expect 8.9 years and a female 11.5 years of ill health prior to death.⁵ Combined with rising levels of obesity and related noncommunicable diseases (NCDs), the demand for health services requires the implementation of new models of affordable health care.^6–9 The burgeoning level of disease burden demands new approaches to health service delivery and the attention of all health professionals rather than a reliance on doctors alone.¹ All staff must be “encouraged to innovate and search for better and more affordable ways of delivering effective and appropriate care.”¹⁰

The paper highlights models of health service and leadership innovation in the prevention and management of NCD. Examples provided contrast with traditional medical-led models of care, including nurse-led, allied health-led, student-led, and community or lay person-led empowerment models. These are drawn from published literature and reported for the interest of policy makers and health service managers involved in health service redesign initiatives and grappling with rising levels of NCDs. Where available, evidence regarding the effectiveness of these emerging models of health service innovation and redesign is included.

Challenges confronting health service policy makers and managers

Globally, health policy and service contexts share a number of so-called “wicked problems,” challenges epitomized by inherent complexity, “mushy” definitions, and elusiveness of solution.^11,12 Underpinning this “wickedness” are issues such as 1) the burgeoning epidemic of obesity-driven NCDs and related chronic disease; 2) chronic shortages and misdistribution of qualified health professionals; 3) unsustainable rises in health care costs; 4) factors associated with compensation and remuneration across the health workforce; 5) safety concerns associated with the introduction of new drugs to elderly patients with comorbid conditions; and 6) service access issues for low-income, socioeconomically disadvantaged, vulnerable, and/or geographically isolated groups.^4,13,14

Essentially, traditional medical-led services can no longer suffice; the burden of disease is too large to be managed by one profession.¹⁵ In response, new and innovative models of care must be developed and implemented.^7,10 Health professionals preparation requires an increased emphasis on interprofessional education, teamwork, and collaborative care (frequently referred to as interprofessional practice) to support the delivery of effective integrated and well-coordinated health services.¹⁶ Top-down policy has limitations; therefore, communities, service users, and lay educators must be engaged and involved in service planning and delivery processes.^17–19 In effect, all health professionals must be part of the solution to avert the global health challenge of avoidable NCDs.¹⁰

Sadly, while these messages have been disseminated over several decades, effective action has been limited. Rather, the health issues and disparities have worsened, leading to increasingly urgent calls for action by governments and health policy officials.^20–23 However, major systems change is complex and difficult, given the associated large-scale social and behavioral shifts required to impact on the alarming trends in obesity-driven NCDs.²⁴ In response to this global increase in NCDs, many countries are increasingly looking to nurses, midwives, and allied health professionals to provide prevention and disease management services. Noteworthy are increasing reports of successful innovations and new service delivery models.

Accessing literature

In searching the literature relevant to this topic, the intent was not to present a systematic review of all recently published research, but rather to ensure that the discussion was informed by the literature and identify a set of cases that illustrate the possibilities and potential benefits of moving beyond medical-led models of care. Sources accessed included search and alert engines, electronic databases (CINAHL, MEDLINE, Cochrane), relevant journal websites, and grey literature. The inclusion criteria applied concentrated on English language publications from 2009 to 2014. Search terms were nurse-led, allied health-led, and student-led clinics; student-assisted services; and community empowerment models. While the search term “nurse-led” in CINAHL identified 895 papers focusing on nurse-led interventions, most relate to acute care services in secondary care contexts; few of these address the growing burden resulting from the rise in NCD and comorbidity.

The following sections feature global illustrations of innovative primary health service delivery.

Nurse-led services

Traditionally, nurses and midwives have formed the backbone of primary health care services. A 2006 study described nurse-led services as a “formalized and structured health care delivery mode involving a nurse and a client … with health care needs that can be addressed by a nurse.”⁶ Emphasis was given to the advanced competence and ability to work both independently and interprofessionally inherent in the provision of care that bridges the gap between hospital and primary care.²⁵ Multiple case studies are available to highlight the leadership role of nurses and midwives in both primary and secondary health care settings. In the former, the growing burden of NCD-related patient demand has significantly increased both general practice and medical specialty workloads. Earlier studies showed reduced hospital presentations when general practitioners included nurse-led clinic services within their practice.^26,27 In 2007, the Australian East General Practice Network produced a useful manual summarizing the rationale and evidence for health services provided by nurse-led clinics. The publication provides pointers regarding the establishment and implementation of a nurse-led clinic and reports evidence that integrated collaboration with nurse-led services relieves medical practitioner workload, increases services to patients, and improves patient outcomes.²⁶ A meta-analysis of 14 United States of America nurse-delivered collaborative care interventions for people with depression and long-term physical conditions reported improved depression outcomes, suggesting the potential for trialing similar models in other settings.²⁸

Table 1 highlights different models of nurse-led services with evaluations and positive health outcomes.

Table 1.

Nurse-led primary health care services

Service example	Key features and evaluated impact
True Blue model of collaborative care (Australia)	Practice nurses used as case managers for depression in tandem with management services for diabetes and heart disease. RCT shows the model:
	• Can contribute to improvements in diabetes, reduced 10-year cardiovascular risk, and improved depression.
	• Can be effectively introduced within general practice workforce settings.47
Community Outreach and Cardiovascular Health (COACH) trial (Baltimore, USA)	The trial utilized nurses as case managers to coordinate multicondition, collaborative care interventions. Results report:
	• Significantly improved outcomes in chronic disease management services led by nurses.
	• Risk factors such as total cholesterol, blood pressure, glycated hemoglobin levels, and low-density lipoprotein cholesterol were improved.
	• Patients in the team approach group reported significantly higher levels of satisfaction with chronic disease services.48,49
Nurse-led disease management program for chronic kidney disease (RCT) (Hong Kong)	Model of chronic disease management utilizing a mix of specialist and generalist nurses. Results include:
	• Improvement in quality of life and satisfaction with care.
	• Improvement in nonadherence.50

Abbreviations: COACH, Community Outreach and Cardiovascular Health; RCT, randomized controlled trial; USA, United States of America.

Allied health-led services

It has long been recognized that allied health professionals can make significant contributions to address gaps in primary health care services and to improve outcomes for vulnerable individuals at risk of adverse health outcomes. More than 35 years ago, members of the medical profession recognized the very significant contribution that could be made by other health professionals: “Allied health professionals have the required skills to provide preventive services with a greater sense of job satisfaction than do physicians.”²⁹

Allied health professions have been “defined as those professions that are distinct from medicine, dentistry, and nursing.”³⁰ Allied health professionals working in a multi-or interdisciplinary context have an important role to play in chronic disease management.³¹ Typically, allied health services are not provided in isolation but as part of a chronic disease management model led by medical colleagues, often with nursing support. In the Australian context, chronic disease management led by general practitioners (GPs) supports structured care planning for individuals with chronic disease, with incentives for care plans implemented under team care arrangements involving the GP and relevant allied health professionals, including Accredited Exercise Physiologists and dietitians.^32–35 The role of allied health professionals in providing effective care was emphasized in the clinical practice guidelines for stroke.³⁶ A key recommendation in these guidelines highlights the utilization of integrated multidiscipline care approaches by allied health professionals to improve health outcomes. More recently, clinical practice guidelines for the management of overweight and obesity report evidence that care delivered by multidisciplinary teams can be more effective than that provided by an individual health professional.³⁷ Table 2 points to examples of allied health involvement in the management of NCDs.

Table 2.

Allied health-led primary health care services

Service example	Key features and evaluated impact
Diabetes Prevention Program (DPP) (USA)	A comprehensive model designed to enhance the DPP was effective and successful in reducing diabetes and cardiovascular risk in high-risk individuals.
	• Utilized combined workshops to train health professionals in the fundamentals of DPP design and delivery.
	• Included social workers, exercise specialists, pharmacists, dietitians, registered nurses, psychologists, and others.
	• Program delivered in multiple settings, including primary care practice settings, churches, YMCAs, and health care locales.51
Capricornia Allied Health Partnership (Rockhampton, Queensland, Australia)	A team of allied health professionals provided services to clients with significant chronic disease challenges using a student assisted-clinic model.
	• Students and clinical staff from the professions of dietetics, nutrition, exercise physiology, pharmacy, podiatry, occupational therapy, and social work were included in the clinic.
	• This model of care attracted widespread interest, which led to the development and publication of a “how-to” guide for others seeking to replicate a similar model.40,52

Abbreviations: DPP, Diabetes Prevention Program; USA, United States of America; YMCA, Young Men’s Christian Association.

Student-led and student-assisted services

Student-led and student-assisted services have the potential to deliver several benefits, including well-supervised quality health care services, to vulnerable, low-income, or poorly serviced individuals and communities while also enabling nursing and allied health students to gain valuable clinical experience in primary care settings. A diverse range of Australian and international models are available for consideration (see Table 3).

Table 3.

Student-led and student-assisted primary health care services

Service example	Key features and evaluated impact
Faculty of Health student-led clinics (Australia)	Student-led clinics delivering a broad range of urban and mobile rural allied health services.
	• Students supervised by highly qualified and clinically current physiotherapy, psychology, nutrition, nursing, midwifery, exercise physiology, and professional supervisors.
	• This provides health services to otherwise underserved populations while also allowing students to gain valuable clinical experience.53
Academic nurse clinics or “health stations” (Finland)	Academic nurse clinics or “health stations” have a dual aim of providing quality health care to vulnerable and low-income populations while also providing valuable learning experiences for nursing students.
	• Initial evaluations indicate that health stations provide a valuable service to local populations.
	• Future evaluations are intended to explore more specific health outcomes.54
Student-led disability services (Malaysia)	A community-based rehabilitation approach used to promote and achieve equality of access for people with disability, in this case, speech-language disability.
	• Implementation of student-led disability services in Malaysia provided an innovative way in benefitting both the community and students.
	• Student learning is enriched through contextually based instruction.55
Student-led rural health fairs (Southeastern USA)	Many residents in rural communities across the Southeastern USA have decreased access to health care. This example shows how 1,694 individual patients received health care from medical students via student-led rural health fairs.
	• Access to health care was a significant issue; many of the patients lacked a primary care provider (46%) and many did not have a health insurer (43%).
	• This intervention not only provided services to otherwise unserved populations, but also provided unique and invaluable student clinical learning experiences.56

Abbreviation: USA, United States of America.

Models with services delivered by community-based lay health educators

In addition to models of care provided by qualified health professionals, a growing literature describes community-delivered primary health care services (Table 4). Current terminology describing help provided by community members employs a range of descriptors, such as peer educators, community health workers, lay health educators, outreach workers, and natural helpers.³⁸ The work of lay health educators who act in a “spirit of collaboration and mutuality” has the potential to promote the very best of principles and best practice in patient-centered care and health literacy.³⁹ Lay members of the community are described as having the capacity to decrease health care disparities and, through familiar and trusted relationships, build bridges between professional health care services while also addressing cultural gaps that might otherwise not be possible.^39,40

Table 4.

Community-led primary health care services

Service example	Key features and evaluated impact
Healthy living partnership and lifestyle weight-loss programs (North Carolina, USA)	Reports the effectiveness of primary health delivered by community health workers through well-established community health networks.
	The associated RCT supports the use of lay personnel in the delivery of community-based initiatives for the prevention and management of diabetes.57
Weight loss interventions for rural seniors (Arkansas, USA)	The use of lay health educators to implement weight loss interventions for rural seniors offers a viable model for the implementation of evidence-based obesity treatments to otherwise underserved populations.58,59
Collaborative stepped-care intervention for people with depressive and anxiety disorders (Goa, India)	Depression and anxiety disorders are common worldwide. A case management and psychosocial intervention delivered by trained lay health counselors supplemented by medication provided by primary care physicians with supervision by a mental health specialist was evaluated utilizing a cluster RCT.
	Results indicated higher rate of recovery in the intervention group compared with the control group.60

Abbreviations: RCT, randomized controlled trial; USA, United States of America.

What can be learned from these examples?

The examples profiled in this paper support the notion that management of chronic health conditions is best provided by a range of health professionals and community lay members working together.⁴¹ The examples provide a rich resource of evaluated innovations which highlight the potential and benefits which can be realized through interprofessional collaboration, professional-community partnerships, and redesigned models of care. While an increasing array of initiatives is being trialed, implemented, and evaluated, such models are not yet embedded as the norm throughout health care systems. All too often, professional boundaries are maintained and traditional models of care prevail.

Currently, the training of health care professionals and the structure of the Australian health system mitigates the optimal achievement of collaborative service delivery. For example, there are few examples of joint training of health professionals, the logical starting point for an understanding of, and respect for, the skills and contribution of each professional group. Optimal outcomes for patients, including those with chronic disease, require practitioners to have a clear understanding of respective role delineation and contribution⁴² and to respect this contribution.⁴³ In addition, responsibility for policy development, planning, and service delivery is the province of two levels of government, traditionally poorly integrated.⁴⁴ Further, the mix of private and public sector organizations, plus significant differences in the mix of health professionals working in these settings, is a challenge. This situation is further complicated by the differential in payment for GPs and allied health professionals, fee-for-service in private practice, and activity-based block funding in the public sector. Newly published reports continue to call for reform in education and training with greater emphasis on interprofessional activity, working together, and re-envisioning the roles of the health workforce.^45,46

What further developments are needed?

Nurse, allied health, and community-led or -assisted primary care clinics are currently heterogeneous in nature, with no systematic review available to evaluate effectiveness between one model or another. Existing models are limited by factors such as the aforementioned professional boundaries, regulatory and licensing restrictions, mismatched funding models, the availability of health professionals with advanced practice competencies, deficits in policy implementation, and more.^19,45

Conclusion

It is not possible for GPs and other medical professionals alone to meet NCD-driven levels of health service demand. Where and how health professionals are utilized is important for effective health service delivery and access to care. Action is required by both health policy makers and health service managers to provide the right mix of health care professionals in the right places to deliver effective preventative and primary care services, which will help stem the growing tide of NCDs. The involvement of all health professionals and the support of the community are needed to effectively meet health needs now and in the future. Ongoing discussion is needed regarding possible options, and more research is required to evaluate current developments and to inform the sustainability of funding models and policy implementation processes going forward.