Table 1.

Summary of Potential Patient Reported Outcome Measures by Phase of Cancer Continuum

PHASE OF CANCER CONTINUUM	DOMAIN	METRIC	STRENGTHS OF MEASURE	LIMITATIONS OF MEASURE
Screening
	Adherence	NHIS questions (Have you ever had…?)	Cognitively tested	Less accurate than medical records, reporting bias
	Attitudes and beliefs about screening
	Barriers	MEPS question	Cognitively tested and well validated Available in Sp	Not specifically tested for cancer screening
	Cultural competency	CAHPS, cultural competency supplement	Cognitively tested and well validated Available in Sp	Under development
Follow-up on screening
	Self efficacy
	Adherence	NHIS question (Have you ever had at a test where the results NOT normal? Because of the results, did you have additional tests? CAHPS	Cognitively tested	Less accurate than medical records,
	Attitudes/fears	?
	Barriers	MEPS question (Which of these best describes the main reason you were unable to get medical care, tests, or treatments?	Cognitively tested	Not specific tested for cancer screening
	Patient satisfaction with cancer related care	CAPHS question PSC	Focuses on follow-up for cancer	Under development
	Patient satisfaction with navigation	PSN	Focuses specifically on Navigation	Under development
	Psychological distress	PROMIS	Cognitively tested, well validated, computer assisted available online and in Sp
	Cultural competency	CAHPS, cultural competency supplement Perceived Similarity to Navigator	Cognitively tested and well validated Available in Sp Short, specific to navigation	Under development Under development
Primary Treatment
	Adherence	NHIS question
		CAHPS
		MOS adherence scale
	Self-efficacy	CASE-Cancer PAM	Focuses on cancer Strong psychometrically	Only used one publication Not cancer specific
	Patient Beliefs about Medication	BMQ, BMS	Addresses attitudes towards medication	Not widely used in cancer
	Barriers	MEPS question	Cognitively tested Available in SP	Not specific tested for cancer screening
	Patient satisfaction with cancer related care	CAPHS, cancer supplement PSC	Focuses on follow-up for cancer Available in Sp	Under development
	Patient satisfaction with navigation	PSN-L	Focuses specifically on Navigation Available in Sp	Under development
	Family satisfaction	FamCare
	Functional Health Status	FACIT/FACT	Strong psychometrically Available in Sp	? Sensitivity to navigation
	Functional health status and symptoms burden	PROMIS	Cognitively tested, well validated, computer assisted available online and in Sp
	Symptoms	FACIT/symptoms	Strong psychometrically Available in Sp
	Working Alliance	Satisfaction with Navigation – Interpersonal scale	Specific to navigation Available in Sp	Under development
	Cultural competency	CAHPS, cultural competency supplement Perceived Similarity to Navigator	Cognitively tested and well validated Available in Sp Specific to navigation	Under development Under development
Survivorship
	Treatment	MOS adherence scale Morisky MARS Cost-related non-adherence	Global measure Brief, widely used Brief Brief, validated, Available in Sp	Not widely used in cancer Relevant to prescription medications, not widely used in cancer, Relevant to prescription medications, not widely in cancer
	Self-efficacy	CASE-Cancer PAM	Focuses on cancer Strong psychometrically	Only one publication Not cancer specific
	Patient Beliefs about Medication	BMQ, BMS	Addresses attitudes towards medication	Not widely used in cancer
	Barriers	MEPS question	Cognitively tested	Not specific tested for cancer screening
	Coordination of care	CAHPS
	Patient satisfaction with cancer related care	CAHPS Cancer	Cognitively tested and well validated Available in Sp	Under development
	Patient satisfaction with navigation		None
	Functional Health Status and symptom burden	FACIT/FACT	Strongly psychometrically, Cancer type specific Available in multiple language	? Sensitivity to navigation
Strong psychometrically Available in Sp	Symptoms	FACIT	Strongly psychometrically Cancer type specific Available in multiple language
	Cultural competency	CAHPS, cultural competency supplement	Cognitively tested and well validated Available in Sp	Under development
End of Life
	Barriers to care
	Functional health status	FACT/FACIT
	Symptom burden	Symptoms/FACIT
	Functional health status and symptoms burden	PROMIS	Cognitively tested, well validated, computer assisted available online and in Sp
	Caregiver burden
	Patient[proxy] satisfaction with EOL care		??VOICES
	Patient satisfaction with navigation		None
	Family satisfaction	FamCare-2
	Cultural competency	CAHPS, cultural competency supplement	Cognitively tested and well validated Available in Sp	Under development