Abstract
Objectives
To examine the discourse of consultations in which conflict occurs between parents and clinicians about the necessity of antibiotics to treat an upper respiratory tract infection. To appraise the feasibility of shared decision‐making in such consultations.
Design
A qualitative study using discourse analysis techniques.
Setting
A general practice with 12 500 patients in an urban area of Cardiff, Wales.
Participants
Two consultations were purposively selected from a number of audiotaped sessions. The consultations took place during normal clinics in which appointments are booked at 7‐minute intervals. The practitioner is known to be interested in involving patients in treatment decisions.
Method
Discourse analysis was employed to examine the consultation transcripts. This analysis was then compared with the theoretical competencies proposed for ‘shared decision‐making’.
Results
The consultations exhibit less rational strategies than those suggested by the shared decision‐making model. Strong parental views are expressed (overtly and covertly) which seem derived from prior experiences of similar illnesses and prescribing behaviours. The clinician responds by emphasizing the ‘normality’ of upper respiratory tract infections and their recurrence, accompanied by expressions that antibiotic treatment is ineffective in ‘viral’ illness – the suggested diagnosis. The competencies of ‘shared decision‐making’ are not exhibited.
Conclusions
The current understanding of shared decision‐making needs to be developed for those situations where there are dis‐agreements due to the strongly held views of the participants. Clinicians have limited strategies in situations where patient treatment preferences are opposed to professional views. Dispelling ‘misconceptions’ by sharing information and negotiating agreed management plans are recommended. But it seems that communication skills, information content and consultation length have to receive attention if such strategies are to be employed successfully.
Keywords: antibiotic prescribing, discourse analysis, patient participation, professional practice, shared decision‐making
Introduction
The encouragement of ‘patient choice’ has concentrated attention on decision‐making, 1 , 2 and how involvement can be achieved against a background of evidence‐based practice. It is becoming widely accepted that participation in decisions results in greater client satisfaction and leads to improved clinical outcomes, as measured by decision acceptance and treatment adherence. 3 , 4 Charles 5 has described the three broad models of decision‐making: the paternalistic model, the informed choice model and the shared decision‐making model.
In the paternalistic model the physician decides what he thinks is best for the patient, without eliciting the latter’s preferences. The informed choice model describes a process whereby patients receive (usually from doctors) information about the choices they have to make. In theory, decisions need not be ‘shared’ as the patient now has both components (information and preferences) necessary to reach a decision. Furthermore, the physician ‘is proscribed from giving a treatment recommendation for fear of imposing his or her will on the patient and thereby competing for the decision‐making control that has been given to the patient’. 6 An argument has been put forward that the informed choice model leads to patient ‘abandonment’. 7 Shared‐decision making (see box 1) is seen as the middle ground between these two positions, where both patient and clinician contribute to the final decision. 5
A list of skills for ‘shared decision‐making’ has also been proposed, based on qualitative work in a Canadian context 8 (see box 2). But it is not known if these ‘conceptual’ competencies resonate with the inherent variability of actual professional practice. We cannot assume that the shared decision‐making approach can be implemented when disagreement exists. But this is part of a wider issue: how should doctors operate in a consumerist climate, 9 which encourages patient autonomy and involvement in decision‐making, and yet remain true to the professional imperative to follow ‘evidence‐based’ guidelines? 10 Does this dilemma negate the shared decision‐making process, or enrich it, by admitting an element of responsibility (rather than paternalism) to the doctor’s contribution? Our specific aim is to examine the ‘shared decision‐making’ model in situations of conflict over preferred treatments and we use discourse analysis 11 to inspect the details of two consultations for upper respiratory tract infections.
Method
Discourse analysis is a form of textual microscopy – the study of language in context. 11 , 12 Studies of how doctors talk to patients at out‐patient clinics, 13 how health visitors discuss issues with their clients 14 and how HIV counsellors convey information and advice 15 are examples where the techniques of conversation analysis 14 have revealed previously hidden perspectives. By focusing on its organization and sequences, it is possible to discern the rhetorical organization of everyday talk: how, for instance, is one version of events selected over any other? How is a familiar reality described in such a way as to lend it normative authority? On a broader front, discourse analysis is ‘concerned with examining discourse (whether spoken or written) to see how cognitive issues of knowledge and belief, fact and error, truth and explanation are conceived and expressed’. 12 The one essential thing about ‘doing’ discourse analysis is to stick to the text, which in many cases and in these examples, are pieces of talk. Transcription was undertaken by RGw and GE and a key to the symbols appears in box 33.
Having analysed the discourse, we will compare the communication strategies used in the two consultations against the theoretical ‘competencies’ for shared decision‐making. 8
The cases: two young children with an upper respiratory tract infection
The consultations took place within routine general practice sessions in an urban part of Cardiff. They represent actual episodes of care in a setting where patient appointments are booked every 7 min. The cases were purposively selected to highlight consultations where conflict occurs regarding the management of upper respiratory tract infection. To maintain confidentiality fic‐titious names are used. Consent was obtained for the recording and analysis, both before and after the consultations. The general practitioner (GP) is the same in both instances and is known to have an interest in the involvement of patients in treatment decisions. The transcript records the first encounter between this particular doctor and the clients involved.
Case 1: Tracey
Tracey, who has evidently been suffering from repeated sore throats (003, 004) is brought by her mother.
Normality
001 D Tracey you’re eight now is that right?
002 [inaudible: sore throat evidently the matter]
003 M she:’s suffering a lot from it um (.)
004 she always seems to be on antibiot‐ ics um (2.0)
005 doctor A he’s seen her last he gave her
006 one load lot of (.) antibiotics and then he gave me
007 a pre prescript repeat prescription then (2.0)
008 to have the other to get it right out of the system
009 [talks to child]
010 D [to Tracey] you’re eight now how many times have you had
011 what we say is tonsillitis?
012 (3.0)
013 M I’d say (.) about every two and a half months
014 D every two and a half months [muttering]
015 is it stopping you going to school? it is is it?
016 can I take a look in your throat (.) please (.)
017 have you had this done before?
018 (6.0)
019 M they said this when she went over for an examination
020 because she’s seeing a speech ther‐ apist about her tonsils
021 being really enlarged
022 D they are rather enlarged but nothing out of the ordinary
023 lots of children have got tonsils of this sort of size
[Further examination takes place]
024 D yeah okay (.) okay well the first thing to emphasize I guess
025 is that this is a sore throat (.) you’re right to call it a tonsillitis
026 cos that’s just a Latin name for a sore throat
027 M right
028 D okay (.) it’s probably caused by repeated viruses (.) right = [
029 M right
030 D = like (.) repeated colds
031 M yes
032 D y’know when you get a cold or a flu it’s a virus
033 chicken pox measles they’re viruses (.)
034 it’s probably caused by repeated viruses coming and going
035 contact with other children contact with school
036 sometimes you leave a virus hanging around in your body
037 and reactivating (.) the difficulty with viruses is
038 which I’m sure you know is that
039 antibiotics (.) don’t do a dickie bird for them
040 they don’t (.) wipe them out
This repeat episode of a ‘sore throat’ is accompanied with a seemingly overt complaint by the mother that her daughter has seen many others with the same problem: (004) ‘she always seems to be on antibiotics’. One ‘load’ (007) was not enough, a repeat was needed, and then ‘the other’ in order to ‘get it right out of the system’ (008). This sequence contains two significant pauses. Are these to gauge reactions to what appears to be a statement of discontent? If so, the doctor does not take these potential turns, does not comment, and proceeds with an attempt to engage the daughter, Tracey, (010, 011).
She does not reply and after a pause the mother responds by describing the bimonthly frequency of attacks. Acknowledging this information by means of an echo (line 014) the doctor continues his engagement; his turns have been precursors to gaining consent, implicitly given by Tracey, for a physical examination, (016) ‘can I take a look in your throat (.) please (.)’. Although the doctor has attempted to distance his use of a medical term by asking how many times ‘have you had what we say is tonsillitis’ (011), M takes the opportunity during the ensuing silence to state a corroborating fact. Tracey is ‘seeing a speech therapist about her tonsils being really enlarged’ (021), and thus M provides a clue as to her understanding of the ‘real’ nature of this problem. The next turn marks a significant change in the discourse. Whilst agreeing that there is enlargement, the doctor emphasizes the normality of this finding and completes the examination. The doctor then uses discourse markers and pauses to start an explanatory phase of turns (020–40). He suggests the ‘sore throat’ (his preferred term in 026), and by inference the previous episodes, are ‘probably caused by repeated viruses’, and compares the problem to the common cold. 16 The mother then acknowledges the turns using short agreements (027, 029, 031) and the doctor goes on to list common viral problems where antibiotics are not associated with usual management (032, 033). Having emphasized the normality of the condition, the doctor mentions the inevitability of exposure to viral vectors, and the lack of effectiveness of antibiotics in such viral illnesses (035–40). This could be seen as an oblique way of providing advice and avoiding conflict. Silverman noticed a similar pattern in HIV counselling and used the term ‘advice as information’ sequence. 15
Personal experience, views and ‘evidence’
041 M right (.) the trouble is (.)
042 I could go away from here tomorrow
043 I mean you’re the doctor I’m not telling you your job
044 but I’d be guaranteed back tomorrow
045 because she seems to (.) this now is nothing
046 to how she she usually goes right down with it
047 as well you know second third
048 [
049 D with a high temperature
050 becomes very ill =
051 M = that’s right
052 D sure (.) yeah (.) and some people find that (.)
053 antibiotics help them through that illness
054 if they extend their
055 [
056 M yes
057 (.)
058 D what I’m saying I guess is that (.)
059 the best guess we can do is that this is a viral illness
060 that it won’t respond to antibiotics
061 it’ll just (.) take its time and get better (.)
062 some people like to have a course of antibiotics
063 because they feel it makes a differe‐ nce (.) and (.)
064 the (.) science on this is a bit 50/50 (.)
065 sometimes it does (.) sometimes it doesn’t (.)
066 and as you’ve probably heard from the papers
067 people are a bit wary of giving antibiotics
068 [
069 M that’s right yes =
Despite reassurance and indeed attempts at persuasion by the doctor, that viral illnesses should be regarded as self‐limiting problems; the mother immediately counters. Using a discourse marker ‘right’ (041) to emphasize her turn, followed by a disclaimer ‘I’m not telling you your job’ (043), she feels able to provide a personal account of her daughter’s previous illness patterns. By doing this she claims prior experience of the situation and locates herself as one with a certain limited knowledge. This strategy is known as ‘category entitlement’, by which individuals’ experience entitles them to special knowledge about a topic, 16 which in effect counters the doctor’s position. She says that ‘I’d be guaranteed back tomorrow’ (which constitutes a type of threat, since she will be wanting antibiotics then, if they are not provided today). The graphic term ‘she usually goes right down’ elicits an interjection, a query inviting confirmation (049, 050), which allows the doctor to re‐enter (058). He acknowledges the weakness of his position (it’s his ‘best guess’ that this is a viral problem), proposes the illogicality of treating a viral illness with antibiotics yet concedes that the odds are ‘50/50’, that sometimes they make a ‘difference’. The interview seems to have coincided with a wave of publicity about the overuse of antibiotics, 17 and this is brought in as added weight to the GP’s reluctance to prescribe (066, 067).
Option portrayal
070 D = yeah (.) so (.) we’ve got two choices (.) all right now?
071 these are the two choices (.)
072 we’ll give you plenty of para‐ cetamol (.) fluids
073 and let this illness carry on
074 and build up a natural immunity (.) yeah? =
075 M = all right
076 D or we’ll give you some antibiotics (.) and (.)
077 treat it as we’ve treated it in the past
078 although as you say (.) it (.) keeps coming back
079 and I don’t think we can stop that
080 M no (.) she certainly reacts better (.) I would say so
081 out of experience
082 D to?
083 M the antibiotics really do seem to work on her
084 I (.) have given her paracetamol I was sent away
085 going back a while ago (.) to give her [parrotting]
086 paracetamol plenty of fluids (.) she was burnin up (.) ah no (.)
087 she (.) it seemed to drag along a long way you know
Turns take place in quick succession between the doctor’s reinforcement of his views about antibiotics, with the affirmations ‘that’s right yes’ and ‘yeah’ (069, 070) acting as turn controlling devices. The pauses after ‘so’ and ‘we’ve got two choices’, followed by the rhetorical device ‘all right now’ (070), similarly demonstrate the imposition of professional control on the turn and signify a deliberate attempt by the doctor to gain attention to his views about the choices available. He goes on to outline two options, the use of time, fluids and paracetamol or treatment with ‘some antibiotics’, with the casual quantifier some used to undermine the way ‘we’ve treated it in the past’. This is underlined by a thinly veiled disparagement, that the problem ‘keeps coming back’. At this point the doctor’s turns are less intrusive. The mother calls on her ‘experience’ and cites previous improvements (080). The doctor interjects, but only to clarify that they are still talking about ‘antibiotics’ as the perceived agent of benefit. The doctor then frames a question in the plural inclusive form: ‘is that our preference’ (088), a signal perhaps that the doctor’s view is not static, that he is prepared to meet the mother’s perceived preference. This attempt at arriving at a ‘shared’ view had been hinted at previously by the indication that both the doctor and the patient had choices: ‘we’ve got two choices’ (070).
The decision is then rapidly achieved, and seems to be made in the following brief exchange:
088 D is that your preference? (.) to: have a go with some antibiotics
089 rather than try the paracetamol and = [telephone rings through following turn]
090 M = I’d rather the antibiotics
091 D yeah?
092 M really (.) I would
This is followed by a turn in which the mother justifies her stance. But the justification is not by reference to an actual requirement for her daughter to have treatment, but by the fact that she is a ‘busy person’, whilst immediately re‐affirming her view that ‘antibiotics definitely do work better on her’ (099).
093 I mean if there was a way I thought she was going to be all right
094 in a couple of days (.) I know it sounds awful
095 if I’ve got the antibiotics into her
096 I’m (.) a busy person myself I’m (.)
097 back and forward to jobs you know and I can’t
098 [laughing] I know that sounds awful
099 but (.) the antibiotics definitely do work better on her (.)
100 I would say so
101 D excuse me a second [answers phone] yes okay um (.)
102 have you found any particular one to be more helpful
103 than any other?
104 M umm: (.) the clear one
There is the clear implication (‘I’m a busy person myself’) in this turn that if the mother had more time to be with her daughter, then the doctor’s preferred strategy of using simpler measures could well have been accepted. The mother insists on her guilty feelings (094) about pursuing this preference, repeating the expression (after laughter) in line 98. However, the laughter re‐frames the confession of ‘guilt’ as formulaic, an interpretation which is ratified by her next comment, a further and emphatic justification for her choice (‘the antibiotics definitely do work better on her’). From that point onwards, the consultation proceeds with checks about specific antibiotic suitability and closes with explicit expressions of gratitude by the mother.
Case 2: Ali
Ali, who has been suffering from a high temperature for a day or so is brought by his parents. The father, for whom English is a second language, does the talking. The doctor has completed his examination and has explained that Ali has got ‘tonsillitis’. We enter the transcript at the point where the doctor is asking about the father’s views (077).
Parental ideas about possible management
075 D now (2.0)
076 did you have any ideas as to how we should
077 deal with this (.) problem?
078 F actually I have a (.) other son [D: mmm] (.)
079 six and a half years old [D: mmm] (.) he had
080 lots of problem (.) about his tonsils (.)
081 the same problem (.) actually he [all come?] now
082 he finished this problem (1.0) he’s coming to age seven
083 so (.) I think it is better to keep the child from cold
084 no cold drinks? something like that (.)
085 I don’t know any more
Prior experience
The father responds to the doctor’s question without surprise, and describes a similar previous event with another son. However, the only course of treatment suggested is that the child should be ‘kept from cold drinks something like that’, the partial disclaimer indicating that he is not expert in any real knowledge on this account. This reticence suggests that the father is treating the doctor’s invitation to contribute as rhetorical, as if he knows that the doctor is the real purveyor of knowledge – even though he (the father) has previous knowledge of the condition with another child.
Normality
086 D okay (.) the the ways we deal with tonsillitis (.) um (.)
087 it’s quite normal for children to have this kind of problem
088 yeah? d’ya? [
089 F yes =
090 D = it comes and goes it’s usually a viral infection
091 a virus okay? (.)
092 which means that (1.0) I would like you to u::se (.)
093 either Disprol or Calpol to keep the temperature down
The doctor’s reaction is to ‘normalize’ the condition by emphasising its regularity 16 by reassuring the parents that ‘this kind of problem’ is something that ‘comes and goes’. This is ‘advice as information’ again. 15 He also takes the opportunity to establish that it is a viral infection and explain why he doesn’t want to prescribe antibiotics.
Personal views on risks and benefits of treatment
100 D right? (.) now (.) some people then (.) like to use (.)
101 antibiotics as well (.)
102 but (.) I’m not so keen because
103 antibiotics don’t deal with viruses (.)
104 they just (.) are no use (1.0)
105 and they also cause some problems (.)
106 they sometimes cause diarrhoea and vomiting (.) um (.)
107 and it means that you have (.) problems for the future (1.0)
108 so (.) those are the kind of possi bilities (1.0)
109 which (.) which way would you like to deal with the problem?
110 (1.0)
111 F actually if I use antibiotics for my children (.)
112 the problem (.) is ending in a short time (.)
113 which I ha ob observe (.) but the the another way (.)
114 some paracetamol or things yeah (1.0)
115 it will end but a little bit more than the uh (.)
116 D yes take a bit longer =
117 F = yeah take longer
118 D sure I understand ((yeah))
119 (1.0)
120 F so it’s it’s uh (.) family I mean the uh parents we don’t (1.0)
121 want to see our children (.) going down I mean getting weak
122 D [quietly] sure =
123 F = so we want to take some (.) antibiotics
The doctor enforces his position by mentioning harmful side‐effects (‘diarrhoea and vomiting’) as well as ‘problems for the future’. After describing these possible effects, the question ‘which way would you like to deal with the problem’ (line 109) would seem loaded – but the father too has a clear stand on the issue of antibiotics, gained from his own experience of watching his children ‘going down’. On a superficial level, the doctor has offered clear involvement, but the undercurrents are clear.
124 (1.0)
125 D you would like to do that would you? [
126 F yeah
127 D yeah?
128 F yeah (.) it is too difficult to to explain but (2.0)
129 if we can uh (2.0) can be encourag‐ ed by doctors yeah
130 we can do some uh paracetamol
130 D sure =
132 F = we cannot lie
133 (.)
134 D my own feeling is that
135 you’re probably better to use para cetamol and fluids
136 rather than use antibiotics
137 because you can cause sickness
138 and also resistance for the future [
139 F I see
140 yeah I understand
141 D um (.) but if you feel strongly
142 that you would like to definitely have an antibiotic
143 we can do that as well (.)
144 um the other possibility’s for me to give you
145 a prescription for an antibiotic
146 and for you to wait
147 F I see (.) yeah
[
148 D and and only use it
149 if things get worse
150 you can give me a telephone call or something
151 F yeah (.)
152 D so which one of these possibilities would you like to do?
153 (1.0)
154 F okay [slight laughter in voice] let me ask my wife
155 [to M] which one paracetamol or (.) antibiotics?
antibiotics?
Presenting and perceiving the choices available
Ali’s father, like Tracey’s mother, would prefer to receive antibiotics but the doctor attempts to change the father’s opinion by listing potential problems (134–138). This is the ‘firmest’ position that the doctor has taken so far, and it would have been interesting to see what might have happened had the father remained strident in his request for antibiotics at this stage. He appears to back down, however, conceding ‘I see yeah I understand’ (line 139–140). The doctor accommodates to this concession in the father’s stance by offering a compromise, stating that he is prepared to give a ‘delayed prescription’. Three choices have now been offered: (i) paracetamol only; (ii) paracetamol and antibiotics; and (iii) paracetamol and the possibility of antibiotics in a few days. However, the father seems to consider only a straight choice between paracetamol and antibiotics, which is translated in the father’s version to his wife as ‘which one, paracetamol or (.) antibiotics?’ he then repeats his preferred choice ‘antibiotics?’ before the mother responds in their own language (inaudible on the tape).
The husband and wife share a decision
[After a subdued and brief laugh, M responds to F at some length in their own language, quietly and insistently]
157 F yeah paracetamol this time please [M still talking quietly to F]
158 D okay (2.0) Disprol or Calpol?
159 F yeah
160 D which one? doesn’t matter
161 F I see uh Calpol is uh eh better than paracetamol or euh which one? [M whispers to F throughout]
162 D children like it a bit better than most stuff [laughing]
163 M yeah =
164 F = okay
The outcome of this brief interaction is surprising. In one short utterance (line 157), the father states his new preference and (while his wife continues to speak to him in a quiet voice) offers no further contribution whatsoever to the de‐cision, only giving his son’s age, the family’s address, some minimal feedback and a farewell. It is as though the entire preceding discussion has been wiped out. His wife, in the meantime, is busy thanking the doctor and bidding him good bye (175–82).
175 M thank you very much
176 D no problem and he’s you know he’ll be healthy fine
177 F okay
178 D okay no problem
179 M thanks very much
180 D bye bye now
181 F bye bye
[
182 M bye
Comparison of the cases with suggested shared decision‐making competencies
The cases are compared against each competency (see box 22) in turn:
•Establishing a context in which patients’ views about treatment options are valued and necessary. Given that these are first consultations, a ‘context for respecting views’ cannot be assumed, nor easily achieved. Nevertheless, ‘views’ are elicited: Tracey’s mother clearly wants antibiotics; Ali’s father is asked about his ‘ideas’, and although this is taken to be a rhetorical query, and he declares his preference.
•Eliciting patients’ preferences so that appropriate treatment options are discussed. In both cases attempts are made to ‘discuss’ their preferred choice. It seems as if the defensive position prevents the doctor clarifying the parental expectations and to gauge reactions to the information provided about the undesirable effects of prescribing antibiotics.
•Transferring technical information to the patient on treatment options, risks and their probable benefits in an unbiased, clear and simple way. The doctor does not transfer detailed information about the harms and benefits of the treatment options. Perhaps uncertainty about the exact diagnosis and treatment outcomes makes this a difficult process to contemplate. There is however, an attempt to convey ‘normality’ in both consultations, and that such episodes are self‐limiting.
•Physician participation includes helping the patient conceptualize the weighing process of risks versus benefits, and ensuring that their preferences are based on fact and not misconception. There is no assessment of risk and benefit in either case. The emphasis is on obtaining parental acceptance of the self‐limiting nature of the problem. Weighing harms against benefits of the three options (no treatment, symptomatic treatment, and antibiotic provision), in terms that can be readily assimilated does not occur.
•Shared decision‐making involves the physician in sharing his treatment recommendation with the patient, and/or affirming the patient’s treatment preference. The doctor has attempted to use the concept of ‘normality’ as a means of persuading the patients to accept symptomatic treatment. It is to be expected that young children will develop upper respiratory infections, and the doctor wants to avoid its medicalization. But this ‘normality’ is in fact the unshared decision. The doctor tries to change Ali’s father’s preferred choice and this does not fit into the underlying tenet of the ‘shared decision’ model. It is noticeable that the conflict is suddenly resolved by the decisions to use or not use antibiotics: the haste, by both parties, to complete the consultations after this point is clear. The doctor is unable to affirm the preferred option and we are left sensing an unacknowledged acceptance that one party has achieved their ‘choice’ at the expense of the other.
Discussion
Shared decision‐making 5 is made difficult when differing opinions about the ‘best’ treatments exist. Some components of the shared decision‐making model can be discerned in the cases studied, but they are incomplete. Albeit briefly, treatment preferences are explored but (from a professional perspective) ‘misconceptions’ remain, and the ‘affirmation’ stage is not convincing in either meeting. Perhaps the shared decision making approach would succeed if more attention were given to the competencies. If expectations and experiences were explored, if options and risks were fully explained, then it would be more likely that agreement and satisfaction with conservative management could be achieved. But it is rare for clinicians to carefully explore expectations 18 , 19 and we also suspect that the stages of ‘shared decisions’ are rarely employed in general practice. They would at least double the consultation length. Employing such methods may be one way to successfully change prescribing patterns – we simply don’t know. As matters stand within general practice in the UK, 20 GPs are prone to acquiesce to parental requests for antibiotics.
The other explanation is that the theoretical competencies of shared decision‐making are flawed, and so divorced from the realities of busy clinical environments as to be unworkable. Observed practice reveals that clinicians either acquiesce, take up positions of ‘friendly persuasion’ 21 or use other strategies, such as the mixed messages implicit in the offer of delayed prescriptions, in order to preserve their ‘evidential’ standpoint. These tactics have not succeeded in curtailing the inappropriate use of antimicrobial therapy.
These two consultations demonstrate the tension between ‘best practice’ and pragmatism. 19 , 22 The scenario is recognized as one of the most ‘uncomfortable’ prescribing situations in which GPs find themselves. 23 Providing an antibiotic for a viral illness is costly, illogical, contributes to the increasing levels of drug resistance, 24 rewards attendance with viral illnesses and leads to a vicious circle of re‐attendance, with the result that workload for self‐limiting illness spirals over future family generations. 25 , 26
Evidence based medicine promotes rational decision‐making but patient requests are influenced by many other factors and often deviate from the professional view. 27 One important constraint is uncertainty – there is always a worry that viral type symptoms may be precursors of more sinister illnesses, such as meningitis. 28 , 29 The doctor’s position is made yet more difficult by the fact that the parent’s satisfaction seems to depend entirely on receiving the tangible representation of ‘getting well’– an antibiotic. 30
Decision‐making: approaches and dimensions
Decision‐making within the medical consultation can be considered to have three dimensions: the locus of the decision, availability of information about the choice to be made, and value systems (the patient’s experience, fears and expectations and the doctor’s world view, e.g. one based on empirical evidence). Two of these dimensions are illustrated in Fig. 1 and the three decision‐making approaches represented.
The model illustrates the tension within these consultations. Decisions were not made unilaterally by the doctor (paternalism). Tracey’s mother was ‘allowed’ to take a decision but it could be argued that she was not well ‘informed’. The ‘shared decision‐making’ approach does not fully encompass the cases either. The doctor retained the locus of decision‐making in Ali’s case, but relinquished it in Tracey’s situation. Information was held by the doctor in both cases but there was little attempt to share details, at least to the point where the parents are fully informed. Perhaps the opposite of paternalism is consumerism, where the utility of ‘evidence’ is more precarious. This conceptual framework illustrates the fragility of a rational model when in fact decisions are influenced by so many different parameters. 31 Table 1 illustrates the pragmatic approaches that are available in these situations: acquiescence, negotiation, or paternalism.
Table 1.
Contexts that favour shared decision‐making
Professional ‘equipoise’ about the outcomes of decisions is an important criterion that enables shared decision‐making to take place, and which is missing in these cases. It allows patients the ‘freedom’ to choose preferred options. Many decisions in medicine have this quality. But professionals cannot maintain ‘equipoise’ on all issues. It is also clear that concerns about power asymmetry in the clinical context need to be reformulated when such clear expressions of treatment preferences are witnessed. Similar findings in the private sector emphasize the need to re‐examine assumptions in this field. 32 There is a large literature on the preferred roles of patients in clinical decision‐making, 33 , 34 which has been comprehensively reviewed by Guadagnoli. 2 The majority of the work to date is unfortunately based mainly on hypothetical scenarios. 2 To examine patient preferences (or perceptions) about their involvement in decisions prior to an exposition of options prejudges the issue. It is also important to understand how both parties in these consultations viewed their respective contributions to the decision‐making process, and exit interviews will be an important aspect of future research in this area.
Conclusion
The current understanding of shared decision‐making needs to be developed for those situations where there are disagreements due to the strongly held views of the participants. This is not to argue for ‘paternalism’. There are many advantages to ‘shared decisions’– they maintain the ethic of patient autonomy, meet the legal needs of informed consent, ensure that treatment choices are in line with individual values and preferences and are linked to improved health outcomes – but there are limits.
It could well be that training health professionals in the skills of sharing decisions will turn out to be the most successful way of achieving appropriate decisions, as judged against the criteria of ‘effectiveness’, patient agreement and satisfaction, both in situations of equipoise about ‘correct’ treatment choices and conflict between professional and patient preferences. But as yet we do not know if the shared decision‐making approach is either effective or practical. We suspect that more time is needed to explore, explain and enable the process, 35 and that clinicians need to improve their communication skills and the content of the information they provide during the portrayal of options. Meanwhile, Tracey ‘always seems to be on antibiotics’.
Funding: Nil
Conflict of interest: Nil
Acknowledgements
The authors are grateful for comments on the draft by Nigel Stott, Paul Kinnersley, Sandra Carlisle, Sharon Caple, Roisin Pill, Sian Koppel, Clare Wilkinson, Steve Rollnick and Michel Wensing.
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